”Ancient cities and their reflection to todays world ”
Lithuanian multiple sclerosis union Was founded in 2000 with the help of the Danish Multiple Sclerosis Society. Unite appr.1000 people but represent the interests of almost 4000 affected people and are helping to solve their problems 1.From 2002 the oorganization is a member of the European MS Platform. was founded in 2000 with the help of the Danish Multiple Sclerosis Society. 2.From 2007 we became a member of Euro carer association. 3.The Organization also is one of the initiator in the founding of the Baltic MS Alliance
People with multiple sclerosis What is my diagnosis… I did not realise other people have the same diagnosis… Doctors did not....
AN ATTEMPT IS OF MADE TO CONCEAL THE ILLNESS FROM NOT ONLY EMPLOYERS BUT ALSO THOSE CLOSE TO THE PERSON. DISABILITY IS RAPID AND SEVERE. Multiple sclerosis is a fundamental neurological illness with a high morbidity, especially among people at a young age of employable morbidity years of age.
Four stage model Out the flat what is wrong with me – information about the disease Interesting world Support group activities Friends, events We are citizens We have right We have medical needs Re-organisation or creation of the care system
Areas of activity 1.include social and psychological consultation 2.representation of patient interests in all state institutions 3.implementation of national and international projects
MS Societies – the beginning.... Lectures Discussions Support group meetings Parties No accountancy No money But a lot of enthusiasm
MS diagnosed healthy Management issues in MS impairment disability handicap DMT Symptom management rehabilitation Psychosocial issues Cognitive function
Multiple sclerosis (MS) is one of the most common diseases of the central nervous system. Today over 2,000,000 people around the world have MS.
Latvia Lithuania Luxembourg Malta Netherlands Norway Poland Portugal Romania Russia Serbia Slovakia Slovenia Spain Sweden Switzerland UK Austria Belarus Belgium Bosnia-Herzegovina Bulgaria Croatia Czech Republic Denmark Estonia Finland France Germany Greece Hungary Iceland Ireland Italy
MS Barometer 2009: overall results
Focus on society Kersten et al 2000
The place of multiple sclerosis in the European Union policy PRESS conference in the Parliament 2009
Our main Principles To promote Quality of Life for People with MS which draws together the interests of national MS societies worldwide and other community in implementation activities of a global projects.
Celebration DAY without MS ( on the boat)
Summer camp in Estonia
Lithuanian group performance
Last year Lithuania Millennium celebration events. We have also prepared a special program.
Our exhibition of works
We are organizing seminars in non- traditional environments-at the restaurants
…. and in nature
One of the learning project Partnerinės institucijos: Švietimo ir informacijos centras Stylida-Graikija Nacionalinis Kapodastriano Universitetas,Geologijos fakultetas Atenai-Graikija Aplinkosaugos švietimo kolegija Nikosia-Kipras
First presentation in Greece
with colleagues in Nicosia
At the Archaeological Museum
With partners and guests in Lithuania
My presentation of the Lisbon Convention for Persons with Disabilities in the publication in Greece.
At European Patients forum in London
In Brussels in the European Parliament (information hour for MS)
As always with friends from other Baltic countries.
European carer group working in Sweden seminar.
Pleasant meeting in Estonia celebrating Estonian MS societies 20th anniversary.
It is fun to celebrate for our cooperation.
Estonians like to surprise...
There was a global campaign from New York, flying in the night over the Tallinn.
Said goodbye to the December 3 meeting in Riga.
Everything is in place TIME FOR ACTION IS NOW