Anthony Cahill, Ph.D. Heidi Fredine, MPH Barbara Ibanez, MA Luciana Zilberman, MA Selected Findings From The 2010 Survey of Independent Living For New Mexicans With Disabilities

This project, including project design, protocols and instruments used, was reviewed by the Human Research Review Committee (HRRC) of the Health Sciences Center of the University of New Mexico. The HRRC determined that the research is exempt from the requirements of Department of Health and Human Services (DHHS) regulations for the protection of human subjects as defined in 45CFR46.101(b) under category 2. The HRRC application number is Institutional Review Board Funding for this study was provided by the New Mexico Human Services Department through the Behavioral Health Services Division. Funding Disclaimer The opinions in this presentation are those of the authors, and do not represent the official positions of the Center for Development and Disability of the University of New Mexico, the New Mexico Human Services Department or the Behavioral Health Services Division.

Development of the Survey Inter-agency working group: DDSD, HSD, Optum Health NM, DVR, ALTSD Review of the literature Multiple iterations of instrument Institutional Review Board approval On-line, hard copy and electronic versions of the instrument in English and Spanish were disseminated statewide through snowball sampling Web site with instructions for facilitators in one-on-one and group settings Overall ‘N”: 739

Domains Influencing Independent Living

Findings: Comparing Survey Respondents to All New Mexicans On Key Characteristics

The survey used snowball, not random, sampling: overall “N” of 739. Thus, the results cannot be statistically generalized to the unknown population of New Mexicans with disabilities. Survey respondents are generally representative of the population of the state on key demographic characteristics including gender, race and Hispanic identity. This means the results are not from a skewed distribution unlike the state as a whole.

Gender N = 694 Figures for New Mexico are taken from the 2009 American Community Survey, Census Bureau, United States Department of Commerce

Hispanic Identity N = 673 Figures for New Mexico are taken from the 2009 American Community Survey, Census Bureau, United States Department of Commerce

Race N = 611 Figures for New Mexico are taken from the 2009 American Community Survey, Census Bureau, United States Department of Commerce

Age Category N = 689 Figures for New Mexico are taken from the 2009 American Community Survey, Census Bureau, United States Department of Commerce

Respondents by Geographic Region 13.4% 16.4% 30.1% 23.2% 16.9% N = 611

Findings: Disability, Services And Supports

Type of Disability What type of disability or health condition do you have? N (Disability/Condition) = 961

Services and Financial Supports Are you currently receiving services or financial support from any of these programs or organizations? N (Services): 1,263

Most Frequent Combinations of Services and Financial Supports SSI/SSDIMedicaidMedicareSNAP SSI/SSDI Medicaid Medicare SNAP

Findings: Independence in Choosing Where to Live

Choice in Deciding Where to Live Which best describes who chose where you live now? N = 684

Satisfaction with Decision Making in Choosing Where to Live How satisfied were you with the amount of decision-making you had in choosing where you live? N = 419

Who Was Involved in the Decision of Where To Live? You said that someone else was involved in choosing the place where you live. Who else was involved? N = 411

Findings: What’s Important In Deciding Where To Live?

What’s Important in Deciding Where To Live? How Important Is This in Deciding Where To Live? N = 655

Gaps In Importance and Satisfaction How Important Is This in Deciding Where To Live? How Satisfied Are You With This Where You Live Now? 14.2%23.1%10.1%10.5%

Findings: Current and Preferred Living Situations

Current Living Situations Which of the following best describes your current living situation? N = 684

Satisfaction With Current Living Situation Overall, how satisfied are you with your current living situation? N=705

Gaps: Current and Ideal Living Situations Which of the following best describes your current living situation? Regardless of your current living situation, what would your ideal living situation be? N= 684

Living With Biological Family as Preferred Living Situation by Type of Disability Regardless of your current living situation, what would your ideal living situation be? Ideally, I would like to live with one or members of my own family… N (Disability Type) = 155

Living Alone as Preferred Living Situation by Type of Disability Regardless of your current living situation, what would your ideal living situation be? Ideally, I would like to live alone… N (Disability Type) = 393

Congregate Housing as Preferred Living Situation by Type of Disability Regardless of your current living situation, what would your ideal living situation be? Ideally, I would like to live in a group or congregate home… N (Disability Type) = 194

Next Steps Additional analysis: question 6 (current and desired levels of assistance with activities of daily living) and statistical significance on key demographic variables Full report Executive Policy Summary ?

Dr. Anthony Cahill Director, Division of Disability and Health Policy Center for Development and Disability 2300 Menaul Boulevard NE Albuquerque, NM (505) For More Information To review or download a copy of this report, or to see other reports as they become available, please visit Click on “Programs and Projects” and then on “Survey of Independent Living”