Diabetes Nurse Training A European Perspective Diabetes Nurse Training A European Perspective Anne-Marie Felton Chairman FEND Anne-Marie Felton Chairman FEND

Quote “ A doctor is called but a nurse is sent for ” Anton Chekhov

The Scale of the Problem Within EU an estimated 10 million people diagnosed with diabetes Estimated 10 million undiagnosed In UK - estimated 1 million undiagnosed (the “Missing Million”) The total cost burden in EU countries is in excess of 10% of respective annual health care budgets Within EU an estimated 10 million people diagnosed with diabetes Estimated 10 million undiagnosed In UK - estimated 1 million undiagnosed (the “Missing Million”) The total cost burden in EU countries is in excess of 10% of respective annual health care budgets

Diabetes - A Major Public Health Problem in Europe The Prevalence of diabetes in Europe will increase from 3.5% to 4.7% over the next 20 years 10 million people in the EU diagnosed Additional 10 million undiagnosed (the Missing Millions) The Prevalence of diabetes in Europe will increase from 3.5% to 4.7% over the next 20 years 10 million people in the EU diagnosed Additional 10 million undiagnosed (the Missing Millions)

Influencing Factors (1) Increasing prevalence of diabetes Specific health needs of the diabetic population Societal influences, consumer autonomy and empowerment Differing and increasing expectations of healthcare Cultural, ethnic and economic factors Technological and therapeutic advances Increasing prevalence of diabetes Specific health needs of the diabetic population Societal influences, consumer autonomy and empowerment Differing and increasing expectations of healthcare Cultural, ethnic and economic factors Technological and therapeutic advances

Influencing Factors (2) Psychosocial aspects of nursing care & clinical practice Effective and appropriate use of nurse manpower Evolving national priorities in healthcare Non governmental - national –Patient organisations, diabetes nursing organisations, EADV Non governmental - international –IDF, WHO, EASD, FEND, patient organisations Psychosocial aspects of nursing care & clinical practice Effective and appropriate use of nurse manpower Evolving national priorities in healthcare Non governmental - national –Patient organisations, diabetes nursing organisations, EADV Non governmental - international –IDF, WHO, EASD, FEND, patient organisations

Influencing Factors (3) St Vincent Declaration Professional Organisations / Associations Ministries of Health EU 6th Framework for Research (ERA) EURADIA Political lobbying Media Scientific press Relevant National / International Conferences St Vincent Declaration Professional Organisations / Associations Ministries of Health EU 6th Framework for Research (ERA) EURADIA Political lobbying Media Scientific press Relevant National / International Conferences

Evidence Based Research DCCT UKPDS US Diabetes Prevention Programme Finnish Diabetes Prevention Programme DCCT UKPDS US Diabetes Prevention Programme Finnish Diabetes Prevention Programme

Education Programmes DESG Curriculum for Health Care Professionals in TPE (2001) WHO Report Therapeutic Patient Education (1998) IDF Training the Trainers curriculum FEND ENDCUP National diabetes nursing organisations initiatives in training and education DESG Curriculum for Health Care Professionals in TPE (2001) WHO Report Therapeutic Patient Education (1998) IDF Training the Trainers curriculum FEND ENDCUP National diabetes nursing organisations initiatives in training and education

St Vincent Declaration 10th Anniversary Nurses Working Group Report The Role of the Diabetes Nurse Clinical Counselling Educational Innovation Communication Managerial Research Influence Advocacy

St Vincent Declaration 10th Anniversary Nurses Working Group Report 50% of working time in clinical diabetes practice 50% divided between research and education Diabetes nurses to be members of policy task forces Basic nurse training curricula to have greater emphasis on diabetes care research and education Post graduate national accredited training programmes (with ECTS) 50% of working time in clinical diabetes practice 50% divided between research and education Diabetes nurses to be members of policy task forces Basic nurse training curricula to have greater emphasis on diabetes care research and education Post graduate national accredited training programmes (with ECTS)

Accredited Training Programmes 1996: 5 in Europe (3 in UK, 1 in Ireland) 1999: Increase of 5 ( 2 Sweden, 1 Netherlands, 1 Germany and FEND ENDCUP) 2001: Increase of 1 (Norway) In development Poland, Slovenia, Spain, Turkey 1996: 5 in Europe (3 in UK, 1 in Ireland) 1999: Increase of 5 ( 2 Sweden, 1 Netherlands, 1 Germany and FEND ENDCUP) 2001: Increase of 1 (Norway) In development Poland, Slovenia, Spain, Turkey

Diabetes Teaching Centre University Autònoma Barcelona Spain The Department of Health & Caring Sciences / Department of Nursing Studies University of Uppsala Sweden The School of Life Sciences University of Surrey Roehampton, London United Kingdom Diabetes Teaching Centre University Autònoma Barcelona Spain The Department of Health & Caring Sciences / Department of Nursing Studies University of Uppsala Sweden The School of Life Sciences University of Surrey Roehampton, London United Kingdom ENDCUP University Centres

Three Compulsory Modules CLINICAL (June 2002) The School of Life Sciences University of Surrey Roehampton, London TPPE (December 2002) The Department of Health & Caring Sciences / Department of Nursing Studies University of Uppsala, Sweden RESEARCH (July 2003) Diabetes Teaching Centre University Autònoma Barcelona, Spain CLINICAL (June 2002) The School of Life Sciences University of Surrey Roehampton, London TPPE (December 2002) The Department of Health & Caring Sciences / Department of Nursing Studies University of Uppsala, Sweden RESEARCH (July 2003) Diabetes Teaching Centre University Autònoma Barcelona, Spain

Modules 6 months interval between each module Unseen paper, viva and Therapeutic Patient Professional Education project presentation Accreditation by individual universities and FEND 20 credits ECTS 6 months interval between each module Unseen paper, viva and Therapeutic Patient Professional Education project presentation Accreditation by individual universities and FEND 20 credits ECTS

ENDCUP Funded by FEND Criteria agreed between university authorities and FEND Accredited by respective universities and ECTS Funded by FEND Criteria agreed between university authorities and FEND Accredited by respective universities and ECTS

ENDCUP Participants from: Bulgaria Denmark Finland Latvia Lithuania Malta Netherlands Norway Poland Portugal Bulgaria Denmark Finland Latvia Lithuania Malta Netherlands Norway Poland Portugal Romania Russia Spain Sweden Switzerland Turkey Ukraine UK Uzbekistan Romania Russia Spain Sweden Switzerland Turkey Ukraine UK Uzbekistan

FEND: Future Developments FEND Chair in diabetes nursing FEND collaborative centres Education exchange programme European Directory of diabetes nurses Structured collaboration with relevant organisations FEND Chair in diabetes nursing FEND collaborative centres Education exchange programme European Directory of diabetes nurses Structured collaboration with relevant organisations

Quote “Human history becomes more and more a race between education and catastrophe ” H. G. Wells

SPONSORS Aventis Bayer Becton Dickinson GlaxoSmithKline Lifescan Medisense Novo Nordisk