Ethics in Research. Historical Context l Past –German Experimentation –Tuskegee Syphilis Study l Present –Cancer Research –AIDS (AZT) Research.

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Presentation transcript:

Ethics in Research

Historical Context l Past –German Experimentation –Tuskegee Syphilis Study l Present –Cancer Research –AIDS (AZT) Research

Historical Context l Ethical system designed to prevent people from being used as scientific guinea pigs l Contemporary emphasis on the ‘rights’ of people to take risks to save themselves

Ethical Issues l Voluntary Participation

Ethical Issues l Voluntary Participation l Informed Consent

Ethical Issues l Voluntary Participation l Informed Consent l Risk of Harm

Ethical Issues l Voluntary Participation l Informed Consent l Risk of Harm l Anonymity

Ethical Issues l Voluntary Participation l Informed Consent l Risk of Harm l Anonymity l Confidentiality

Ethical Issues l Voluntary Participation l Informed Consent l Risk of Harm l Anonymity l Confidentiality l Right to Services

Institutional Review Boards l mechanism for reviewing proposed research l mechanism for protecting the institution and researcher l submitting an IRB Proposal

Keep all data and records from your research investigations for at least 5 years. It’s a good idea, depending on the investigation and the nature of the data, to keep them forever. Any party with a legitimate interest has a right to inspect your original data and data analyses (subject to participant confidentiality controls): journal editors/reviewers; professional review boards; other research colleagues