It’s About How You LIVE A National Campaign to Improve Care at the End of Life

Ideally…Wouldn’t it be great if Community organizations and health care providers were working together to improve end-of-life care (EOLC) People were aware of EOLC issues and knew where to find resources before a crisis Hospices, palliative care organizations, coalitions and others had resources to conduct community outreach initiatives

IT IS HAPPENING!

Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has. Margaret Mead

Wake Up Call!  Teachable moment like never before! –Terri Schiavo –Pope  If not us, who? –Bioethicists? –Religious leaders? –Activists? –Journalists? –Academics? –Acute care physicians? –Lawyers

Sponsored by the National Hospice and Palliative Care Organization (NHPCO) Focused on improving access to quality end-of-life care Provides a unified message across the country to empower consumers to take action Funded by the Robert Wood Johnson Foundation Support for Caring Connections was provided by a grant from The Robert Wood Johnson Foundation, Princeton, New Jersey. It’s About How You LIVE

LIVE Message L earn about your options I mplement plans to ensure your wishes are honored V oice your decisions E ngage others

Not aware of end-of-life options Willing to share what you’ve learned Learn about your options Implement a planVoice your decisionsEngage others The LIVE Continuum

A National Campaign A series of coordinated actions Standard messages Flexible resources that can be adapted Implemented to focus on the unique needs of the community

One Voice Consumers can hear one message promoting awareness and action People demanding improvements in and earlier access to quality end-of- life care

Campaign Benefits Complements existing outreach and marketing materials Supplements educational programs What is hospice? Advance care planning Pain Supporting caregivers

LIVE Campaign Goals Stimulate dialogue in communities about the need for improved end-of- life care. Provide information to consumers about how to access end-of-life care resources Encourage action to improve end-of- life care

Campaign Toolkit Outline Delivered in a toolkit format - FREE –CD-ROM –Online ( Includes practical strategies, tools and resources Has flexible components to modify and add information about local initiatives

Toolkit Resources PowerPoint presentation Consumer resources Funding ideas – plus a donor solicitation letter Event planning guide Marketing materials – Advertising, PSAs and flyer/poster templates Press kit – Press release, Op. Ed Evaluation tools….and more

LIVE Partners

LIVE Partner Benefits E-updates as new resources are developed LIVE Rewards program recognizing excellence Free Gift Cards for NHPCO’s Consumer Marketplace product line Free audio conferences on outreach and engagement

HelpLine Web site – Consumer education materials and advance directives NHPCO Consumer Resources

Why Should We Join LIVE? Receive FREE community outreach and education resources Participate in free trainings about the LIVE campaign, outreach and engagement Be part of a unified message – with your local spin It’s FREE!

You Can Help! Let others know about the campaign at every opportunity Connect members to campaign and resources available at Refer consumers to NHPCO’s HelpLine and/or

Live so you don’t regret the things you have done or wish that you had acted differently. Live life honestly and fully. Live. Elisabeth Kübler Ross It’s About How You LIVE