Northwest Tribal Data Repository Updated Victoria Warren-Mears.

Slides:

Advertisements

Similar presentations

LIBRARY BUILDING Where to Begin?. WHY? Identify the reason for the new/renovated building Quantify the need based on standards, shortfalls and benchmarks.

Advertisements

Audit. Types Scheduled Audits Programmatic Assurance >Field Monitoring, Annual Reviews Reviews of Partners Financial Records > Spot Checks > Special Audits.

Proposal on improvement of the capacity building programme of The association of village municipalities of the Kyrgyz Republic.

Subchapter M-Indian Self- Determination and Education Assistance Act Program Part 273-Education Contracts under Johnson-OMalley Act.

Acquisition Office The Acquisition Process Acquisition Staff.

CDC and Tribal Epidemiology Centers: Working Relationship Update

Massachusetts Department of Elementary & Secondary Education

Other Items for Consideration. Cash Change Funds The library board may permit any of its officers or employees having a duty to collect cash revenues.

Cancer Screening and Care for AIANs in Washington State Scott Ramsey Fred Hutchinson Cancer Research Center.

Staff Timesheets 2014 Project Director Training & Annual Meeting1.

Budget, Legislative, and Accountability Update Continuing Education Leadership Institute March 23, 2015 Jennifer Haygood, EVP and Chief Financial Officer.

AB 86: Adult Education Webinar Series

Life Cycle of a Grant Sarah Santoyo, Director of Grants October 5, 2012.

1 WASTE TIRE PROGRAM Utilities Department Orange County Board of County Commissioners April 30, 2013.

1 Legislative & Policy Update NW Portland Area Indian Health Board Quarterly Board Meeting Hosted by Grand Ronde Tribe April 22, 2015.

NORTHWEST PORTLAND AREA INDIAN HEALTH BOARD & THE NORTHWEST TRIBAL EPIDEMIOLOGY CENTER Victoria Warren-Mears, PhD, RDN, FAND

Delegate Assembly Orientation August 3, 2011 Myra Broadway, NCSBN President Jay Douglas, Executive Director Virginia Board of Nursing Joan Bundley, NCSBN.

Review of Transportation Policies and Costs Fiscal Committee December 2, 2013.

Conservation Districts in New York Training Module 1.

{ PIHOA Financial Packet Presented to the Board on March 11, 2014.

Roles and Responsibilities Of the library trustee NJLTA New Jersey Library Association.

Documenting the Participation of Fishing Vessel Crew Members in Alaska’s Commercial Fisheries Documenting the Participation of Fishing Vessel Crew Members.

The Community Eligibility Provision (CEP) and Provision 2.

1 Defense Health Agency Privacy and Civil Liberties Office Data Sharing Program Overview Ms. Rita DeShields DHA Data Sharing Compliance Manager August.

Self-Governance Works! Self-Governance Negotiations Tribal Best Practices June 2, 2015 Minneapolis, MN.

Best Practices: Financial Resource Management February 2011.

School Finances for Finance Subcommittees School Councils.

Land Development Regulations : Section 2 – Waivers (and related sections) Regulation Update Board of County Commissioners Hearing December 9, 2014 Continued.

H I P A A T R A I N I N G Self Directed Module 7 Research Disclosures For Data Custodians START Click to begin…

The study of the distribution and determinants of health- related states or events in specified populations, and the application of this study to the control.

Understanding School Finances School Councils. What are school council’s major responsibilities regarding finance? 1.To approve the school’s annual budget.

Councillor Community Fund Isabell Procter Director of Resources Francis Fernandes Borough Secretary.

Grant Management Responsibilities DGMO staff provide technical assistance to applicants and manage grantees’ financial information and administrative matters.

Resource Portfolio Management TASSCC Annual Conference August 11, 2008 Department of Aging and Disability Services Information Technology.

Options for Tribes to Manage Air Quality in Indian Country Rich McAllister Hobbs, Straus, Dean & Walker Laura McKelvey EPA Office of Air Quality.

Conducting Surveys Presented by: Kay Lam Gallaudet Research Institute address:

2007 Annual NWTEMC Conference Northwest Tribal Emergency Management Council.

Understanding School Finances School Councils. What are school council’s major responsibilities with regard to finance? 1.To develop the school’s annual.

Evaluate Phase Pertemuan Matakuliah: A0774/Information Technology Capital Budgeting Tahun: 2009.

Institutional Review Board at GRCC AGC Feb Purpose of our presentation Broaden awareness of the GRCC Institutional Review Board (IRB) for human.

