Connecticut State Team Regional Champions Community Champions Other State Agency Champions

Overview of the ALL in CT 29% (16,293) 66% (38,399) Active in DDS Waiting for DDS 4% (2,140) *Based on 1.58% prevalence of citizens, US Census (2014) 56,832 individuals estimated to have Developmental Disabilities* 4,084 under 21 yrs. 12, yrs. + Inside the State System Individuals in Integrated Employment4,748 (49%) Comprehensive Waiver4,968 Individual & Family Support Waiver4,005 Employment & Day Support Waiver580 ASD Waiver97

Current Influences In Connecticut Legislative cuts Waitlists New State Developmental Disability Services Director DSS Autism State Plan Services No Wrong Door Activities CMS Rule Setting Guidelines CMS Balanced Incentive Program Aging PCP Project

THEN and NOW: Our State CoP Stakeholders and Partners Year One PartnersAdditional/Enhanced Partnerships 100+ stakeholders who volunteered to be part of the COP 300+ stakeholders who volunteer to be part of COP committees and activities DD CouncilAssistive Tech Act Project staff, SDE, DSS, Department of Aging, UCEDD, OPA, DOL, Private Agency Providers Family Support Network +30 plus family groups-including cross-disability, behavioral health, school, and autism family groups Community and faith-based groups

Overview of Core Team Activities COP COMMITTEES EmploymentFamily to Family Healthy Living Housing Information Navigation Person-Centered Planning Positive Behavior Support Self Directed Supports Social & Respite Supports Technology

THEN and NOW: Our State CoP Vision, Goals and Priorities Year One GoalsYear Two Goals Year 1: Assist COP Committees to become “Community-Based Learning Communities” Year 2: Assist COP Committees to develop “marketing” materials on important things they’ve learned

Major Priority One Discovery & Navigation What’s Different? LIFESPAN APPROACH SUPPORT OPTIONS COLLABORATION OPTIONS

Major Priority One Discovery & Navigation SUSTAINABILITY What do individuals and families want to know? SA/Family/Community Leadership What current Discovery and Navigation processes are working? SA/Family/Community SA & Family Partnerships 211 and other generic lifespan websites Town Social Workers Disability Community/DDS Stakeholders Alliance, DDS website, COP Brochures/Materials, DDS mailings, Stakeholder Partnerships What Discovery and Navigation processes need to change? Focus Area: Social Media (TYZE, FACEBOOK, OTHER?) DDS IT DDS Communication What system change needs to occur to sustain the desired Discovery and Navigation improvements?

Major Priority Two Connection and Networking What’s Different? FAMILY LEADERSHIP F AMILY A DVOCACY C OLLABORATIVE and T RAINING S UPPORTS SIBLINGS PARENTS WITH COGNITIVE DISABILITIES

Major Priority Two Connection and Networking SUSTAINABILITY What do individuals and families want to know about PCP/Life Course Planning? SA/Family/Community Leadership How well are we currently getting PCP/Life Course information to individuals and families? individuals, families, siblings, grandparents, family groups How well are we training individuals and family members to be PCP/Life Course mentors? How well are we helping family members to partner with providers and other stakeholders to implement PCP/Life Course concepts? What system change needs to occur to sustain enhanced implementation of PCP/Life Course processes?

Major Priority Three Goods and Services What’s Different? TECH ACT PARTNERS SAFE AND SMART AT CAMPAIGN TECHNOLOGY ENTHUSIASM!

Major Priority Three Goods and Services SUSTAINABILITY What do individuals and families want to know about technology? SA/Family/Community Leadership How well are we currently getting technology information to individuals and families? individuals, families, siblings, grandparents, family groups How well are we helping family members to partner with providers and other stakeholders to ensure greater use of technology as a support for people with IDD? What system change needs to occur to sustain greater use of technology to support people with IDD?

Major Priority Three Goods and Services What else is Different? COP COMMUNITY COMMITTEES Employment Healthy Living Housing In-Home Supports Positive Behavior Supports Respite Social/Recreation Self Advocates, Families, Providers, DDS Staff, Other State Agency Staff and Community Members All Working Together What needs to occur to sustain these improvements?

Biggest Lessons Learned So Far What were the big lessons learned so far? System change takes time It is really easy to revert to old behavior Communities are rich in resources- sometimes you just have to ask. Can’t make decisions without self advocates and family members at the table Flexibility is key.

Vision for Next Year If next year goes exactly as planned, what will your state team achieve?  Life Course Principles and Practices Embedded in DDS IPs and in School Planning Processes because it is demanded by families  More Individuals and Families Use Technology as a Valued Support  Use of Social Networking Strategies (Tyze and Other Innovation Communication Strategies) is the New Norm  More Goods and Services Options Are Available for the Provision of High Quality Employment, Housing, Out-of-Home Respite, In-Home Supports, Positive Behavior Supports and Peer Supports, etc.  Culture of creative and effective family/community partnerships continues to grow and get better and better

Vision for Next Year End Result Caregivers take care of themselves and they feel supported by others.