Disability Surveys in the Pacific A collaboration between Inclusion International, Asia Pacific Region NZAID& participating Pacific countries

Inclusion International Inclusion International is a Human Rights worldwide agency of national non-government organizations (NGOs) working in partnership at supporting, representing & advocating for and with children and adults with intellectual disability and their families. Inclusion International is a Human Rights worldwide agency of national non-government organizations (NGOs) working in partnership at supporting, representing & advocating for and with children and adults with intellectual disability and their families. Inclusion International promotes shared values of respect, diversity, solidarity, human rights and inclusion for all people with disability.

Background 1998 – NZAID (then NZODA) identified Disability Issues as one of four key priorities 1998 – NZAID (then NZODA) identified Disability Issues as one of four key priorities 2000 –First individual disability Survey conducted in Samoa for Min. of Education 2000 –First individual disability Survey conducted in Samoa for Min. of Education 2001 – Fiji meeting organised to progress recommendations from 1998 – Samoa survey model shared 2001 – Fiji meeting organised to progress recommendations from 1998 – Samoa survey model shared 2001 – “Disability in the Pacific” project initiated by Inclusion International, Asia Pacific with support from NZAID Regional Health Programme 2001 – “Disability in the Pacific” project initiated by Inclusion International, Asia Pacific with support from NZAID Regional Health Programme

Process IIAP invited to share survey design IIAP invited to share survey design Survey Advisory Committee established Survey Advisory Committee established Survey Advisory Committee adapt IIAP survey form, determine method of coordination, identify surveyors/enumerators and set & source a budget Survey Advisory Committee adapt IIAP survey form, determine method of coordination, identify surveyors/enumerators and set & source a budget Interviewers/enumerators trained in cooperation with IIAP Interviewers/enumerators trained in cooperation with IIAP Survey conducted & survey form completed for each individual Survey conducted & survey form completed for each individual Survey forms entered into database Survey forms entered into database Data analysed in cooperation with IIAP Data analysed in cooperation with IIAP Next steps/priorities determined by key stakeholders Next steps/priorities determined by key stakeholders

CountryPopulation (based on 2003 NZAID) 3% Predicted PWD Survey Results to date % to date Cook Islands 21, % Kiribati91,0002,8503,8404.2% Niue2,10063 report most in NZ Samoa178,0005,3404,0622.2% Solomon Is. 500,00015,0009,000/ongoing Tokelau1, % Tonga108,0003,240900/ongoing Tuvalu11, (scoping visit) 46.4% Vanuatu199,0005,970 (pilot) %

Some general benefits as a result of the survey…. PWD more visible and some new groups for people with disability have formed PWD more visible and some new groups for people with disability have formed Parent support groups beginning Parent support groups beginning Teachers, health workers etc. receive training re: disability issues Teachers, health workers etc. receive training re: disability issues Cooperation between stakeholders to progress results Cooperation between stakeholders to progress results Equipment needs identified and actioned where possible Equipment needs identified and actioned where possible Inclusive Education being developed Inclusive Education being developed Work & vocational options being developed Work & vocational options being developed Advocacy work developing & dynamic!! Advocacy work developing & dynamic!!

Cook Islands National Policy on Disability developed National Policy on Disability developed Special Education Policy & Adviser Special Education Policy & Adviser Students with disability attending regular school Students with disability attending regular school Equipment delivered Equipment delivered Disability Action Team coordinating implementation of the Policy Disability Action Team coordinating implementation of the Policy Visiting specialists using database info Visiting specialists using database info

Cook Islands…..

Samoa Survey Committee now Disability Task Force – cabinet paper to recommend desk in the Office of the Prime Minister Survey Committee now Disability Task Force – cabinet paper to recommend desk in the Office of the Prime Minister MOH & MOE collaborate to do Epilepsy brochure for all teachers MOH & MOE collaborate to do Epilepsy brochure for all teachers Family Empowerment workshops conducted & parent support groups started Family Empowerment workshops conducted & parent support groups started Equipment needs identified and some equipment delivered Equipment needs identified and some equipment delivered People First group ( for people with intellectual disability) started by NOLA People First group ( for people with intellectual disability) started by NOLA Inclusive Education developing Inclusive Education developing NUS – compulsory IE for all teacher trainees NUS – compulsory IE for all teacher trainees

Early Intervention Team established Early Intervention Team established Samoan sign language developed and taught in villages (manual written) Samoan sign language developed and taught in villages (manual written) Samoa assisting Tonga with Survey Samoa assisting Tonga with Survey Samoa census now includes disability identification Samoa census now includes disability identification

Solomon Islands Survey Committee formed (DPSC) Survey Committee formed (DPSC) Cooperation between Statistics & CBR for Survey Cooperation between Statistics & CBR for Survey Teacher training in Special Education at SICHE being delivered Teacher training in Special Education at SICHE being delivered Red Cross school promoting Inclusive Education Red Cross school promoting Inclusive Education Equipment needs identified Equipment needs identified

Solomon Islands…

Tonga Survey Committee formed (DACTION) Survey Committee formed (DACTION) People with Disability group formed People with Disability group formed Being supported from Samoa by NOLA Being supported from Samoa by NOLA Pilot survey begun Pilot survey begun Students with disability being included in school sports etc. Students with disability being included in school sports etc.

Tonga

Vanuatu Pilot carried out in Tafea district – national survey being organised Pilot carried out in Tafea district – national survey being organised Fieldworker training held and manual developed Fieldworker training held and manual developed Special Education Adviser appointed Special Education Adviser appointed Special Education training at Teachers College Special Education training at Teachers College Equipment needs identified Equipment needs identified

Vanuatu….

Kiribati Survey Committee have completed the national survey. Survey Committee have completed the national survey. Workshop held with key stakeholders to discuss survey results and set priorities. Workshop held with key stakeholders to discuss survey results and set priorities. Te Toa Matoa, hosted survey & continue to develop acting & music talents, development of WWD, vocational centre Te Toa Matoa, hosted survey & continue to develop acting & music talents, development of WWD, vocational centre Equipment needs identified & sent over Equipment needs identified & sent over Rehabilitation Unit established Rehabilitation Unit established

Kiribati….

So…how have/can the survey results been used to benefit people with disability and their families? Planning Planning –Education – How many cwd? How old? What are their needs? How many teachers do we need? What kind of training do they need? How do we use specialists? How do we involve parents/family/community in the education process? How do we use this info to promote Inclusive Education? –Health - What kinds of health issues are emerging? What can be prevented? Who needs surgery? Medication? –Social Welfare, Access, Community Participation, etc.

Using data to coordinate…. –Donors –Equipment –Projects –Visiting specialists –Events Promoting PWD…. –As role models –As teachers/trainers –As policy developers –Advocates