1 IOA AROUND THE WORLD

2 IOA REGIONS ASIA15 countries EUROPE 42 countries NORTH AMERICA & CARIBBEAN 8 countries SOUTH AMERICA9 countries SOUTH PACIFIC2 countries

3 Points To Note The Asian region is easily the largest in the IOA in terms of population and therefore of potential numbers of Ostomates. Ostomy Services and Stoma Care Nursing is by and large, sadly lacking, inadequate or totally non existent.

4 Management of Stoma

5 Hospital in Ho Chi Minh City

6 OUTPATIENT DEPARTMENT

7 Nurses at the training meeting

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10 MONGOLIA

11 National Cancer Center Mongolia

12. Traditional Nomadic tents called GER

13 Traditional Ger The traditional life style is one Ger- one Family basis. In another words the GER has only one round shaped common room in which everything together like kitchen, beds, dining and living area. An average family has 4-6 people (couple and 2-4 children). There is no running water, shower, utility and rest room in GER. A common toilet is outside in a fence some m away from the GER.

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15 A common toilet is outside in a fence some m away from the GER.

16 TWINNING Following the founding of the association in Mongolia, Japan stepped in to help. A delegation from the Japanese Association visited Japan and as a result a twinning arrangement has been agreed upon.

17 Responsible Factors Training of Doctors & Nurses Healthcare Authorities Healthcare Authorities Ostomy Products Ostomy Products Management of Stoma Management of Stoma Ostomy Associations Ostomy Associations Government Agencies Government Agencies Patients & Society Patients & Society

18 Ostomates Requirements Information about his / her diseasesInformation about his / her diseases Physical Requirements and SupportPhysical Requirements and Support Post Stoma RehabilitationPost Stoma Rehabilitation Back to Pre stoma life Back to Pre stoma life

19 Health Care Authorities Hospitals – Stoma Care Not Priority Hospitals – Not Sponsoring Nurses For Training Stoma Care Clinics – do not Exist

20 Training of Nurses Insufficient Training Centers Insufficient Trained Nurses Insufficient Information During General Nursing Training Trained Nurses – Not Practicing Stoma Care

21 Follow Up Clinics

22 WCET Training Schools Austria – 1 School Austria – 1 School Australlia – 4 Schools Australlia – 4 Schools Belgium – 1 School Belgium – 1 School Brazil – 3 Schools Brazil – 3 Schools Canada – 1 School Canada – 1 School China – 4 Schools China – 4 Schools Finland – 2 Schools Finland – 2 Schools France – 4 Schools France – 4 Schools Germany – 2 Schools Germany – 2 Schools Hong Kong – 2 Schools Hong Kong – 2 Schools Hungary – 1 School Hungary – 1 School Italy – 1 School Italy – 1 School India – 1 School India – 1 School Indonesia – 1 School Indonesia – 1 School Japan – 2 Schools Japan – 2 Schools Korea – 2 Schools Korea – 2 Schools Malaysia – 1 School Malaysia – 1 School Mexico – 1 School Mexico – 1 School New Zealand – 1 School New Zealand – 1 School Norway – 1 School Norway – 1 School Slovenia – 1 School Slovenia – 1 School Spain – 2 Schools Spain – 2 Schools Sweden – 1 School Sweden – 1 School Thailand – 1 School Thailand – 1 School United Kingdom – 4 Schools United Kingdom – 4 Schools USA – 6 Schools USA – 6 Schools

23 CHINA There are about 100 thousand persons who receive ostomy surgery every year. Groups in China the GuangXi Stoma Association, the Guangzhou Stoma Association, the Beijing Stoma Association, the Hangzhou Stoma Association the Shanghai Stoma Association.

24 DIFFICULTIES Ostomates are scattered around a vast area No regular funding No public funding for ostomy equipment No outside agency support; only support is from the Hong Kong Stoma association. Coloplast ConvaTec

25 Training of Nurses In 1994, 2 ETs, Trained in Australia In 2000, 5 ETs, Trained In Hong Kong In 2007, 120 ETs, Trained in China at ET School in Guangzhou China has more than 100,000 ostomy surgeries per year

26 ET Training of Nurses In India

27 KLES Hospital, Belgaum, India

28 Quality of Ostomy Products

29 SIGN AT AIRPORT MIAZAKI

30 OSTOMY TOILET

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32 JAPAN In 1977 Invalidity Pension was provided to ostomates until the age of 65 years. In 1979 ostomates were recognized as Handicapped persons. Appliances are readily available across Japan, they are very expensive. Being recognized as handicapped, ostomates can get reimbursement from the government.

