The Road to Collaboration Judy Beckett Louise Bryant Academic Unit of Psychiatry & Behavioural Sciences, University of Leeds Academic Unit of Psychiatry and Behavioural Sciences
Partnership working Levels of user involvement Control: users design, undertake & disseminate result of study, users have decision making power. Collaboration: active ongoing partnership throughout the study, sharing of power in decision making. Consultation: lowest level of involvement, no sharing of power in decision making. From: Involve (2004), Faulkner (2004)
Acceptability & feasibility of an A&E advocacy service for self-harm Project idea initiated by Louise Pembroke: experience as a user of mental health and A&E services in relation to self- harm.
Research partners Management group: Louise Pembroke, Allan House & Hilary Dyter (LMHAG) Research Team: Louise Bryant (PI), Judy Beckett, Helen Buckland & Cath Sweeney (researchers with experience of using A&E following self-harm) NHS partner: A&E consultant, Stephen Bush
Process of involvement Management group agreed principles of involvement Recruitment of staff with personal experience of self-harm Training Data collection (interviewing) Data input, analysis and write-up Evaluation of involvement
Evaluation of involvement Telford et al (2004) Principles of successful consumer involvement in NHS research Questionnaires developed by SWYMH NHS Trust – ‘staff’ and ‘service user’ versions Full report available from
Workshop activity
Reflection on the evaluation tools Principles of involvement (Telford et al) Successful involvement requires more than adherence to the 8 principles No reflection of the power relations in collaborative research
SWYMHT evaluation questionnaire Responses are not anonymous Personal reflections not independent evaluation