“ Who We Are”

Objectives From this webinar we hope you will be able to: From this webinar we hope you will be able to: Define the role of ESRD networks Define the role of ESRD networks Discuss the different departments of NW 14 and their responsibilities Discuss the different departments of NW 14 and their responsibilities Describe the function of the Patient Advisory Council (PAC) and the importance to patients. Describe the function of the Patient Advisory Council (PAC) and the importance to patients.

ESRD Network of Texas “ Who We Are” webinar Glenda Harbert, Executive Director Kelly Shipley, Quality Improvement Director Nathan Muzos, Information Management Director Debbie O’Daniel, Office Manager Angie Wieler, Quality Improvement Coordinator Treneva Parks, Patent Services Coordinator Andrea Fichtner, Outreach Coordinator Doris Wilson, Data Clerk/Receptionist Leigh Husni, Special Projects Carolyn Atkins, Quality Improvement Nurse Kathleen Prewitt, Data Clerk Grant Kingsley, Social Worker

What about ESRD Networks?

ESRD Network Program Established in 1978 by Congress Established in 1978 by Congress Currently 18 Networks Currently 18 Networks NW 14 is and most NW’s are non-profit organizations governed by volunteers from the renal community NW 14 is and most NW’s are non-profit organizations governed by volunteers from the renal community 3-year contracts with Statement of Work defined by CMS 3-year contracts with Statement of Work defined by CMS Funding from 50 cents withheld per treatment Funding from 50 cents withheld per treatment

Goals For the ESRD Networks Improve quality and safety of dialysis related services Improve independence, quality of life and rehabilitation (to the extent possible) through transplantation, use of self-care modalities, in- center self care through end of life Improve collaboration with providers to ensure achievement of goals through most efficient and effective means possible, recognizing differences and associated possibilities/capabilities

Improve collection, reliability, timeliness, and use of data to measure processes of care and outcomes; maintain patient registry Improve patient perception of care and experience of care and resolve patient’s complaints and grievances Goals For the ESRD Networks

Mission Support quality dialysis and kidney Support quality dialysis and kidney transplant healthcare through transplant healthcare through patient services, education, quality patient services, education, quality improvement and data exchange. improvement and data exchange.

Nephrologists Dialysis and Kidney Transplant Patients Transplant Surgeons Nurses Dietitians Social Workers Executive Committee Nephrologists Nurse Facility Administrator Patient Medical Review Board ESRD Network of Texas Volunteer Boards/Committees Patient Advisory Committee In-Center Hemo Peritoneal Dialysis Transplant Caregivers

Nephrologists Ruben Velez, MD, Chair Robert Hootkins, MD, Chair Emeritus Donald Molony, MD Clyde Rutherford, MD Mohanram Narayanan, MD Navid Saigal, MD Mazen Arar, MD Samhar I. Al - Akash, MD Transplant Surgeon Osama Gaber, MD Greg Jaffers, MD Technician John Dahlin Executive Committee Melvin Laski, MD, Chair Manny Alvarez, MD, Chair Elect Richard Gibney, MD, Chair Emeritus Robert Hootkins, MD Larry McGowan, BA Laura Yates, RN,CNN Leigh Anne Tanzberger Charles Orji, MD Nurses Camille May, RN, CNN Kaylynne Duran, RN Trish White, RN, CNN Debbie Heinrich, RN, CDN Dietitians Jane Louis, RD, LD Jennie House, RD, LD Social Workers Mary Beth Callahan, LMSW Martha Donaho, LMSW Patients Anna Gonzalez Diane Morgan Medical Review Board End Stage Renal Disease Network of Texas Committees

The 18 ESRD Networks serve 386,940 living dialysis patients as of 12/31/2006 4,886 Home Hemodialysis 29,335 Peritoneal Dialysis 199,419 new patients in ,580 dialysis and 244 transplant facilities

37,595 patients at the end of March dialysis and 23 transplant facilities 8 Full time and 4 part time staff ESRD Network of Texas also known as Network 14

The second largest Network in number of dialysis patients (35,638) at year end behind Network 6 (37,143) The third largest Network in number of dialysis Providers (456) behind Network 6 (561) and Network 9 (490) at year end 2009

