Sociology of Disability Somatic Structures & the Independent Living Movement

What is the Independent Living Movement? The Independent Living Movement philosophy: people with disabilities should have the same civil rights, options, and control over choices in their own lives as do people without disabilities

Independent Living Movement Prior to the 1960’s, people with significant disabilities were invariably incarcerated in state-run institutions. People with mental illness, developmental disabilities, and sensory or physical disabilities were kept in conditions often far worse than criminals were subjected to.

Independent Living Movement  Deinstitutionalization:  Begins in the 1960’s  gradual release from institutions to return to home communities where treatment was to be available.

deinstitutionalization  result of advocacy  Advocates fought to move people with developmental disabilities, out of institutions and back into their home communities.

deinstitutionalization  Advocacy led by service providers and parents of people with developmental disabilities and was based on the principle of "normalization" developed by Wolf Wolfensberger, a sociologist from Canada.  His theory was that people with developmental disabilities should live in the most "normal" setting possible if they were to expected to behave "normally."

Independent Living Movement  The process of deinstitutionalizing people with disabilities created, for the first time in American history an opportunity for people with disabilities to live more independent lives. From this, a community and a culture were born.

Creating New “Somatic Structures”  What is a “Somatic Mode of Attention”?  What is a “Somatic Structure”?  How would this concept apply to an understanding of the structures produced by the Independent Living Movement?

Independent Living Movement other historically important factor: emergence of new technologies and medications better assistive technology.

Independent Living Movement  Attitudes of the “non-disabled  Were people with disabilities entitled to their civil and human rights regardless of disability?

Creating a Disability-oriented Somatic Structure  Importance of Activism -Emancipation from state- run institutions came for the “disability community “amidst massive Civil Rights Movements nationally and abroad.

Independent Living Movement  Recognition that human rights and civil liberties would come only as they fought for them, and that they would have to fight in order to force politicians to enact anti-discrimination and civil rights laws that applied to people with disabilities directly.

Independent Living Movement With most state-run institutions closed, people with significant disabilities became more visible, and more audible, too. But society’s unwelcoming attitude did not change. This situation created an opportunity for the private medical industry to appropriate the position once held by state- run institutions.

Independent Living Nursing home expansion nursing home industry began to spin the issue as a social welfare cause.

Independent Living The nursing home industry worked to enact laws that created an “institutional bias,”: government will pay for needed services for a person residing in a nursing home, but not for the same services provided in one’s own home, even when the cost is less.

Independent Living  With people with disabilities out of sight and out of mind, segregation remained a viable option for America  Nursing home industry became a formidable and affluent opponent for the Disability Rights Movement.

Independent Living  The words "Independent Living" have been appropriated by the nursing home industry. CILs are not residential facilities and are opposed to segregation and forced institutionalization of people with disabilities.

So how did the Independent Living Movement address these issues???  Beginning in the 1940’s and 50’s, people with disabilities began to organize for political change. Leagues developed for “The Blind,” “The Deaf,” and “The Physically Handicapped,” advocated for an end to discrimination in Federal programs, education, and employment.

Independent Living Disability-specific advocacy efforts initiated and pioneered the Disability Rights Movement and realized significant accomplishments in opportunities available to people with disabilities, but real political power was achieved with the dawn of the Independent Living Movement

Independent Living One critical aspect of Independent Living philosophy is the conversion from the Medical Model to the Independent Living Model (or Social Model) of understanding disability

Ed Roberts and Independent Living  Ed Roberts and other disability activists founded the first recognized and funded Center for Independent Living in Berkeley, California.

Independent Living Centers for Independent Living *created to be run by and for people with disabilities *offer support, advocacy, and information on empowerment in the attainment of independence from a peer viewpoint

Independent Living  Ed Roberts is often referred to as the “Father of Independent Living.” * faced a great deal of discrimination in his efforts to pursuit an education.

Independent Living-Ed Roberts  The California Department of Rehabilitation refused Roberts request for financial aid to attend college on the basis that he was “too disabled” to work.  The University of California accepted him as a student, but later rescinded their decision with the comment by one Dean, “We've tried cripples before and it didn't work.”

Independent Living After going public with his story, both the University and the Department of Rehabilitation reconsidered their positions Ed eventually went on to become the head of the Department of Rehabilitation, the very same agency that had dismissed him as unemployable fifteen years earlier.

Independent Living-Judy Heuman After winning her right to a public education after having been declared a Fire Hazard, Judy Heumann faced similar discrimination in access to employment in her field. The New York City Board of Education refused to allow her to teach on the basis that she could not pass a physical education exam. She eventually persuaded the Board that their decision was discriminatory and taught elementary school for three years before going on to found Disabled in Action in New York.

Independent Living  Across the country, other Centers for Independent Living began to grow simultaneously in Houston, Boston, and Chicago. Wade Blank and the Atlantis Community established ADAPT, an activist organization that reformed access for people with disabilities to public transit and continues its fight for deinstitutionalization today.

Independent Living Disability Rights Activism: longest occupation of a Federal building in history April 5th through May 1st, *rallies and sit-ins were held in nine cities across the country, and the action led to the release of the regulations of the Rehabilitation Act of 1973, which bans discrimination against people with disabilities in federally funded programs.

Independent Living Independent Living philosophy- emphasizes consumer control people with disabilities are the best experts on their own needs, particularly in reference to services that powerfully affect their day-to-day lives and access to independence.

Independent Living  As the Independent Living philosophy took hold nationally and the Disability Rights Movement gained acceptance and political influence, a grassroots movement for a comprehensive disability rights law was implemented.

Independent Living  Today, Centers for Independent Living and other Disability Rights organizations fight similar battles to ensure that the rights of individuals with disabilities, as well as people with disabilities as a class are protected.  Even with the passage of the Americans with Disabilities Act, people with disabilities often find that advocacy and support from the disability community and the Disability Rights Movement is an essential element in enforcement of the civil rights law.

Somatic Structures  Why is activism and disabled involvement in structures for people with disabilities so important?  Why is disabled involvement important in all aspects of our lives?