Resilience and Hope: Kiwi Stories of Breast Cancer Dr. Chris Walsh, Deputy Chair Breast Cancer Aotearoa Coalition New Zealand

Breast Cancer in NZ Every year 2,700 women are diagnosed & 620 die NZ has one of the worst survival rates in the developed world Maori are 21% more likely to be diagnosed than non- Maori & 30% less likely to be diagnosed in the early stage New Zealand

Breast Cancer Aotearoa Coalition Provides: a united voice for NZ women who have experienced breast cancer to make world class detection, treatment and care accessible information, support and representation empowering those with breast cancer to make informed decisions about their treatment and care

BCAC Committee Members

The BCAC Web Videos Each video covers a different aspect of breast cancer Women & men who have had breast cancer, partners, family members, treatment team members discuss aspects of their experience of the disease Provides accessible support and information Demystifies &‘normalises’ the experience so those diagnosed feel less isolated

Process of Producing the Web Videos : Behind the Scenes Pre-production Production Post production Launch

Demographic Profile 14 women, 1 male 5 health professionals 4 Family/whanau Age range: years Ethnicity:7 Maori, 6 Pakeha,1 Pacific &1 Asian. Types: lobular/ductal, grades, secondary, inflammatory,HER2+ BRCA carrier, Hormone receptor

Video Themes from Interviews in Order of Number of Views Diagnosis Risk Surgery Reactions Life after Getting through Radiation Chemotherapy Reconstruction Family support Relationships Hormone therapy Secondary Clinical trials

Front Page of Web Site

Content Page of Videos

Response and Feedback Written:“I found the videos very helpful. I have been diagnosed with IDC cancer in the breast and I am due to have surgery in 3 weeks. I now know what is in store for me and I am so pleased that I have had the opportunity to view the videos.” Web analysis: Nearly 70% of traffic was new visits, most visits NZ but also picking up Australia, UK, US and Canada

Life After Breast Cancer Mereheeni Hooker Diagnosed with HER 2 positive breast cancer. Has a ‘bucket list’ that may not be very long but told her husband it could be very expensive.

Thank You We thank all those who gave so generously their time and wisdom to share their journey so others can be inspired. Kia kaha Be strong