NKF AGM 28 th March 2015 AN INTRODUCTION TO THE WEST LONDON KIDNEY PATIENTS ASSOCIATION

Formed through the amalgamation of Charing Cross, Hammersmith Hospital and St. Marys KPAs All renal patients within the Imperial Hospital Trust units are eligible for membership – currently over 3000 members Hospitals, dialysis units and clinics covered : 8 Strong committee – meeting 6-7 times annually WHO ARE WE 2 St Mary’s Hospital Northwick Park Hospital St Charles Hospital Central Middlesex Hospital West Middlesex Hospital Hammersmith Dialysis unit Hammersmith Nephrology clinic Ealing Hospital Hayes Hospital Hillingdon Hospital Mount Vernon Hospital Auchi Dialysis Unit at Hammersmith Hospital Charring Cross Hospital Ashford Hospital

KEY POSITIONS ON THE COMMITTEE 3 Presentation Title Patron – Vasilios Papalois President – Elaine Clutterbuck Chair– John Hiney Vice Chair – Oliver Pearcey Secretary– Sarah ilic Treasurer – Sue Orchard

VISION AND OBJECTIVES

OUR VISION AND AIMS 5 Presentation Title actively involve West London in renal health issues and care provide relief and support to persons suffering from Kidney Disease who are served by WLRTS We … To … By … Fund raisingSupporting staff and WLRTS activity LobbyingEducation and Research Awareness and Communication Pastoral Care

HOW DO WE SUPPORT AND WHAT DO WE NEED TO FUNDRAISE FOR? 6 Presentation Title Fundraising to support full range of patient support Group support Individual support Direct patient assistanceIndirect patient assistance Hardship fund Seminars Representation to unit/hospital Buddy system Group trip funding Lobbying and regulatory representation Purchase of medical equipment Provision of information and updates Improvements to patient facilities Holiday support Funding Representation/appeals to hospital authorities Eg: transport services New letters and support publications Annual conferences Support for Emsworth House Support for transplant sport activities Dialysis unit facilities

Awareness and fundraising Support for key events – WKD, Transplant Week Visits to interest groups Sales and tombola's Newsletters 3-4 times per year Key news, diet tips etc Manage/fulfil requests Patient “comfort” – TVs/Cushions Medical equipment/research Direct patient support Seminars, buddy programme WHAT DOES THAT MEAN IN REALITY? 7 Presentation Title

WHAT DOES IT LOOK LIKE? 8 Presentation Title

Lobbying and support on key hospital issues both through newsletters and other comms Patient viewpoint input to support materials Input to, and delivery of, research programmes …AND OTHER “STUFF” 9 Presentation Title

Digital contact details Active participation –Engagement with KPA –Engagement outside of unit visits –Volunteers for events –Transplant sport Fund raising – ongoing pressure Increased demands on funds raised Increase in support/assistance requirements from trust/other groups OUR CHALLENGES 10 Presentation Title

THANK YOU