Hanze University Department of Rehabilitation Parenting with success and satisfaction A research based program for parents with psychiatric disabilities

Hanze University Department of Rehabilitation Peter van der Ende, MSc (  Ph.D) (Researcher/psychologist) Department or Rehabilitation Hanze University of applied sciences Groningen School of Social Studies School of Nursing The Netherlands

Hanze University Department of Rehabilitation website

Hanze University Department of Rehabilitation Subjects 1. The Netherlands vs USA 2. Parenting and psychiatric disabilities 3. The project – Assessment of needs research – Program 4. Exercise

Hanze University Department of Rehabilitation 1 Comparison The Netherlands-USA United States290 millon inhabitants The Netherlands16 million inhabitants The state Florida has the same population in an area 4 times larger

New Hampshire and Massachussets The Netherlands Area

Hanze University Department of Rehabilitation

Hanze University Department of Rehabilitation

Hanze University Department of Rehabilitation 2. Parenting and psychiatric disabilities

Hanze University Department of Rehabilitation Psychiatric Rehabilitation To help persons with psychiatric disabilities increase their functioning so they can be successful and satisfied in the environments of their choice with the least amount of ongoing professional intervention" (Anthony et al, 2001).

Hanze University Department of Rehabilitation Background Living in community Parents with psychiatric disabilities are in many cases single Low income / struggle for life High barrier for using services

Hanze University Department of Rehabilitation Balance Own lifeParenting + enhanced vulnerability

Hanze University Department of Rehabilitation Evaluation research Training for providers Program develop- ment Need assessment Research (N=47) Literature research 3. Project

Hanze University Department of Rehabilitation Research question What needs for support have parents with psychiatric disabilities?

Hanze University Department of Rehabilitation Questionnaire Scale for Satisfaction in the parent role (Cronbach’s α=.79) Four factors in scale Giving emotional support and warmth Stimulating child’s development Listening to child’s needs Organizing and guiding activities

Hanze University Department of Rehabilitation -more topics- Making a balance between parenthood and own needs Improving the communication with the child

Hanze University Department of Rehabilitation -questionnaire continued- After each part: Resources Need for a change Need for support

Hanze University Department of Rehabilitation Research sample (N=47) Selected sample Female87% Living without partner61% Independent living74%

Hanze University Department of Rehabilitation Conclusions This whole group has contact with mental health institutions 94% (N=47) of this group are satisfied with the quantity of care But half of the group want different help around parenthood –Support in the relationship with the child –Starting a conversation about ones problems –Educational and legal support

Hanze University Department of Rehabilitation more conclusions Needs related to the disabilities: –Handling discrimination and stigma, for self and child –Support with mourning (loss of possibilities) 70% have needs to change (in several fields)

Hanze University Department of Rehabilitation Advices Teach the program for parents in all kind of institutions Improve communication about own problems with children (Nicholson et. al. 2001) Make a plan for the support of children when psychiatric problems increase Organize small meeting groups for parents

Hanze University Department of Rehabilitation Program ‘ Parenting with success and satisfaction’ © Marrie Venderink and Peter van der Ende For parents with psychiatric disabilities

Hanze University Department of Rehabilitation I The actual functioning in the parent role IIa Strengthening the parent role IIb Take back/broadening the parent role

Hanze University Department of Rehabilitation Topics for the development Join the existing programs Autonomy, possibilities for selfactualisation Combining parent role with other roles Empowerment Communication with environment

Hanze University Department of Rehabilitation Characteristics Based on Psychiatric Rehabilitation (Boston- Appraoch) (Choose-Get)- Keep Consumer and provider in individual meetings or parents in groups Parts are self-help Selfcontrol Duration ½ to 1 ½ year

Hanze University Department of Rehabilitation I “The actual functioning in the parent role” Who am I and who is my child? With what am I satisfied and where am I succesful? Division between time to spend and attention for the child Support, self confidence and expectations Appropiate next steps

Hanze University Department of Rehabilitation IIa. “Strengthen the parent role” Who put demands on this parent? What asks the parent role from this parent? Who gives support? Chosing for solutions Tune with environment Stay satisfied and keep the succes

Hanze University Department of Rehabilitation IIb“ Take back the parent role” Parents’ needs Possible activities Who have demands and what kind Who supports Tune with environment

Hanze University Department of Rehabilitation Websites: home.planet.nl/~pcvanderende

Hanze University Department of Rehabilitation 4. Exercise