Ethics in Research
Historical Context l Past –German Experimentation –Tuskegee Syphilis Study l Present –Cancer Research –AIDS (AZT) Research
Historical Context l Ethical system designed to prevent people from being used as scientific guinea pigs l Contemporary emphasis on the ‘rights’ of people to take risks to save themselves
Ethical Issues l Voluntary Participation
Ethical Issues l Voluntary Participation l Informed Consent
Ethical Issues l Voluntary Participation l Informed Consent l Risk of Harm
Ethical Issues l Voluntary Participation l Informed Consent l Risk of Harm l Anonymity
Ethical Issues l Voluntary Participation l Informed Consent l Risk of Harm l Anonymity l Confidentiality
Ethical Issues l Voluntary Participation l Informed Consent l Risk of Harm l Anonymity l Confidentiality l Right to Services
Institutional Review Boards l mechanism for reviewing proposed research l mechanism for protecting the institution and researcher l submitting an IRB Proposal
Keep all data and records from your research investigations for at least 5 years. It’s a good idea, depending on the investigation and the nature of the data, to keep them forever. Any party with a legitimate interest has a right to inspect your original data and data analyses (subject to participant confidentiality controls): journal editors/reviewers; professional review boards; other research colleagues