Policy Tools (1): Existing Human Rights & Disability Data Streams in Europe (Art. 31) Carly Toepke, JD Disability Policy Group, Swiss Paraplegic Research (SPF), Nottwil, Switzerland Faculty of Law, University of Lucerne, Switzerland

 What is the current status of persons with disabilities in Europe according to the data available?  Is this data appropriate for the Member States to effectively implement the UN CRPD?  If not, what is the European data baseline (minimum data set) to be improved upon?  What are the legal requirements for the collection of data at national and European level?  What further steps do Member States need to take in order to meet the requirements in Article 31 of the UN CRPD?

Identify Barriers Implementation of UNCRPD Monitoring of UNCRPD Understand Variation Prioritization Disability Policy Making Identify Monitoring Method EU Level State Level Human Rights in Data Collection Respected Protected Statistics and Data Collection Article 31:States Parties undertake to collect appropriate information, including statistical and research data, to enable them to formulate and implement policies to give effect to the present Convention National Implementation and Monitoring Article 33(2): States Parties shall, in accordance with their legal and administrative systems, maintain, strengthen, designate or establish within the State Party, a framework, including one or more independent mechanisms, as appropriate, to promote, protect and monitor implementation of the present Convention.

Formulation of Research Plan Literature ReviewInterviewsSurveys Comparative Cross- Country Analysis

How to Access Appropriateness of Data feasibility of research what factors to take into account what tools to use Collecting Data from Policy Makers and Persons with Disabilities making contact interviews surveys Collecting Data on Human Rights Issues current sources cases

 Swiss Paraplegic Research  Nottwil, Switzerland  SPF’s mission is to improve functioning, social integration, equality of opportunity, health, self- determination and quality of life for persons with paraplegia or tetraplegia  Disability Policy Unit’s objective is to impact assessment of health and social policies and formulate policy recommendations  Mental Disability Advocacy Center  Budapest, Hungary  Hungary was the first EU country to ratify the UN CRPD and Optional Protocal in 2008  MDAC is advocating for implementation of the UN CRPD and an independent monitoring device