Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 1

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 2 Comparative Research on Autonomy and Well-being in Late Life: Perspectives from European Research Projects V th European Congress of Gerontology, Barcelona, 2-5 July 2003

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 3 Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage E U R O F A M C A R E The V th Framework Programme: Quality of Life and Management of Living Resources Key Action 6: The Ageing Population and Disabilities 6.5: Health and Social Care Services to older People

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 4 WHO Europe Copenhagen University of Hamburg Italian National Research Centre on Ageing INRCA Ancona National School for Public Health SEXTANT Athens University of Bremen University of Sheffield The Medical Academy of Bialystok & University of Gdansk Linköping University & Socialstyrensen Stockholm

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 5 Aim  EUROFAMCARE will provide a European review of the situation of family carers of elderly people in relation to the existence, familiarity, availability, use and acceptability of supporting services …  … and any (other) supporting measures / ideas / concepts / …  EUROFAMCARE will push a change management process at various policy levels to promote social policies towards a partnership approach between family carers, professional providers and cared-for.

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 6 Research objectives  the differential of existing services on offer and the knowledge about services and their availability,  the use and non-use of such services, especially the reasons behind,  experience with and assessment of such services with respect to effectiveness and efficiency,  claimed needs for support resulting from the individual family care situation, which beside others may show a lack of specific services,  specific types of family care situations and their relation to specific services, respectively the lack of services.

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 7 Methodology The project conceptually consists of two major parts:  The National Surveys in the six core countries focussing the situation of family carers on an empirical level (6,000 interviews)

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 8 Methodology The project conceptually consists of two major parts: The National Surveys in the six core countries focussing the situation of family carers on an empirical level (6,000 interviews)  The pan-European background knowledge focussing the situation of family carers on the political level and the level of secondary analyses

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 9 National Surveys In-depth studies in the six core countries:  Up to 1,000 family carers will be visited at home and interviewed face to face using a Joint Family Care Assessment  Interviews with Service providers about their views and experience with family care  Data will be analysed on a national and European level

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 10 National Background Reports The NABARE will contain the current information about the country specific situation of family carers’ - (non ‑ )support, - (non ‑ )relief and - (non ‑ )expertise in the years 2003/2004.

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 11 Pan-European Background Report The PEUBARE will contain the European situation of family carers’ - (non ‑ )support, - (non ‑ )relief and - (non ‑ )expertise in the years 2003/2004 with respect for the variety of the different social-, health- and welfare systems.

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 12 Methodology The project conceptually consists of two major parts:  The National Surveys in the six core countries focussing the situation of family carers on an empirical level (6,000 interviews)  The pan-European background knowledge focussing the situation of family carers on the political level and the level of secondary analyses Both parts are accompanied by a socio-economic Evaluation ECO

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 13 Connecting European Families with European Policies Euro-Political Analysis Pan-European Group National Background Reports NABAREs (Secondary Analyses) Trans-European Group National In-Depth Surveys NASURs Euro-Political Background Report socio-economical evaluation ECO micro-level macro-level In-Depth Analysis European Policies European Families

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 14 Challenges How can we adapt our attitudes and belief systems to those of our research partners?  different research interests (sociological, psychological, medical, political, …)  different chances, opportunities and difficulties to conduct field studies  different concepts of being, ideas of man, mindsets …… Group dynamics

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 15 Challenges How can we adapt our attitudes and belief systems to those of our research subjects? Are we able to understand them?  Do we share the same interests?  Do we think in a similar way?  Do we want to hear, what we cannot handle?  Do we want to hear, what is contradictive to our picture of our research subjects?  …? idea of man

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 16 Challenges Can we regard our research subjects as our research partners?  Do we regard them as self-responsible “functioning” persons?  Do we let them decide what to answer and what to express, and what to keep private? mindset

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 17 Challenges How can we gather information we are asking for -without giving the answers in advance and -without losing comparability? Methodological ideologies

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 18 Challenges State 1: People are different State 2: Countries are different State 3: Instruments have to be equal Are our instruments suitable for every person in every country despite all differences? Are we comparing different people in different countries on a valid and reliable data base?

Core Group Pan- European Network “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Uni HH-IMS-CKo 19 Biography Social systems Generations Biography Social systems Generations Biography Social systems Generations Biography Social systems Generations Biography Social systems Generations Biography Social systems Generations Biography Social systems Generations Biography Social systems Generations Society Biography Social systems Generations Biography Social systems Theory? What Theory? Society