Paula Aubrey Dr Andre Vercueil R-CLOD 4th June 2013 Introduction LONDON Paula Aubrey Dr Andre Vercueil R-CLOD 4th June 2013 Welcome by Paula and housekeeping 1

Programme Organ Donation Past, Present and Future 10:00 – 10:05 Pauline’s story 10:05 – 10:15 Introduction Paula Aubrey and Dr Andre Vercueil 10:15 – 11:00 Donation in the UK (F105, 2C06) Dr Paul Murphy 11:00 – 11:15 Coffee 11:15 – 12:30 Donor Identification and Referral (I102, 2C06) Jeremy Brown Dr Huw Twamley 12:30 – 13:15 Lunch 13:15 – 14:30 Donor Family experience Pat Collins and Paula Aubrey Family approach and consent (F101, I106, 2C06) Dr Gus Vincent 1430 – 1445 Coffee 1445 – 1600 Donation after brain-stem death (1A01, 1A02, 2C06) Introduction Dr Farrel Igielman Diagnosis of death Dr Dale Gardiner Donor optimisation Dr Gerlinde Mandersloot 1600 – 1630 Discussion and next steps R-CLOD Organ Donation Past, Present and Future Organ Donation Past, Present and Future 2 2

Organ Donation Past, Present and Future Embed Pauline’s story Start automatically Full screen Will start automatically and full screen Lights down if able – cinema feel Organ Donation Past, Present and Future

Objectives Update on progress since 2008 Organ Donor Taskforce Report and scene set for future challenges. Outline best practice, using regional and local data, and the most recent national guidance around: The referral and identification of donors Donation after Brain Death Family approach and consent Secure commitment to change practice in your hospital around key pinch points in deceased donation pathways R-CLOD Attendance at this meeting has been recognised for 5 CPD credits by the Royal College of Anaesthetists Organ Donation Past, Present and Future Organ Donation Past, Present and Future 4 4

Organ Donation Services Team Regional Clinical Lead Andre Vercueil Regional Manager Paula Aubrey Team Managers Jeanette Foley Cliona Berman Emiliano Mazzaretto Jeremy Brown Julie Whitney 32 Specialist Nurses 4 Admin Staff 19 Trusts (33 Hospitals) Population of 8.17 million 4 Renal Transplant Centres 1 Cardiac Transplant Centres 2 Liver Transplant Centres SCOTLAND NORTH NORTHERN IRELAND YORKSHIRE Where the audience fits into donation team structure. Needs to be filled in yet. NORTH WEST MIDLANDS EASTERN SOUTH WALES SOUTH CENTRAL SOUTH EAST SOUTH WEST Organ Donation Past, Present and Future 5 5

Donation in London 2003-2013 44.8% 14.8% 145.8% Gives donation over time. Percentages are from the 2007-2008 index year for ODTF 50% goal Organ Donation Past, Present and Future 6 6

50% Target by Donor Team Organ Donation Past, Present and Future 6th You choose if you want to use this slide. Organ Donation Past, Present and Future 7 7

Tied 1st 50% Organ Donation Past, Present and Future London is tied with Eastern for greatest contribution toward the 50% goal Organ Donation Past, Present and Future 8 8

Organs Transplanted from London Donors 2003-13 Some organs are no better than a decade ago Organ Donation Past, Present and Future 9 9

Organ Donation Past, Present and Future More people have been helped, for every organ type in London. Organ Donation Past, Present and Future 10 10

Where are potential donors in London lost? This is London data from NHSBT NOT national UK data like last activity report. Suggest illustrate a few pinch points. Slide will reappear for approach and consent talk in afternoon. Organ Donation Past, Present and Future 11 11

BUT if we adopted BEST PRACTICE 19.1 ppm 50% 13.4 ppm 50% is great BUT If we tested like the best region, approached like the best region, consented like the best region this is what could be achieved. Organ Donation Past, Present and Future 12 12

BUT if we adopted BEST PRACTICE 26.3ppm TOP 5 in the WORLD 19.1 ppm 50% 13.4 ppm Top 5 in the World We don’t need to do anything new in the UK we just need every region to achieve what some regions are already showing can be done in each aspect of the donation pathway. Organ Donation Past, Present and Future 13 13

2008 2008 Slide showing national external guidance that can help us be Top 5 2011 14

NHSBT Guidelines www.odt.nhs.uk ED Strategy Donor Management Bundles and Guidance FICM & ICS endorsed: Brain-stem Death Forms Slide showing NHSBT best practice and strategy guides and other helpful resources. These will help you to achieve best practice in your hospital and why we are meeting today. www.odt.nhs.uk Organ Donation Past, Present and Future Organ Donation Past, Present and Future 15 15