Helen Gowland Chair Person Tayside Speakeasy Aphasia Self Help (affiliated to Speakability) Laorag Hunter Speech and Language Therapist NHS Tayside

Aphasia A communication impairment “ay-fay-zee-ah”

Aphasia Difficulty using and understanding spoken and written language

Aphasia=Dysphasia

Aphasia Common after stroke, brain injury and some brain illnesses

Aphasia 20,000 people develop aphasia every year 50% of people have aphasia 18 months after it starts 250,000 people in UK Changes with communication can be life- long

years old 3 girls Husband Elderly parents Part time specialist physio Committee work Enjoying life

Out Of The Blue April 1999 Aneurysm ruptured followed by stroke Emergency brain surgery

Aphasia- Many Changes

Impact on Me Epilepsy Aphasia Changes in vision Balance Work Driving Family Hobbies Devastation

years old 3 girls, sons-in-law, boyfriends Husband Elderly parents Part time work Oxfam Committee work (local and national) 2 dogs Cooking Enjoying life

Living Successfully with Aphasia (Brown et al 2010) Communication Doing things Meaningful relationships Striving for a positive way of life

Living Successfully with Aphasia (Brown et al 2010) Communication Doing things Meaningful relationships Striving for a positive way of life

Reduce communication barriers

Ask yourself… If I had difficulty understanding what would help? If I had difficulty telling by speech what would help? If I had difficulty reading what would help? If I had difficulty telling by writing what would help?

Aphasia Friendly Don’t use a big word if a small word will do Don’t use unusual vocabulary Don’t use unusual words

Aphasia Friendly Use simple sentences “I am writing to inform you that garage charges will increase on 1 st March from £25 per calendar month to £28” “Garage charges rise on 1 st March to £28”

Aphasia Friendly Large Print

Aphasia Friendly More white space

Aphasia Friendly Key words in colour

Aphasia Friendly Include carefully selected images or symbols

Aphasia Friendly If you need a reply, include addressed envelopes

Aphasia Friendly Option for face to face help

Aphasia Friendly Time to understand and to answer

Aphasia Friendly Repeat important points

Aphasia Friendly Simple words Simple sentences Large print More white space Key words in colour Use of carefully selected pictures/symbols Pre-printed envelopes Option for face to face help Plenty of time Repetition

The next working group will be visiting the Scottish Parliament. You will need to bring bus pass, money for coffee and a packed lunch. There will be an opportunity to take photographs. For example

See handout

Ask for help with communication

Expect communication improves over a long period of time

Stroke Research Tells Us… Language function continues to improve over DECADES (Ambridge et al 2010)

People with aphasia tell us… This requires PRACTICE

The Importance of Practice

Speech Therapy Helps me to get new words 10 years on Practise on my own at home with a communication aid I am improving all the time Feel positive

Living Successfully with Aphasia (Brown et al 2010) Communication Doing things Meaningful relationships Striving for a positive way of life

Speakeasy: Aphasia Self Help

Supporting each other to live well with long-term changes in communication

People with aphasia are not static, they are dynamic When they are supported to have a purpose, goals and to feel strong Harmony

References Brown, K et al (2010). Snapshots of success: An insider perspective on living successfully with aphasia. Aphasiology, 24 (10), 1267–1295 Ambridge et al (2010). Predicting language outcome and recovery after stroke. RCSLT Bulletin, October 2010 Maxwell, G (2009). Falling and Laughing: The restoration of Edwyn Collins. Ebury Press.

Learn more about aphasia

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