CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human Development and Disability “Aligning our Future” by José F. Cordero, MD, MPH Assistant Surgeon General Director, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention CityMatch Conference, September 14, 2004, Portland Oregon Promoting the health of babies, children, and adults, and enhancing the potential for full, productive living

CDC’s Organization Prior to Future’s Initiative

Coordinating Center for Health Promotion Coordinating Center for Environmental and Occupational Health and Injury Prevention Coordinating Center for Infectious Diseases Office of Terrorism Preparedness and Response Office of Global Health Coordinating Center for Public Health Information and Services Office of the Director People Living in All Communities PartnersAlliances Channels Stakeholders Operational Perspective of the New Customer Centric CDC Organizational Chart

Coordinating Center for Health Information and Services Business Public Health Systems Health Care DeliveryFederalAgenciesEducation National Center for Health Marketing National Center for Public Health Informatics National Center for Health Statistics Coordinating Center for Infectious Diseases NCID, NCHSTP, NIP Coordinating Center for Health Promotion NCCDPHP, NCBDDD, Genomics Coordinating Center for Environmental and Occupational Health and Injury Prevention NCEH/ATSDR NCIPC, NIOSH Office of Global Health Office for Terrorism Preparedness & Emergency Response Strategy and Innovation Innovation Chief of Science Chief of Public Health Improvement Workforce and Career Development Customers SAFER  HEALTHIER  PEOPLE Executive Leadership Team Management CouncilExecutive Board Partners Alliances Stakeholders Office of the Chief Operating Officer Office of the Chief of Staff CDC Washington Director Channels

Health Protection Goals Preparedness People in all communities will be protected from infectious, environmental, and terrorist threats. Health Promotion & Prevention of Disease, Injury, and Disability All people will achieve their optimal lifespan with the best possible quality of health in every stage of life

The Role of Coordinating Center for Health Promotion Minimize silos Identify and capitalize on opportunities for coordination of research Decrease duplication and redundant activities Provide leadership, management, and accountability for cross-center goals

Why the Futures Initiative Matters Health impact CDC—a customer-centric organization Public health research Leadership for the nation’s health system Global health Effectiveness and accountability

Quote from CityLights “MCH specialists… look for a door at CDC marked ‘MCH’ as the point of entry to the wealth within. Finding none, they face the daunting prospect of navigating a maze of programs, people and projects to access and effectively use CDC’s many wonders - without a map.”

Commitment to scientific excellence Commitment to partners Integrity and stewardship of the public’s trust Roles of centers What is not changing

NCBDDD Strategic Planning

Promote healthy birth outcomes Promote healthy birth outcomes Ensure optimal child development and well-being through early early identification and intervention Ensure optimal child development and well-being through early early identification and intervention Ensure a healthy environment and appropriate emergency response Ensure a healthy environment and appropriate emergency response Prevent secondary conditions and promote health of adolescents and adults Prevent secondary conditions and promote health of adolescents and adults Address health disparities For populations served by the center’s mission, we will: NCBDDD Focus Areas

Center Focus Area 1 Promote Healthy Birth Outcomes Primary prevention of adverse congenital and developmental outcomes with origins in the preconception, prenatal, and perinatal periods. Research and surveillance into the causes and risk factors associated with these outcomes.

Folic Acid: A Prevention Program Fetal Alcohol Syndrome Prevention Program Kernicterus in Full-Term Infants Birth Defects State Programs Healthy Birth Outcomes

Center Focus Area 2 Ensure Optimal Child Development and Well-Being Through Early Identification and Intervention Primary and secondary prevention of adverse physical, social, emotional, and developmental outcomes in children from birth through pre-adolescence.

Developmental Milestones: Target Audiences Primary Audiences: Child health care providers, including pediatricians, family physicians, PAs and NPs, nurses, parents of Children Ages 4 and Younger Secondary Audience: Childcare providers, including day care workers, Head Start, and preschool teachers

Center Focus Area 4 Address Health Disparities Research and intervention in promoting health equity across the lifespan, regardless of disability status, race, ethnicity, socio-economic status, or age. Study of differential incidence, treatment access, and survival rates among special populations, including infants with birth defects or genetic conditions, children with developmental disabilities, people with bleeding disorders, and people with physical and mental disabilities. Measurement and improvement of quality of life and participation in social and community activities.

Year & quarter of birth Pre-fortificationOptional fort.Mandatory fortification Impact of Fortification by Race/Ethnicity (Prevalence of Spina Bifida and Anencephaly) Prevalence (per 10,000) Hispanic White Black

Spanish-language Folic Acid Campaign Intervention Strategy Mass Media Interpersonal Communication A “surround sound” approach AND

Washington Montana Oregon Nevada California Utah Arizona New Mexico Colorado Idaho Wyoming North Dakota South Dakota Minnesota Iowa Nebraska Kansas Texas Florida Mississippi Louisiana Alabama Georgia South Carolina North Carolina Virginia Maine New York Michigan Wisconsin Oklahoma Missouri Arkansas Tennessee Kentucky Illinois Indiana Michigan Ohio West Virginia DC Maryland Delaware New Jersey Vermont Rhode Island Connecticut New Hampshire Massachusetts Alaska Hawaii Pennsylvania U.S. Virgin Islands SFACES Communities Puerto Rico Guam Bakersfield Miami San Antonio Los Angeles Sacramento New York Denver Las Vegas Intervention Comparison

SFACES: Consumption from multivitamin or folic acid alone Survey year Percentage of respondents Intervention Multivitamin Comparison Multivitamin Intervention Folic acid Comparison Folic acid

CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Disability and Health Hereditary Blood Disorders THANK YOU ! Promoting the health of babies, children, and adults, and enhancing the potential for full, productive living