Objectives of Myeloma Euronet Romania Raise awareness and provide information. Advocate with the Romanian Governmental Institutions for fair access to treatment of all citizens. Empowerment of individual patients and local communities. Advocate the cause of myeloma among EU health care policy makers

INSIGHT of Romanian health system lack of infrastructure needs ranging from lack of medication for hospitalized patients to beds and modern electronic medical equipment. small salary income of medical staff lack of medical information

Access to health care system Is hindered by: economic hardships low income of the population disregard of the patient by medical staff negligence/ignorance of the middle medical staff patient’s lack of information regarding: cancer diseases own rights

Status vis-a-vis EU Romania’s legal health framework is : not fully compliant with EU resolutions on health When compliant, procedures and methodology too convoluted and hard to implement not harmonized to other EU member states

INFORMATION Lack of any type of information regarding: cancer diseases. need for a multidisciplinary approach of cancer diseases. integrated assistance and referral to the public health system. Insufficient access to information on: EU health related legislation on cancer. treatment and practices in other member states of EU.

Information failure due to Inability of the Romanian Government To allocate the required funds Lack of Interest Obsolete Mentality Lack of interest of the Romanian civil society of Pharma Industry in the Romanian market

CAUSES AND IMPACT Causes Romania allocates one of the lowest GDP percentages to the health system Impact Huge differences between Romania and most of the EU Member States in the field of cancer research information accessibility to innovative diagnostics and treatments in oncology

INFORMATION ADDED VALUE Improvement of life quality Fair access to medical treatment Empowerment of cancer patients Respect and dignity THE RIGHT TO DECIDE

ANALYSIS GOOD NEWS National Level Establishment of the legislative framework Stem Cell National Registry Research for stem cell transplant ME Romania Protocol with Ministry of Healthand Pharma Information materials BAD NEWS Rejection by Romania of EU Rezolution on patients movement for transborder treatment Low profile awareness campaign No information materials published by the Ministry of Health.

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