Ethical, Legal & Social Implications (ELSI) Research Program of the Human Genome Project Tricia C. Clarke Biotechnology Project BIO 210 (Prof. S. Saunders)

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Presentation transcript:

Ethical, Legal & Social Implications (ELSI) Research Program of the Human Genome Project Tricia C. Clarke Biotechnology Project BIO 210 (Prof. S. Saunders) April 30, 2003

ELSI Awareness

ELSI History Why? How much? Purpose

Key ELSI Issues Addressed Confidentiality and equality in utilizing genetic information Monitoring of genetic testing Concerns of genetics research Public and professional education

ELSI Policy and Legislation Privacy of genetic information Insurance and employment discrimination Informed consent (protection in human research) Genetic testing and counseling (hearings & testimony)

ELSI Program Outreach to Minority Communities One-stop web page Minority organizations Literature

ELSI Applications Be informed Ask questions Search for answers

THANK YOU! “ Knowledge is of two kinds: we know a subject ourselves, or we know where we can find information upon it.” ---BOSWELL Life of Dr. Johnson, Vol. 1 (1791).