The ESRD Networks Provide...  Information Management  Quality Improvement  Community Information and Resources  Patient Services  Administrative

Information Management (Data ) Department Maintaining national ESRD registry Maintaining national ESRD registry 2728 Medical Evidence Form 2728 Medical Evidence Form Patient Activity Roster Patient Activity Roster 2746 Death Form 2746 Death Form 2744 Facility Survey 2744 Facility Survey Facility information/services Facility information/services Reporting to the renal community on trends in ESRD care Reporting to the renal community on trends in ESRD care

Quality Improvement Department Collecting and Distributing data feedback reports to facilities Collecting and Distributing data feedback reports to facilities Clinical Performance Measures Clinical Performance Measures Quality of Care Indicators Report Quality of Care Indicators Report Transplant Rates Transplant Rates Vocational Rehabilitation Rates Vocational Rehabilitation Rates Dismissed Patients/Complaints Dismissed Patients/Complaints Conducting QI projects and activities on specific areas of care Conducting QI projects and activities on specific areas of care Fistula First Project Fistula First Project Clinical Performance Measures (CPM) Clinical Performance Measures (CPM) Dismissed Patients Initiative Dismissed Patients Initiative Transplant education/encouragement initiative Transplant education/encouragement initiative

Quality Improvement Department Providing professional education Providing professional education Annual meeting Annual meeting Fistula First Conferences Fistula First Conferences Professionalism, DPC Professionalism, DPC Offering technical assistance to facilities Offering technical assistance to facilities QI In-services/Audits/Tools QI In-services/Audits/Tools Data form completion Workshops Data form completion Workshops Community Practice Community Practice Difficult Patients/Situations Difficult Patients/Situations Rules/Regulation Rules/Regulation

Patient Services Department Resolving complaints Resolving complaints Providing patient education Providing patient education Assisting patients to locate dialysis services Assisting patients to locate dialysis services

Community Outreach Services Patient Newsletters Patient Newsletters Professional Newsletters Professional Newsletters Disaster Coalition Disaster Coalition Outreach to Patient and Professional Organizations Outreach to Patient and Professional Organizations Patient Advisory Committee (PAC) liaison Patient Advisory Committee (PAC) liaison Network Patient Representative (NPR) Network Patient Representative (NPR)

Administrative Department Information on other Networks Information on other Networks Assistance with Federal and State rules and regulations Assistance with Federal and State rules and regulations Department handles accounting issues, purchasing, Network office equipment repairs, Network staffing issues (Human Resources) Department handles accounting issues, purchasing, Network office equipment repairs, Network staffing issues (Human Resources) Information on opening of new facilities Information on opening of new facilities Media request and legal issues Media request and legal issues

We’re Here to Help ESRD Patients and Facilities! Questions or Concerns Questions or Concerns Patient Education Resources Patient Education Resources Professional Education Resources Professional Education Resources Assistance – Completing Forms Assistance – Completing Forms Clearinghouse and Referrals! Clearinghouse and Referrals! Assisting with patient and/or facility concerns, complaints, or grievances. Assisting with patient and/or facility concerns, complaints, or grievances.

Gloria Lang-Jones, Chair, San Antonio, Texas Jorge Garcia, Chair Elect, McAllen, Texas Ana Rodriguez, Secretary, Kyle, Texas Dianne Thomas, Activities Coordinator, Dallas, Texas Frances Carroll, Lubbock, Texas Gigi Cooper, Houston, Texas Anna Gonzalez, San Antonio, Texas Danny Knight, Waxahachie, Texas Perry Sanders, Arlington, Texas Leigh Anne Tanzberger, Sugar Land, Texas Linda Thompson, Yorktown, Texas Lesia Timmons, Tyler, Texas Patient Advisory Committee

Please welcome Ana Gonzalez, past PAC chair

Please welcome Danny Knight PAC Member-At-Large

How do I become a PAC member  Send a letter of interest to the Network office AND  Have your facility Social Worker, your facility administrator, OR your Nephrologist send the Network office a letter of recommendation

The ESRD Network of Texas, Inc McEwen Rd, Suite 350 Dallas, Texas * Fax * Patient Toll Free Number *