Northwest Portland Area Indian Health Board IDEA-NW PROJECT & DATA SHARING AGREEMENTS NPAIHB QUARTERLY BOARD MEETING JANUARY 2016 Victoria Warren-Mears,

Multistate Research Program Roles & Responsibilities Eric Young SAAESD Meeting Corpus Christi, TX April 3-6, 2005.

Housing & Career Services Department City Council PUBLIC HEARING: APPROVAL OF SUBMISSION TO HUD OF THE ANNUAL ACTION PLAN ( ) AND RELATED FUNDING.

OVERVIEW PRE AWARD From idea generation to study design Proposal development and support Proposal submission POST AWARD Account establishment Monitoring.

Introduction to Procurement for Public Housing Authorities Getting Started: Basic Administrative Requirements Unit 1.

Data Collection & Management: Observational Data Plan (ODP) & Data Management Plan (DMP) Sarai Piazza Craig Conzelmann.

CIRTL Data Sharing 10/9/15. New Opportunities The CIRTL Network Commons (CNC) offers the potential for easier access to data for evaluation purposes.

City Council March 18, A Dog Park for San Angelo Consideration of approving a proposal for a dog park as part of the new Red Arroyo Trail project.

FIELD TRAINING SESSION 2 (OPENING/CLOSING/RECONFIGURING SCHOOLS) 9:05-9:30 Ethan Taylor Dept. of Administration and Finance Coordinator of Budgets and.

Preparing our students to excel in the 21 st Century Proceeding to the next step… 1 Technology in the classrooms: “All of our boys and girls will graduate.

The Future of the Canadian Ski Council Delta Toronto West October 12, 2011.

To start the presentation, click on this button in the lower right corner of your screen. The presentation will begin after the screen changes and you.

Melissa Nipper, BEAM Business Services Coordinator

Roles & Responsibilities of an Impressive Program Governance Plan

Reasons for Auditing There are many reasons for auditing. Some examples of these reasons might be: Requested by the IRB Committee Requested by an IRB.

Paying Human Subjects Clinical Neuroscience Administrative Center (CNC)

Budget Committee April 26, 2017.

Polk Transportation Planning Organization April 14, 2011

Boundary Review Committee Milton #10 Elementary School

Project Comparison. Ward Shore Park Living Shoreline Project Follow Up to January 23 Presentation.

MODULE B - PROCESS SUBMODULES B1. Organizational Structure

How to get Tribal Permitting Authority

Faculty and Staff Research Support

RGFSCIII Procurement Request Lead Times

M E A S U R E ‘G’ P R O G R A M U P D A T E

Guide to the Single Plan for Student Achievement

FAA Center of Excellence for Technical Training and Human Performance

Sarah Santoyo, Director of Grants October 5, 2012

Step 3. Initiate Proposal

Presentation transcript:

Northwest Tribal Data Repository Updated Victoria Warren-Mears

Purpose of the Repository O The purpose of the repository is to create a library of the data from research projects conducted by the EpiCenter, Northwest Tribal College, and any data tribes would wish to have stored on their behalf that is both secure and Tribally controlled. O This meets a Federal Government requirement which states that if research is Federally Funded data must be made available.

Types of Data to Be Stored O Data bases from NPAIHB EpiCenter research projects (de-identified number based data) O NO body tissue samples are to be stored O Data stored is the data needed to answer the research questions proposed in the original research study only.

Three Options are Available 1. Board repository 2. University based repository 3. Umbrella organization data repository

Options for consideration The NPAIHB's Data Repository Planning Group examined three different possible options for the NPAIHB Data Repository's structure. O NPAIHB staff develops, establishes, and maintains its own Data Repository. O The NPAIHB contract with an existing, experienced, data repository located at or in a university. O Contract with an existing, experienced, data repository of an umbrella organization that permits each organization within the umbrella to control its data in the repository.

Costs of Options O Total Cost Estimate for In-House NPAIHB developed and run data repository. * Initial Establishment = $330,201 Annual Cost = $125,000 O Umbrella Organization Estimate O Total Cost = $5,000 per year for the repository O NPAIHB staff repository manager = $50,000 per year. * See Excel spreadsheet

Role of the Repository Manager (Umbrella Organization Scenario) O To ensure that any request for research data for secondary analysis are properly process including: O Tribal approvals submitted O PAO-IHS IRB approval O To request data pull and prepare data for use by requestor O To ensure data is properly destroyed following approved use.

Recommendations O Develop a business plan for a NW Tribal Data Repository, using the information presented. O Supplement business plan with carryover and apply for grant funding. O To meet funder requirements in the short term (1-2 years) use umbrella organization.

Tribal Delegation Discussion