SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Semi-Annual Progress Report Jeanne M. Amos CC HH Data Coordinator

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Executive Summary Participant Accrual Data Submission Data Quality Baseline Data **All numbers are based on data submitted as of December 31, 2006

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Participant Accrual: Definition The Cumulative number of participants that have begun the project to date. In this report, participants are counted in the accrual number when the Baseline Assessment of Core Elements (BACE/B1) form for a given participant is submitted to the Coordinating Center.

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Participant Accrual: Numbers Total # in Excel Registry 3125 Total # signed a consent 1394 Total # BACE/B1s received 961 –Table 1.01: HH Participant Accrual in 2006Table 1.01: HH Participant Accrual in 2006

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Participant Accrual: Summary % of Goal met for year 1 of intensive activities 961/1500 = 64.1% –HH Monthly Actual Participant Accrual vs. Expected Accrual in 2006, figure 1.01 –HH Grant Program’s First Date of Intensive Activities by Month, figure 1.02 –HH Percent of BACE Submissions Goal (50) Achieved in 2006, figure 1.03

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Figure 1.01: HH Monthly Actual Participant Accrual vs. Expected Accrual in 2006

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Figure 1.02: HH Grant Programs' First Date of Intensive Activities by Month

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Figure 1.03: HH Percent of BACE Submissions Goal (50) Achieved in 2006

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Data Submission Bi-Weekly Data Submission Baseline Form Submission (BACE/B1, PBQ/B2, FBQ/B3) Participant Attrition (Drop-Outs)

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Data Submission: Bi-Weekly Most grantees did an excellent job with the required bi-weekly data submission schedule. –22 (73%) of the grant programs submitted the Excel Registry and Tracking Logsheet on their scheduled submission dates more than 90% of the time. –Only 4 grant programs missed more than 20% of their scheduled data submissions.

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Data Submission: Baseline Forms Cumulative Number of Baseline Forms Submitted in 2006, table 2.02 Cumulative Number of Baseline Forms Submitted in 2006, table 2.02 –961 Baseline Assessment of Core Elements (BACE/B1) forms –931 Participant Baseline Questionnaires (PBQ/B2) –617 Family Baseline Questionnaires (FBQ/B3) *Note: A PBQ or a FBQ will only be counted if the CC has also received the B1 form for that participant.

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Data Submission: Participant Attrition (Drop Outs) The overall rate of participants who dropped out among all participants is 2.2% (table 2.03) as reported to the CC up to December 31, 2006.table 2.03 At that time, more than three quarters (80%) of the grant programs had not reported any participants to have dropped out, while the highest drop-out number among all the grant programs was 7 (out of 28 participants).

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Data Quality Missing Data Unresolved Missing Data Timeline Compliance

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Data Quality: Missing Data The quality of data varies across grant programs. Table 3.01 presents the number of forms with missing or invalid data that were identified by the CC prior to data entry. Table 3.01 The percentage of B1 forms with unresolved missing data (not resolved or confirmed after two rounds/months of ENLs) is shown in Table 3.02.Table 3.02

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Data Quality: Unresolved Missing Data A comparison of Tables 3.01 and 3.02 shows the difference between the number of forms with missing or invalid data upon first submission and the number of forms with missing or unconfirmed data following contact from the CC requesting submission (or confirmation of) the missing values. Prior to contact from the CC, 59.6% of forms had missing or invalid data. Following contact from the CC through ENLs, 8.2% of forms had neither 1) been corrected nor 2) had the missing values confirmed as not obtained. This shows that HH grantees have done a great job responding to ENLs!

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Data Quality: Timeline Compliance The baseline timeline requirements mandate that baseline data be collected within one month before each individual’s first Case Management Visit. Many grant programs have struggled to meet timeline requirements. Nearly half (48.3%) of the BACE forms submitted to the CC did not meet all of the timeline requirements for the Baseline Assessment.

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Baseline Data Sociodemographics Clinical Characteristics Lifestyle Measurements

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Baseline Data: Sociodemographics Figures 4.01 to 4.05: –There are more female participants (69%) than male participants (31%). –The average age is 54, with 11% being younger than age 40 and 34% age 60 or older.

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Figure 4.01: HH Baseline Age Reported by Participants Recruited in 2006

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Figure 4.02: HH Baseline Education Status Reported by Participants Recruited in 2006

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Figure 4.03: HH Baseline Employment Status Reported by Participants Recruited in 2006

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Figure 4.04: HH Baseline Marital Status Reported by Participants Recruited in 2006

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Figure 4.05: HH Baseline Annual Household Income Reported by Participants Recruited in 2006

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Baseline Data: Clinical Characteristics Table 4.01: Table 4.01 –Average weight of participants is lbs –Average Body Mass index is 36.5 –Average waist circumference is 44.8 inches for women and 46.1 inches for men. –Average waist-to-hip ratio is 1.0

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Baseline Data: Lifestyle Measurements Figures 4.06 to 4.09: –24% of participants reported that they already met the program goal for physical activity – at least 150 minutes per week. –49% of the participants reported having never smoked, while 34% are former smokers and 17% are current smokers.

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Figure 4.06: HH Baseline Minutes of Physical Activity per Week Reported by Participants in 2006

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Figure 4.07: HH Baseline Frequency of Alcohol Drinking Reported by Participants in 2006

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Figure 4.08: HH Baseline Smoking Status Reported by Participants in 2006

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Figure 4.09: HH Baseline Hours of Sedentary Activity (e.g., TV) per Day Reported by Participants in 2006

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 How to use this information Look for areas where you can improve –Can you improve on the # of forms you submit with missing data? –Are your time-lines out-of-line? Presentation to Tribal/clinic/community leaders –Topic: How you are doing in relation to other sites –Topic: The “big picture” – demonstration project so that others may have opportunity to do this in the future.

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Using this info to put the most into AND to get the most out of this meeting Are you a in an area? –Think about what strategies and/or activities have helped you achieve that success –SHARE those strategies in the appropriate sessions

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Using this info to put the most into AND to get the most out of this meeting Did this report identify or confirm an area of weakness in your program? – Listen for strategies from other grantees that might help you – Look for posters that might help you come up with ways to improve any areas of potential weakness

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Contacts Jeanne M. Amos, HH Data Coordinator Sandra Woodruff, HH Project Coordinator

SPECIAL DIABETES PROGRAM FOR INDIANS Healthy Heart Project: Year 3 Meeting 1 Semi-Annual Progress Report Q&A