1 November 2007Owner: NHS Choices PMO Completing the consumer health information jigsaw Informing patients and the public: key questions for health libraries Bob Gann Head of Strategy & Engagement NHS Choices Department of Health

2 November 2007Owner: NHS Choices PMO Policy on consumer health information  Health Information Service  NHS Plan  National Library for Health & NHS Direct  Accreditation scheme  White Papers – Choosing Health & Our Health Our Care Our Say  Information Prescriptions  NHS Choices (incorporating Health Direct)  PSA Targets for sustained health improvement  Transformational Government

3 November 2007Owner: NHS Choices PMO Darzi Next Stage Review  “There will be a radical and sustained shift in the way in which services are delivered – ensuring that they are more personalised and that they fit into people’s busy lives.” Department of Health White Paper ‘Our health, our care, our say’, November 2006  Lord Darzi, Minister responsible for the NHS Next Stage Review has stated there is a “need to build on the use of the Department of Health website NHS Choices which provides national information to inform choice and self- care, as well as providing patient-assessment of services”.  Next Stage Review interim report issued in October Further report in Spring  Care pathways, access, equalities, innovative settings & methods of care

4 November 2007Owner: NHS Choices PMO Audience and Channels

5 November 2007Owner: NHS Choices PMO Consumer health information in Web 2.0 age Users owning the data on a site and exercising control over it An architecture of participation that encourages users to add value to the application as they use it A rich, interactive, user-friendly interface Aspects of social networking Wikipedia; Tim O’Reilly What is Web 2.0?

6 November 2007Owner: NHS Choices PMO Consumer health information in Web 2.0 age 1. Google 2. Facebook 3. Yahoo 4. MSN 5. ebay 6. Youtube 7. BBC 8. MySpace 9. Bebo 10. WikipediaAlexa Websearch Top 500 websites UK

7 November 2007Owner: NHS Choices PMO Consumer health information in Web 2.0 age Social networking tools that allow people to keep track of friends & their activities (MySpace, Facebook) Blogging & video sites that allow people to become writers, publishers, video producers (YouTube, Blogger) Fora & chatrooms that allow people to post questions & get answers on common concerns (Thorn Tree, TripAdvisor) Wiki based sites that allow people to create large repositories of user generated content (Wikipedia)

8 November 2007Owner: NHS Choices PMO Consumer health information in Web 2.0 age 60 million Americans say “the internet has played an important or crucial role in helping them deal with a major life issue in the past two years” The strength of internet ties, Pew Internet % of all US online users have used social networks for support with health issues – 27% of younger people Healthcare online survey, Forrester 2006

9 November 2007Owner: NHS Choices PMO The power of information Review commissioned by Prime Minister’s Strategy Unit Welcomes growth of user-generated sites for common social objectives Information created by citizens has social value - and adds value to information created by government Government should not duplicate existing user-generated sites Ed Mayo & Tom Steinberg The power of information June 2007

10 November 2007Owner: NHS Choices PMO The new jigsaw  Social networking

11 November 2007Owner: NHS Choices PMO Health tools on social networking sites

12 November 2007Owner: NHS Choices PMO The new jigsaw  User generated content  Question and answer services

13 November 2007Owner: NHS Choices PMO Professionals & patients contribute questions & answers

14 November 2007Owner: NHS Choices PMO The new jigsaw  Building mutually supportive communities

15 November 2007Owner: NHS Choices PMO Networks of online communities

16 November 2007Owner: NHS Choices PMO

17 November 2007Owner: NHS Choices PMO Mentoring – offering & receiving support

18 November 2007Owner: NHS Choices PMO The new jigsaw  Consumer choices

19 November 2007Owner: NHS Choices PMO

20 November 2007Owner: NHS Choices PMO The new jigsaw  Personal tools & plans

21 November 2007Owner: NHS Choices PMO

22 November 2007Owner: NHS Choices PMO The future  A rich, interactive, service  Choice of channels  Personal to you  Receiving and providing support  Improving patient experience  Better health management & health status  Giving patients control

23 November 2007Owner: NHS Choices PMO Roles for libraries  What’s the role of the information specialist when anyone can be information producer & information consumer?  National content provision through NLH & knowledge partners  Developing and implementing knowledge standards & accreditation  Links with National Knowledge Weeks  Key role for public libraries in social inclusion - access points for people without internet  Providing opportunity to register for HealthSpace, carry out NHS LifeCheck, view patient record  Involvement in local community pilots  NHS Choices User Council

NHS Choices: a health information service for the 21 st century

25 November 2007Owner: NHS Choices PMO NHS Choices: a new kind of public sector service  Engage, challenge & motivate consumers to take responsibility  Reduce inequalities in health & access to information  Enable consumers to network with others on health related issues  Provide opportunity for consumers to feedback on their experiences  Support choice through provision of comparative information NHS Choices Strategic Objectives

26 November 2007Owner: NHS Choices PMO

27 November 2007Owner: NHS Choices PMO Better health: Maintaining & improving well-being  Live Well magazines  Popular accessible style  Targeted at ages & stages  Celebrities & people like you

28 November 2007Owner: NHS Choices PMO Knowledge for patients and clinicians  Opening up knowledge previously only available to clinicians  Be your own expert  National Library for Health  Clear clean knowledge - on tap for all

29 November 2007Owner: NHS Choices PMO Behind the headlines

30 November 2007Owner: NHS Choices PMO Better quality through insight: understanding patient experience  Patients speaking about experiences  Extensive links to patient websites  User insight focus groups  User Council of patient groups

31 November 2007Owner: NHS Choices PMO Better care: help to navigate the NHS  Patient choice of hospitals  Star ratings to allow comparison  Waiting times; how often procedure done; hospital infections; readmission rates etc

32 November 2007Owner: NHS Choices PMO Patient views on services  Comment on local services  Free text and scoring sliders  Independent moderation  Hospitals notified with opportunity to reply

33 November 2007Owner: NHS Choices PMO Directories

34 November 2007Owner: NHS Choices PMO Directories

35 November 2007Owner: NHS Choices PMO Better access: reducing inequalities & offering personalised service  Other channels – mobile service locator, young people’s pilots  Tools  Syndication

36 November 2007Owner: NHS Choices PMO Tools

37 November 2007Owner: NHS Choices PMO NHS Choices on YouTube NHS Choices on YouTube

38 November 2007Owner: NHS Choices PMO Mobile & web service for young people