Dementia Friendly Communities: The National Picture Simon Kitchen, Lead Executive, Dementia Action Alliance

Background 800,000 people with dementia in the UK, set to rise to over a million by 2021 (Cumbria CCG: 7,421) Cost to the economy of £23 billion (Cumbria: £213m) Core business of health and care services: 80% people in care homes have dementia and up to a quarter of people in hospitals have dementia Less than half of people with dementia have a diagnosis

Background 800,000 people with dementia in the UK, set to rise to over a million by 2021 (Cumbria CCG: 7,421) Cost to the economy of £23 billion (Cumbria: £213m) Core business of health and care services: 80% people in care homes have dementia and up to a quarter of people in hospitals have dementia Less than half of people with dementia have a diagnosis (Cumbria CCG: 56.2%)

Carers in the UK Over 670,000 people in the UK acting as the primary carers for people with dementia 52% of carers for people with dementia are not getting sufficient support to enable them to carry out their caring role. Recent figures suggest family carers save the economy £119bn Lack of support significant perceived repercussions - impact on mental and physical health and earlier admissions to long-term care

National Dementia Strategy Recognised dementia is a national health priority Ensuring early diagnosis supported with information, care and support; and Improving the quality of care for people with dementia and their carers. Public information is critical to meet the first objective of the strategy: Improving public and professional awareness and understanding of dementia. Public and professional awareness and understanding of dementia must be improved and the stigma associated with it addressed. Inform individuals of the benefits of timely diagnosis and care, Promote the prevention of dementia, and reduce social exclusion and discrimination.

Prime Minister’s Challenge on Dementia New diagnosis ambition CQUIN rewards for hospitals Alzheimer’s Society Dementia Friends - More support for carers Investments in research

DFC Champion Group The group is responsible for delivering action against the objectives set out in the PM Challenge on Dementia Cross section of leading civic organisations and businesses, emergency services Each member has pledged to look at how they and others can play a part in creating a more dementia-friendly society and raising awareness of dementia in their sector

Building dementia-friendly communities: A priority for everyone 63% of people with dementia did not want to try new things Major underlying issues: lack of confidence, worry and fear 10 key areas to address in a dementia friendly community (DFC) A DFC must empower people with dementia to have high aspirations, feel confident, and know they can contribute to their community.

Dementia-friendly communities What did we find?

The opportunity for change

A dementia-friendly community is a city, town or village where people with dementia are understood, respected and supported, and confident they can contribute to community life.

Dementia-friendly communities: Gaining momentum Over 50 communities have committed to becoming dementia friendly 47 Local Dementia Action Alliances Schools driving intergenerational change Business, services and organisations taking up the challenge.

To turn commitment into action to radically transform the lives of people with dementia.

I have personal choice and control or influence over decision about me I know that services are designed around me and my needs I have support that helps me live my life I have knowledge and know-how to get what I need I live in an enabling and supportive environment where I feel valued and understood I have a sense of belonging and of being a valued part of my family, community and civic life I know there is research going on which delivers a better life for me now and hope for future National Dementia Declaration

Action Plan

Building a social movement

130 national members

Building a social movement 130 national members 400 local members

Building a social movement 130 national members 400 local members 47 Local Alliances

Building a social movement 130 national members 500 local members 47 Local Alliances 3138 actions

Joint work Calls to Action: Right Prescription Polling into public attitudes Research into timely diagnosis and access to drug treatments Right Care: creating dementia friendly hospitals

Dementia Friends is an initiative that is helping to create more dementia friendly communities. Alzheimer’s Society is working develop Dementia Friends in the wide range of locations, work places, institutions and organisations likely to come into contact with people with dementia. We want there to be a million Dementia Friends in England by the end of 2015.

Dementia Friendly Communities recognition Criteria 1: Make sure you have the right local structure in place to maintain a sustainable dementia friendly community

Dementia Friendly Communities recognition Criteria 2: Identify a person or people to take responsibility for driving forward the work to support your community to become dementia friendly and ensure that individuals, organisations and businesses are meeting their stated commitments

Dementia Friendly Communities recognition Criteria 3: Have a plan to raise awareness about dementia in key organisations and businesses within the community that support people with dementia

Dementia Friendly Communities Criteria Criteria 4: Develop a strong voice for people with dementia living in your communities. This will give your plan credibility and will make sure it focuses on areas people with dementia feel are most important

Dementia Friendly Communities recognition Criteria 5: Raise the profile of your work to increase reach and awareness to different groups in the community

Dementia Friendly Communities recognition Criteria 6: Focus your plans on a number of key areas that have been identified locally

Dementia Friendly Communities recognition Criteria 7: Have in place a plan or system to update the progress of your community after six months and one year

Vehicle / destination Local Dementia Action Alliances are how we get there Dementia friendly communities are where we want to be

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