KPA Day : 28 th March 2015 KPA Day : 28 th March 2015 What the NKF has done in the last year Kirit Modi Chairman, NKF.

Slides:



Advertisements
Similar presentations
Learning from the past – Setting out the future Daniel Marsden – RCN Learning Disability Forum.
Advertisements

How patient and community involvement in health and social care is changing Putting lesbian, gay and bisexual people on the map in Greater Manchester Paul.
An introduction to PSNC Representing NHS Community Pharmacies August 2013.
NHS Future Forum Patients and Public. Information Led by Prof David Haslam & Jeremy Taylor Integration Led by Geoff Alltimes & Dr Robert Varnam NHS role.
A charity registered in England and Wales (no ) and in Scotland (no. SC039299). A company Limited by Guarantee (Number ) Genetic Alliance.
NKF Transport Group David Marshall Executive Member NKF Chair – Saka (Sheffield)
Local Education and Training Boards Adam C Wardle Managing Director, Yorkshire and the Humber Local Education and Training Board.
The Voice of Carers Developing carer organisations across Europe Sebastian Fischer VOCAL - Voice of Carers Across Lothian Coalition of Carers in Scotland.
Carers Partnership Board Having your say. What we are Carers Partnership Board Brings together a range of people including carers, representatives from.
If we work together we can change services for the better, promoting choice and control over the way disabled people and carers live their lives. March.
Dementia Action Alliance Quarterly Event Focus on Delirium and dementia in Black, Asian Minority Ethnic Communities 2 nd September 2013.
Why are we here? We have in place various ways in which patients can engage, to either use services, or influence the way in which those services are provided.
Jonathan Owen Chief Executive 27 September 2014 IMPROVING LOCAL COMMUNITIES TOGETHER!
NKF AGM 28 th March 2015 AN INTRODUCTION TO THE WEST LONDON KIDNEY PATIENTS ASSOCIATION.
National COPD Programme Building QI into Your Audit from the Start Prof. Mike Roberts Royal College of Physicians Barts Health/ UCLPartners On behalf of.
Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry.
Regional Transplant Forum Sept Current national format NHSBT Kidney Advisory Group Renal Transplant Clinical Reference Group NHS England BTS Guidelines.
National Campaign for Cardiac Rehab - an update for the BACR Friday 3rd October 2008 Ruairi OConnor Policy & Public Affairs.
Introducing NICE... Gateshead Council Gillian Mathews Implementation consultant - north.
1 British Insurance Brokers’ Association BIBA Presentation
Partnerships for the Future Implementing a sustainable framework of partnership working with service users and other partners Thursday 2 May 2013 Giving.
Place Your 1 NASHP 24th ANNUAL STATE HEALTH POLICY CONFERENCE Quality Care and Timely Benefits: A Purchaser Perspective Joan M. Kapowich, R.N. Administrator.
Annual Report 2014/15. Engaging with people who use health and social care services During we met up with over 4500 people at 374 activities across.
Public Health and the role of the Health and Wellbeing Board Dr Liz Robin, Director of Public Health Wednesday 10 th July 2013.
Tobacco Control Operational Plan Vila Vasoodaven Healthy Lifestyles Partnership Officer Directorate of Public Health, Health and Social Care Commissioning.
Guidance for AONB Partnership Members Welsh Member Training January 26/
Jonathan Owen Chief Executive 5 November 2014 IMPROVING LOCAL COMMUNITIES TOGETHER!
Towards a corporate communications strategy
Breathe Easy Haverfordwest A new support group for people with a lung condition starting in your area First meeting pm Tuesday 27 October 2009.
Getting involved in your Local Party or how to grow your own.
Alex Borchardt Assistant Chief Executive & National Helpline Coordinator Families Need Fathers.
Carers Trust Information for scheme and centre board members © Carers Trust 2012 Carers Trust is a registered charity in England and Wales ( ) and.
Stroke helplineWebsite www.stroke.org.uk Raising the Profile of Stroke Neurological alliance AGM 24 th November 2009.
Patient Information Forum (PiF) Overview.
Department of Health Stakeholder Conference Inmarsat, Wednesday 30 th July 2008 Derek Butler Chair MRSA Action UK
The leading subject association for all teachers of geography.
Arlene Wilkie Chief Executive 1 The role of Regional Neurological Alliances.
Living Donor Kidney Transplantation 2020 Strategy Update Lisa Burnapp
National Dementia Declaration. uk FROM HERE…
Developments in Research at the College of Paramedics College of Paramedics, The Exchange, Bristol Road, Bridgwater, TA6 4RR Tel:
User Perspective on Solutions that Integrate Health & Social Care Jonathan Ellis Policy Manager – Health & Social Care.
Dr Mary Backhouse Chief Clinical Officer Our ‘Big Questions’
__________________________________________________________________________________________________
Jim Beale Rosalyn Hewitt Service Manager /Project Lead Project Manager
Healthwatch Gloucestershire Barbara Piranty Chief Executive April 2014.
NAVCA and the local third sector Vivienne Brown Members’ Support and Development Manager Andrea Allez Performance Improvement Manager.
PHE Local Intelligence Contribution David Meechan, Director for Knowledge & Intelligence (East Midlands), Public Health England.
The Impact Network Proposal The Opportunity… A changing volunteering sector ◦ The current economic climate ◦ Increase in University fees ◦ Previous.
Business Plan AGM 2007 European Federation of Allergy and Airways Diseases Patient’s Association (EFA)
Introduction to the Compact
Swaran Rakhra (Membership Support).  A membership organisation and the representative body for independent social care services in Scotland  A Scottish.
Who is CAPA? AHPA Pre-course February 17, 2016 Dawn Richards, PhD, Vice President.
Getting involved in Local Involvement Networks (LINks) Andy Harrison Long Term Conditions Alliance.
The Chartered Institute of Housing – An Introduction Dr Paul Griseri (former CIH Chief Moderator)
Family Carers:How do they do it? How can we help? Ghzala Ahmad.
Safety in Medicines: Raising the profile with the Royal Pharmaceutical Society Liz Rawlins Communications Officer 9 May 2011.
RCSLT STUDENT DAY Sheffield April 2014 Bryony Simpson Chair of RCSLT Council.
Steering Committee International Secretariat Policy forum Communications forum Task team: WASH and other sectors Task team: WASH and other sectors Task.
Developing Local Involvement Networks Understanding Local Involvement Networks Brenda Cook Health Scrutiny Expert Adviser Dudley Stakeholder Event – 21.
WELCOME.
Jonathan Owen Chief Executive 4 October 2014
Chief Executive Report
The leading subject association for all teachers of geography
CIEH purpose of Regional Hub and lead volunteer role
Action for Blind People merged with RNIB
The RCM Supporting Support Workers Join us!
Enabling community pharmacy evolution
TITLE TEXT.
Crowdfunding Let’s Grow State Getting Started
Independent Practitioner Chartered Society of Physiotherapy Council
Presentation transcript:

