What’s Health Got to Do With It? Integrating Education & Health Care Transitions to Achieve Mutual Outcomes APSE National Conference Philadelphia, PA June 23, 2015

Let’s Chat Text: Online: PAHJ44U9

What Happens to Youth When They Grow Up? Experience a variety of transitions: School Adult Services But did you know: Pediatric Medical CareAdult Medical Care Pediatric Specialty CareAdult Specialty Care

What is the Goal? Quality Adult Life Health Care Well-Being Employment Independent Living Community Participation Relationships

What are Your Experiences with Health Care Transition?  I am currently receiving pediatric medical care  I am currently receiving adult medical care  I am currently in the process of transitioning from pediatric to adult care  I am not currently transitioning but would like to  I would like more information about health care transition

What is Health Care Transition? PediatricsAdult Care HEALTHCARE TRANSITIONS… …

What is Often the Reality? PediatricsAdult Care HEALTHCARE TRANSITIONS… …

What is the Impact? Range of disparities in health outcomes Reduced access to health care More difficulty getting needed care Poorer health outcomes

What Contributes to “the Gaps” in Transition? No reimbursement for transition activities Limited number of adult providers Youth not considered to be “transition ready” Lack of knowledge of pediatric and congenital conditions

How Many Youth with Special Health Care Needs Turn 18 Each Year?  100,000  250,000  500,000  750,000  1,000,000

Why is Health Care Transition Important? 4.5 million youth with special health care needs 65% of whom are moderately to severely affected 750,000 of these youth turn 18 every year Most live well into adulthood

Why Should We Think About Health? Impacts everything we do Influences school, work, and quality of life Importance of access to insurance and medical care

What Often Happens?

Different Worlds

Different Perspectives

Different Models

Concept of Supports

Awareness of Best Practices

Expectations

So How Can We Connect the Two?

What Did Stakeholders Tell Us? Focus Groups Interviews Survey Learning Collaborative

What Were the Common Themes? Information & EducationTools & Resources Interventions & Protocols

What are Critical Components in Transition? Developing skills that are credible in adulthood Providing youth with access to people in the adult world Providing opportunities for youth to participate in the adult world

Transition Engagement Checklist A framework of “talking points” A “current status check” of key aspects of successful transition An “action plan” for addressing the skills and supports needed to enhance the adolescent’s self-determined actions over time.

TRANSITION ENGAGEMENT CHECKLIST

TRANSITION ENGAGEMENT CHECKLIST [Continued]

Patient Interaction Tool Developed by youth with disabilities Input regarding the type, number, and format of questions Determined the most important and useful questions Provides youth with a guide to start conversations

Adolescent Transitioning Clinic Multi-disciplinary, day long Comprehensive Transition readiness Self-determination Education Employment Community organizations “I hope…that other families will have this wonderful experience and to provide another young person the opportunity to use this great resource to assist them as they transition to the adult world. I highly recommend it! A++”

How Can I Participate? Field testing of the Transition Engagement Checklist Field Testing of the Patient Interaction Tool Provide input, comments, and feedback Stay connected

What Else Can I Do? Get to know the medical community Share resources and what you can do Provide “patient summaries” (skills, communication, supports) Include health in your work Promote skills and experiences important for health care transition

Let’s Hear From You? Enter Teacher’s Room Code: PAHJ44U9 Click on: Join Room Enter Your Name: _____________________ Click on: Done

For more information, contact Wendy Parent-Johnson (605) Richard Parent-Johnson USD Center for Disabilities (