Disability As Transformation Saybrook Graduation School June 2006

The Whole is Greater Than the Sum of the Parts

THE BISCAYNE HEALTHCARE COMMUNITY  MODEL Structure

I HOSPITALS & MEDICAL SPECIALISTS T HE H EALTH C ARE C OMMUNITY  PROVIDES A BRIDGE TO THE MEDICAL SYSTEM

T HE B ISCAYNE H EALTH C ARE C OMMUNITY  EMPHASIZES HEALTH ADDRESSES PHYSICAL/BEHAVIORAL/COMPLEMENTARY APPROACHES TREATS CHILDREN & ADULTS PROVIDES SEAMLESS DELIVERY TO/FROM SPECIALTY CARE IS COST EFFECTIVE ADVANCES THE HEALTHY PEOPLE 2010 OBJECTIVES

Appendix: Short Titles for Healthy People 2010 Objectives 6. Disability and Secondary Conditions Goal:Promote the health of people with disabilities, prevent secondary conditions, and eliminate disparities between people with and without disabilities in the U.S. population. Objective Number and Short Title 6-1 Standard definition of people with disabilities in data sets 6-2 Feelings and depression among children with disabilities 6-3 Feelings and depression interfering with activities among adults with disabilities 6-4 Social Participation among adults with disabilities 6-5 Sufficient emotional support among adults with disabilities U.S. Department of Health and Human Services November Disability and Secondary Conditions Goal:Promote the health of people with disabilities, prevent secondary conditions, and eliminate disparities between people with and without disabilities in the U.S. population.

Team Approach: Patient & Patient Groups Physicians and Psychologists Physical, Occupational & Speech Therapists Social Workers, Teachers, Art Therapists Traditional Chinese Medicine Practitioners

Function: Transdisciplinary Protocols Examples  Physical Therapy & Biofeedback  Relaxation Therapy & Acupuncture  Combined Medical & Psychological Evaluations

Activities & Participation: Community Events Examples  Gold Coast Theatre  Miami Opera  Florida Council on Spirituality, Medicine & Healing

J “PEOPLE WHO FEEL LONELY AND ISOLATED HAVE THREE TO FIVE TIMES THE RATE OF PREMATURE DEATH AND DISEASE COMPARED TO THOSE WHO HAVE A SENSE OF COMMUNITY.” - Dean Ornish, M.D.

Creativity and the Journey Back to Self Marie A. DiCowden, Ph.D. Executive Director The Biscayne Institutes of Health & Living, Inc. Miami, Florida

Traumatic Brain Injury:  1.4 Million each year in United States  230,000 people are hospitalized and survive

Currently, 5.3 million Americans (2% of the U.S. population) live with disabilities resulting from TBI. The average age is 38.3 years.

NIH Consensus Report on Rehabilitation of Persons with Traumatic Brain Injury

Neuroplasticity

Left Hemisphere Memory Word FindingReasoningJudgment

Right Hemisphere Visual Discrimination Visual Spatial MemoryVisual OrganizationVisual SequencingImagery

Personality Changes

Traumatic Brain Injury Program Cognitive Retraining I (Left hemisphere) Cognitive Retraining I (Left hemisphere) Cognitive Retraining II (Right hemisphere) Cognitive Retraining II (Right hemisphere) Group Therapy Group Therapy Individual Therapy Individual Therapy Biofeedback Biofeedback Meditation Meditation Physical, Occupational, Speech Therapies Physical, Occupational, Speech Therapies as needed and prescribed as needed and prescribed

Cognitive Retraining Program:  Modules for Left Hemisphere Retraining  Modules for Right Hemisphere Retraining

OBJECTIVESMETHODSMEASUREMENTS (FIM Scales)

Cognitive Retraining I EXAMPLES: Memory Notebook Memory Notebook Orientation Orientation Medication Charts Medication Charts Safety Safety Attention Attention Procedures Procedures

OBJECTIVES Develop compensatory memory strategies Develop compensatory memory strategies Develop skills to begin and proceed through treatment independently Develop skills to begin and proceed through treatment independently Increase attention and concentration Increase attention and concentration Develop methods to track medication Develop methods to track medication Develop safety check strategies Develop safety check strategies

Cognitive Retraining II EXAMPLES: Collage Collage Self Portrait Self Portrait Mask Mask Clay Hand Building Clay Hand Building Bridge Bridge Free Drawings Free Drawings

OBJECTIVES Concept of self before and after trauma Concept of self before and after trauma Eye-hand coordination skills Eye-hand coordination skills Visual discrimination Visual discrimination Visual organization Visual organization Visual memory Visual memory Visual planning Visual planning Self awareness and expression Self awareness and expression

Collage

“The healing journey is so to speak the title of this collage because mine is a healing journey. Are there angels among us? I picked this because of the great many people that had helped me in this journey. They’ve been like angels. Butterflies are picked for their fragility— our own fragility...and last but not least the ‘pain’ word as connected with my car accident but not almost relegated to the background.” Collage description TBI survivor

Free Drawings

Masks

SELF PORTRAITS

3-D CONSTRUCTION

CLAY HAND BUILDING

CLAY HAND BUILDING

Clay Hand Building

Brain Injury Figure Project

GROUP PROJECTS

HEALING BEHIND THE MASK

TRANSFORMATIONFROMWITHIN

“Ultimately, human intentionality is the most powerful evolutionary force on this planet.” Leonard & Murphy, 1995

The Biscayne Institutes of Health & Living, Inc. “A HEALTHCARE COMMUNITY  ”