Personal Health Records: a systematic review Authors: Maria João Xará, Nivalda Pereira, Sandra Fontes, Anabela Maio, Maria João Pinto Cristina Gomes, Hugo Cunha Tiago Adrego, Paulo Pancrácio Supervisor: Dr Ricardo Correia Class 21 Biostatistics and Medical Informatics Department

Structure Introduction –Objectives Methods Results Discussion Conclusions

Introduction Why PHR now? There has been a tremendous progress in medicine as well as in informatics during the last decades. Haus, Reinhold; 2006 Recently there has been a remarkable upsurge in activity surrounding the adoption of personal health record (PHR) systems for patients and consumers. Tang PC, Ash JS, Bates DW, Overhage JM, Sands DZ

What is a PHR? PHR is a collection of important information about individual’s health or the health of someone he is caring for (such as a parent or a child) that he actively maintains and update. AHIMA, 2006 PHRs systems are more than just static repositories for patient data.

PHR is different from EHR EHR PHR EHR: Generic term for all electronic patient care systems Waegemann P

What kind of information should PHR contain? Personal identification; List and dates of significant illness and surgeries; Current medications and dosages; Immunizations and their dates; Allergies; Organ donor authorization; Opinions of specialists; Important test results; Eye and dental records; Any information that the user think is important for his health. AHIMA, 2006

Why using PHR? Advantages Extremely quick and economic tecnique that prevents the loss of information; Reduction of hospital services affluence; The individual is active in the process of prevention and diagnosis; Chronic patients (control and earlier interventions). Disadvantages Data might not be correct ; Problems related to the privacy. FORMATION

Objectives To evaluate the impact of PHRs’ utilization in the users’ health care.

Methods SCHOLAR.GOOGLE “Personal Health Records” 1st phase October Search

MEDLINE 2nd phase: Systematic data collection November 2006 ("Patient Access to Records"[MeSH] and "Medical Records Systems,Computerized"[MeSH]) or ("Personal health records“ or "Personal Health Information") "Patient Access to Records" and "Medical Records Systems, Computerized") or ("Personal health records" or "Personal Health Information") 181 SCOPUS 183

Selection Studies were only included if they met all of the following ideas: PHR as a register edited and kept by the patient or another person responsible for him Systems in which PHR was implemented and used Evaluation of the PHRs' impact in users' health

Analysis 1)Inclusion or exclusion criteria 2)Important information: Health status of the user using the PHR Hospitalar services Patient responsibility for the prevention or intervention process Implemented system Users’ perception Characteristics of the individuals