Gerry O’Hanlon, Director General CSO Keynote Speech NDA Strategic Plan Launch March 11, 2010 National Disability Survey 1

Presentation overview  Background to NDS  Disability rates from Census and NDS  NDS findings on types of disability  NDS findings on participation 2

Background to NDS 3 In 2002 the NDA proposed to Government that a detailed disability survey be undertaken. During the NDA initiated work on developing a disability questionnaire using the ICF social model of disability. A small pilot survey was undertaken by the ESRI to test the questionnaire. CSO was part of the Steering group overseeing this project. Government accepted NDA proposal for a large-scale survey and asked CSO to undertake it.

Census questions Census of Population – contained 2 Questions on disability. Census questionnaires were self-completed by householder. Census questions were used to select a sample for a detailed follow- up interview-based National Disability Survey.

NDS definition of disability 5

2 Census samples 6 NDS was designed to examine in more detail the situation of persons who had a disability in the Census. = Census Disability Sample (CDS) ► disability in Census and in NDS A small sample of persons in private households who did not have a disability in the Census were also included in the NDS. = General Population Sample (GPS)

NDS sample & target population Sample and target population Achieved sample Target population Census disability sample14,518370,500 resident in private households13,868344,100 resident in communal establishments65026,400 General population sample1,5513,700,000 Total16,0694,070,500 7

Census / NDS consistency 88% of CDS private households sample had a disability in both Census and NDS (weighted). 97% of CDS non-private households sample had a disability in both Census and NDS (weighted). 89% of GPS private households sample from Census neither had a disability in the Census nor in the NDS (weighted). 8

Disability type rate per 1,000 Disability type Census Disability Sample General Population Sample Total population Seeing Hearing Speech9413 Mobility & dexterity Remembering & concentrating Intellectual & learning Emotional, psychological & mental health Pain Breathing Persons with a disability (rate per 1,000) Persons with a disability325,800423,300749,100 9

Level of difficulty Census Disability Sample General Population Sample Total population Just a little2%4%3% A moderate level31%53%44% A lot of difficulty43%35%38% Cannot do at all24%7%15% Total100% Persons with a disability 325,800423,300749, Persons reporting a disability in the Census and in NDS had higher levels of difficulty than persons who only reported an NDS disability (GPS). 33% of persons in the CDS had a moderate or lower level of difficulty. This compares with 57% who had a moderate or lower level of difficulty in the GPS sample.

Prevalence (rate per 1,000) Age group Census Disability Sample General Population Sample Total population & over Persons with a disability (rate per 1,000) Persons with a disability325,800423,300749, Persons aged 0-17 reported a disability rate of 35 per 1,000 in the CDS but reported a much higher disability rate of 75 per 1,000 in the GPS sample. The age group were the next most likely to be missed in the Census with the rate increasing from 59 per 1,000 in the CDS to 105 per 1,000 in the GPS.

Census Disability Sample Disability typeMalesFemalesTotalPersons% Seeing %50,60016% Hearing50 100%57,60018% Speech %35,30011% Mobility & dexterity %184,00056% Remembering & concentrating %113,00035% Intellectual & learning %71,60022% Emotional, psychological & mental health %110,60034% Pain %152,80047% Breathing %71,50022% Persons with a disability %325,800100% 12

Census Disability Sample Disability type Just a little A moderate level A lot of difficulty Cannot do at all Total Seeingn/a % Hearingn/a % Speechn/a % Mobility & dexterityn/a % Remembering & concentratingn/a % Intellectual & learning % Emotional, psychological & mental health % Painn/a % Breathingn/a % Persons with a disability % 13

Census Disability Sample Disability type & over Total Seeing % Hearing % Speech % Mobility & dexterity % Remembering & concentrating % Intellectual & learning % Emotional, psychological & mental health % Pain % Breathing % Persons with a disability % 14

Census Disability Sample Disability type Private household Nursing home, hospital and children's home All persons Seeing Hearing Speech93311 Mobility & dexterity Remembering & concentrating Intellectual & learning Emotional, psychological & mental health Pain Breathing Persons with a disability %100 Persons with a disability300,20025,600325,800 Average number of disabilities per person % of persons with a disability in Nursing homes, hospitals and children’s homes had a Remembering /concentrating disability compared with 32% of persons in private households. Conversely persons with a disability in Nursing homes were relatively less likely to report Pain or Breathing disabilities.

