Missouri State Team
Missouri: Overview of the ALL 13% 65% ( 62,498 ) Enrolled HCBS DD Services State DD Services Targeted Case Management 19% Based on 1.58% prevalence of million citizens, US Census 95,498 estimated Missourians with Developmental Disabilities 3% ICF/DD
Current Influences in Missouri New Division of DD director Valerie Huhn Restructure of DDD Regional Offices Partnership for Hope Self-Directing DD Supports HCBS rule and transition plan Mo. DD Council commitment to supporting individuals and families Flexibility of County Boards (SB40 boards) to try new things
Discovery and Navigation Long Term Services and Supports (LTSS) – Front Door – Consistent messaging – Support Coordination and planning Transition to Adulthood – Employment – Alternatives to Guardianship Voice of Individuals and Families
Long Term Services & Supports Policies and Systems Updated DDD Quality Outcomes in line with LifeCourse Referring families directly to MOF2F at the DDD front door Sustaining 10 years of folder dissemination
Long Term Services & Supports Organizations & Professionals Embedding LifeCourse in Support Coordinator Training and Coaching Piloting LifeCourse tools with PCS (County Board) & scaling up Established and sustaining LifeCourse Tools and Practice workgroup
Long Term Services & Supports Individuals & Families Piloted Family LifeCourse Workshop with St Louis Arc Creating Individual/Family Portfolios
Transition to Adulthood Linked COP and Show Me Careers grant activities Changed DESE template for Transfer of Rights at age 18 letter to reflect choice of guardianship alternatives Policies and Systems
Transition to Adulthood School districts including LifeCourse Transition handout with “the letter” Disseminating LC folders and booklets at school conferences and events Training LOQW employment counselors on LifeCourse framework and tools Arranged Guardianship Options and Alternatives into LifeCourse format Organizations & Professionals
Transition to Adulthood Embedded LifeCourse in Columbia Community Transition Team (CTT) conference for students and families Created and replicated Youth Leadership Academy based on LifeCourse Framework Individuals & Families
Voice of Individuals & Families Policies and Systems DD Council conducted restructure survey and listening sessions with a comprehensive report DD Council infused LC into Partners in Policymaking Program DD Council strategic planning around LC DD Council held HCBS rule public forums
Voice of Individuals & Families Organizations & Professionals Engaging LifeCourse Affiliate Network Arc with support from DDC hosted conference on DDD restructure and redesign proposal Integrating LifeCourse into F2F HIC and Parent to Parent
Voice of Individuals & Families Individuals & Families Held Partners in Policymaking Alum LifeCourse event Actively engaged LifeCourse Network Stakeholders
Connecting and Networking Re-energizing and re-focusing the Regional Advisory Councils (RACs) Establishing Family Network and Peer Support COP work group Expanding the Family LifeCourse Workshop and training facilitators Happening Over Next Few Months
Goods and Services Coming Soon! Exploring Respite Providing LifeCourse training for provider agencies and direct care workers
Missouri’s Lessons Learned Change is hard and it takes a long time Excitement and Innovation is contagious People are ready and excited about and ready for the message and concrete, practical tools People are more apt to engage in things if it’s easy or simplified Scheduled team meetings or phone calls give needed structure Missouri is different – lines get blurred – we were engaging in COP activities before there was a COP!
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