Disability Rights Expanding Accessible Markets Kick-off Meeting 23 rd -25 th November, 2011 Brussels, Belgium

Dimitris Skempes, PT, MPH Disability Policy Group Swiss Paraplegic Research and Dept. of Health Sciences & Health Policy University of Lucerne, Switzerland

“Quantitative or qualitative factor or variable that provides a simple and reliable means to measure achievement, to reflect the changes connected to an intervention, or to help assess the performance of a development actor.” (OECD Development Assistance Committee) “Indicators are data used by analysts or institutions and organizations to describe situations that exist or to measure changes or trends over a period of time. They are communicative descriptions of conditions or of performance that may provide insights into matters of larger significance beyond what is actually measured.” (Andersen and Sano, 1998) What is an indicator?

Why do we need indicators? Performance measurement (Millennium Development Goals)

Why do we need indicators? Performance measurement (Millennium Development Goals) Effectiveness & Efficiency

Why do we need indicators? Performance measurement (Millennium Development Goals) Compliance measurement ( UN CRPD)

Why do we need indicators? Performance measurement (Millennium Development Goals) Compliance measurement ( UN CRPD) Accountability

Why do we need indicators? Performance measurement (Millennium Development Goals) Compliance measurement ( UN CRPD) Planning Tool ( EU Disability Strategy )

Why do we need indicators? Performance measurement (Millennium Development Goals) Compliance measurement ( UN CRPD) Planning Tool ( EU Disability Strategy ) Evidence based Policy

Despite the fact that 18 out of the 27 EU member states have ratified the UN CRPD we still not have a valid, reliable and comparable set of indicators to assess compliance with obligations and monitor the progress towards implementation of the Convention The problem

The overall aim To develop operationally feasible measurement tools (indicators) to monitor the implementation of Articles 25 and 26 of UN CRPD in Europe Article 25 - Health States Parties recognize that persons with disabilities have the right to the enjoyment of the highest attainable standard of health without discrimination on the basis of disability. States Parties shall take all appropriate measures to ensure access for persons with disabilities to health services that are gender-sensitive, including health-related rehabilitation Article 26 – Habilitation & Rehabilitation States Parties shall take effective and appropriate measures, including through peer support, to enable persons with disabilities to attain and maintain maximum independence, full physical, mental, social and vocational ability, and full inclusion and participation in all aspects of life.

The specific objectives

1.To identify European disability data sources relevant to articles 25 and 26 and review the prevalent practices in human rights indicators development and use

The specific objectives 1.To identify European disability data sources relevant to articles 25 and 26 and review the prevalent practices in human rights indicators development and use 2.To discuss the appropriateness of the data sets available for the development of human rights based indicators

The specific objectives 1.To identify European disability data sources relevant to articles 25 and 26 and review the prevalent practices in human rights indicators development and use 2.To discuss the appropriateness of the data sets available for the development of human rights based indicators 1 st Report

The specific objectives 1.To identify European disability data sources relevant to articles 25 and 26 and review the prevalent practices in human rights indicators development and use 2.To discuss the appropriateness of the data sets available for the development of human rights based indicators 3.To develop a valid and reliable set of core indicators to monitor State compliance with articles 25 and 26 of the Convention

The specific objectives 1.To identify European disability data sources relevant to articles 25 and 26 and review the prevalent practices in human rights indicators development and use 2.To discuss the appropriateness of the data sets available for the development of human rights based indicators 3.To develop a valid and reliable set of core indicators to monitor State compliance with articles 25 and 26 of the Convention 2 nd Report

The specific objectives 1.To identify European disability data sources relevant to articles 25 and 26 and review the prevalent practices in human rights indicators development and use 2.To discuss the appropriateness of the data sets available for the development of human rights based indicators 3.To develop a valid and reliable set of core indicators to monitor State compliance with articles 25 and 26 of the Convention 4.To produce evidence based guidelines and recommendations on the adoption of the set produced into existing European and National data collection practices

The specific objectives 1.To identify European disability data sources relevant to articles 25 and 26 and review the prevalent practices in human rights indicators development and use 2.To discuss the appropriateness of the data sets available for the development of human rights based indicators 3.To develop a valid and reliable set of core indicators to monitor State compliance with articles 25 and 26 of the Convention 4.To produce evidence based guidelines and recommendations on the adoption of the set produced into existing European and National data collection practices 3 rd Report

Research Methods Report 1: Systematic Literature Review Report 2: – Nominal group of experts will propose the technical criteria that indicators must fulfill (academics, NGO representatives, Int’l organizations and statistical agencies officials) – Delphi technique will be employed as a method to validate the proposed set of indicators Report 3: The 3A’s approach to policy recommendations (Adopt, Adapt, Act)

Research Barriers Indicators Development Process: – 2 stage process with expert consensus panels (qualitative, expensive and maybe time consuming) – The most common approach to developing indicators in the literature – Alternative methods that would cover the evidence based criterion (feasibility-pilot study?) Placement to be completed by the end of 2 nd year the latest (PhD interrupted)

Secondment Disability and Rehabilitation Team (DAR) Department of Violence and Injury Prevention and Disability World Health Organization HQ Geneva, Switzerland Spring semester 2013

Proposed Timeline

Thank you!