Census Disability Sample 16 Accommodation type Just a little A moderate level A lot of difficulty Cannot do at all TotalPersons Private households ,200 Nursing home, hospital and children’s home ,600 Accommodation type & over TotalPersons Private households ,200 Nursing home, hospital and children’s home ,600 63% of persons with a disability in Nursing homes were unable to do everyday activities compared with 21% in private households. 62% of persons with a disability in Nursing homes were aged 75 & over compared with 19% in private households.

Caring and Help from Other Persons 17 35% of persons with a disability had difficulty taking a bath or shower by themselves. 34% of adults with a disability had difficulty staying by themselves for a few days. People living in nursing homes, hospitals and children’s homes had higher levels of difficulty doing everyday activities: 86% had difficulty taking a bath or shower by themselves compared with 31% of persons in private households.

Caring and Help 18 Around 56% of persons with a disability in private households received help with their everyday activities. The most common source of help was from family members who lived with the person - 42% of persons in private households who had a disability received such help.

Caring and Help 19

Attitudes of Other People 20 A high proportion of adults with a disability in private households felt supported by the attitudes of their Family (90%), Health and care staff (87%) and Friends (79%). Three-quarters (76%) of adults with a disability never avoided doing things because of the reactions of other people, 17% sometimes avoided doing things and 7% frequently or always avoided doing things. Older people were less affected by the attitudes of others.

Attitudes of Other People 21

Transport 22 Difficulty getting on and off public transport vehicles was given by 16% of persons aged 5 & over in private households as a reason for not using or having difficulty using public transport. Difficulty transferring from one service to another was the next most cited reason (12%), while difficulty getting to the public transport was reported by 9%.

Transport 23

Built environment 24 One-third of adults with a disability in private households had some difficulty doing routine tasks inside their home because of their disability, while a further 19% had a lot of difficulty. 43% of men in private households had difficulty doing routine tasks within the home compared with 59% of women. A lack of money was the most common reason for not having specialised features in the home with over half (52%) of adults in private households with a disability citing this as a reason.

Built environment 25 Bathroom adaptations were the most used adaptation in the home with 20% of persons with a disability in private households using them. This proportion rose to 45% of persons aged 75 & over. A further 12% of persons with a disability in private households needed but did not have bathroom adaptations. Over one-third of adults in private households had access difficulty with Socialising in public venues (37%), Moving out and about in their local area (36%), and Availing of general services such as shopping and banking (37%).

Built environment 26

Education 27 Around one third (32%) of respondents aged 5 & over whose disability limited or affected them before they completed their full-time education indicated that they had stopped their education sooner than they intended because of their disability. 28% of all persons with a disability were limited or affected by their disability before they completed their full-time education. 14% of persons aged 5 & over were affected before school age (17% of males and 12% of females).

Education 28

Work and Training 29 Around 48% of adults whose disability limited or affected them before the age of 65 were Unable to work due to permanent illness or disability. Of the adults with a disability at work, whose disability limited or affected them before 65 years of age, over half (52%) worked in the Private sector and about one-third (31%) in the Public sector with the remainder working in sheltered employment or a scheme of some type.

Work and Training 30

Social participation 31 Around half of persons with a disability in private households experienced difficulty with Going to town shopping (56%), Going away for a break or holiday (53%), Taking part in community life (54%) and Socialising in a public venue (49%). Family (87%) and Other friends (67%) provided the main social company for people with a disability living in private households. People in nursing homes, hospitals and children’s homes depended much more on Carers/disability service providers (82%) and Friends with a disability (47%) for social interaction.

Sport and Exercise 32 Overall, 45% of males with a disability participated in sports or physical exercise in the previous four weeks compared with 36% of females. Just over 17% of males with a disability exercised 5 or more times per week compared with 11% of females. The next most popular frequency for participation in sport/exercise was 1-2 times per week (13% of males and 12% of females).

Health and Stamina 33 People with a disability rated their general health as Very good (15%), Good (35%), Fair (38%), Bad (10%) and Very bad (3%). A higher proportion of those living in private households reported that their health was Very good (16% compared with 6% in nursing homes, hospitals and children’s homes). Twelve percent of persons with a disability indicated that their stamina was Very good. A further 30% said that their stamina was Good, Fair (38%), Bad (15%) and Very bad (5%).