Adolescents with Cystic Fibrosis Yvonne D. Gathers, MSW, LCSW Pediatric Pulmonary Center Clinical Social Worker

Objectives  Psychological complications of cystic fibrosis  Developmental complications of cystic fibrosis  View video tape of adolescents with Cystic Fibrosis

Introduction  Early adolescence (age range yrs.) Am I normal  Mid-adolescence (age yrs.) Independence/self image  Late adolescence (age 17-older yrs.) Future oriented, intimacy /career goals

Psychological Complications of Cystic Fibrosis  Chronic disorder  Treatment requirements  Length of Hospitalizations

Developmental Complications of Cystic Fibrosis  Body image issues  Developing independence  Relationship with peers

Compliance with Medical Treatment  Daily lives  Mental disorders  Challenge

Obstacles Affecting Transition  Dependent behavior  Immaturity  Severe illness or disability  Mental Health  Lack of support systems  Lack of trust in caregivers  Poor adherence to treatment regiment  Parental involvement

Obstacles for Parents/Caregivers  Excessive need for control  Emotional dependency  Parenting styles/overprotective  Heightened perception of disease severity  Lack of trust in caregivers  Denial about the severity of the disease