KPA Day : 28 th March 2015 KPA Day : 28 th March 2015 What the NKF has done in the last year Kirit Modi Chairman, NKF

How do we assess? Personal perspective What we have done What impact have we had

Support for patients and others Advocacy service: Nick Palmer Well established team: BKPA/NKF funded Individual support to patients Over 480 individuals Support to KPAs and hospitals Represents NKF at local and national forums Contribution to NKF policy and consultations Influence health civil servants: England, Scotland, Wales & NI

Helpline: Pauline Pinkos First point of contact: phone, and letter Expert advice: over 3,000 contacts 1500 patient phone calls, 300 carers, 400 s, 200 letters and leaflets, 50 referrals to Advocacy Officers, 300 kidney friendly cookbooks posted and over 100 leaflet orders for KPAs and renal units were dispatched New leaflets (statistical leaflet with Renal registry, Green Nephrology)

Communication Kidney Life: Deborah Duval and Sue Lyon Increase from around 22,000 to 25,000 Hard copy posted free of charge

Communication In Touch: Andrea Brown and Stephanie Scott Monthly e-newsletter KPA officers and others Circulation of over 800

Communication Social media: Mick Walker, Tracey Sinclair and Pete Revell 5,500 Facebook 2,500 Twitter 490 Facebook Fundraising via Facebook

Communication Website: Tim Statham, Chris Sheppard and Robert Hammond Refreshed website NKF Conference KPA Day

Campaigning Tariffs for dialysis Commissioning of dialysis services Major threats NKF led both campaigns: KPAs, civil servants, other charities Professional organisations (British Renal Society, Renal Association) All Party Parliamentary Kidney Group: Tim Statham Meeting with Minister of Health, Monitor, NHS England Success but not over! Strong patient voice

Governance Experienced group of Executive members Delighted to have 14 nominations for 2015 Four Officers: Jim Higgins, Michael Abbott, Mick Walker and Kirit Modi Three committees: Finance and General Purpose: Kirit Modi Conference: Tracey Sinclair Image and Profile: Mick Walker Lead members: Risk Management (Michael Abbott), Health and Safety (David Marshall), Green Nephrology (William Beale)

Annual Development Plan Review of reimbursement for utility costs: Linda Pickering Patient Transport: David Marshall

Partnerships Key to success Kidney Charities Together NHS (Richard Fluck, Triona Norman) NHSBT British Renal Society and Renal Association National Black, Asian and Minority Ethnic Transplant Alliance (NBTA) UK Kidney Research Consortium ETC

Personal Honour and privilege Thank Executive Members and staff Thank Frank Thank Meena!

Challenges Funding for dialysis and transplantation Outcome of the General Election Challenge variations in provisions across the 4 countries Increased demand for NKF services Continue to harness patient voice Prioritise: what are your priorities?