33 JAPAN This reimbursement is subject to how much the FAMILY income is. It is not based on how much the individual ostomate earns but the total income of the household. The reimbursement that is allowed for low income households is colostomate /ileostomate 8,000 yen per month B537; urostomate 13,000 yen per month B 686

34 Stoma Care in Italy 50,000 Ostomates in Italy 500 fully trained ET Nurses 2000 trained nurses in stoma care across all provinces of Italy

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36 For Knowledge – Will Travel From Bolivia to Argentina 6:30 am - all one day and all one night, and all another day - Teresa and Vittorio, two ostomates travel to get information at the ALADO MEETING

37 Asociación Boliviana de Ostomizados ABO Década de los años 70 PROBLEMAS Falta absoluta 100% de material para estomas improvisación Arq. Teresa Antequera Peña Vice-presidenta de ABO Vice-presidenta de ABO

38 ABO Década de los años 70 PROBLEMAS Y CONSECUENCIA 1.- Bajo conocimientos de los médicos en el implante y el manejo de estomas. Arq. Teresa Antequera Peña Vice-presidenta de ABO Necrosis de transversostomía Prolapso de transversostomía Y mala ubicación del estoma Y mala ubicación del estoma Asociación Boliviana de Ostomizados

39 Stoma Care Training of Nurses In Bolivia

40 Ostomates Waiting to see Stoma Nurse

41 Ostomy Products Knowledge About Products Among Doctors & Nurses Availability of Products Quality of Products Economics of Products

42 Knowledge About Products Among Doctors & Nurses

43 Ostomy Products Knowledge About Products Among Doctors & Nurses

44 Ostomy Products

45 Ostomy Products In Children

46 Economically Under Privileged

47 Education & Taboos

48 Availability of Ostomy Products

49 Economy & Ostomy Products

50 Economy & Ostomy Products

51 Quality of Ostomy Products

52 Publications & Media Ostomy Journals Teaching aids Websites – Discussion forums on internet World Ostomy Day Reports

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54 Publications

55 A common toilet is outside in a fence some m away from the GER.

56 22 Member Associations in Australia with some 30,339 declared members. activities are to promote the general welfare of ostomates, to collaborate with the government on the operation of the Stoma Appliance Scheme,

57 Stoma Appliance Scheme ACSA provides advice, support and guidance on the distribution to members of Associations of in excess of $40M of ostomy appliances and related products. Scheme continued to operate at this high level of efficiency under the guidance of the Executive, Associations and the Stoma Appliance Officers.

58 ACSA maintains overall responsibility for the day to day operation of the Scheme and undertakes most of the administrative duties. Operational issues requiring a decision will be referred to ACSA in the first instance.

59 FORMING AND SUSTAINING OSTOMY GROUPS  A strong and active Ostomy Association is the key to the rehabilitation of Ostomates worldwide.  Everyone familiar with ostomy matters knows that without a safe appliance system there is no way to rehabilitation; no way back to a normal life for an ostomate.

60 FORMING AND SUSTAINING OSTOMY GROUPS It must continue to be the #1 task for IOA to initiate and promote the foundation of an Ostomy Association if one does not exist.

61 The Role of IOA IMPROVE PUBLIC AWARENESS OF IOA THROUGH AN EXPANDED WEBSITE and IOA TODAY.

62 The Role of IOA COLLABORATIONS WITH THE MEDICAL COMMUNITY COLORECTAL SURGEONS WCET ALLIED AGENCIES INDUSTRY

63 Funding Projects – Lions For Stoma Care

64 Lions & FOW Canada

65 Lions & FOW Canada

66 I Thank You for the opportunity to be with you today. If I can be of any help to you at all, you can reach me at: