A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities funded by the US Department of Health and Human Services, Administration on Children and Families, Administration on Developmental Disabilities 1AUCD Pre-Conference Workshop9 November 2008

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Introduction: National Training Initiative Grants Jennifer Johnson Administration on Developmental Disabilities Administration for Children and Families 9 November 2008AUCD Pre-Conference Workshop2

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Process for Identifying Priority Areas  Meeting of experts in February  Major recommendations: Primary topics Large-scale projects

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities What do we mean by ‘scaling up self- determination’  Developing tools for using self-determination knowledge: In multiple settings and contexts Across the age-span By various stakeholders

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Essential Features  Coordination of efforts through partnerships. UCEDDs National organizations representing individuals with developmental disabilities, parents and guardians, siblings, and culturally and linguistically diverse populations.  Integration with other efforts with other national initiatives To promote coordination Identify other entities implementing projects related to self-determination  Sustainability. An expected outcome is the sustainability of efforts past the five-year grant period. Ensure continued use of the training resources, updates and modifications to the materials, and continued access to the materials by members of the public. Have a sustainability plan

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Phase I: Research and Planning.  Gathering and analyzing information from current literature and on State and Federal initiatives  Identify promising models and practices; gaps and variance in information and potential areas for cross-collaboration with other national initiatives.  Planning for sustainability  Products: Summary of findings Final plan for Phases II and III, including the strategies that will be used to sustain the project and the plan for integrating the project with other national initiatives.

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Phase II: Develop and Test a National Training Program.  Use evidence to develop and test a national training program  Key features: Be developed with input from individuals with developmental disabilities, including youth, young adults, and adults; and family members, including parents, siblings, guardians, and other relatives. Use multiple traditional and non-traditional modalities to maximize accessibility and outreach, particularly to those who are hard to reach. Be culturally competent in all aspects, including the modalities used. Promote the process of enhancing post-secondary education opportunities for youth and young adults with developmental disabilities.  Products: The National Training Program Lessons learned from the pilot and strategies for adapting the National Training Program to various contexts Follow principles of universal design

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Phase III: National Implementation and Transition to Sustainability.  Partnering with the ADD Technical Assistance Centers and other national organizations for large scale, nationwide implementation of the National Training Program.  Utilize traditional and non-traditional marketing strategies to maximize outreach.  Transition to maintenance of the project over time.

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Overview of Gateway to Self-Determination Carl Calkins Andy Bacon Tamar Heller 9 November 2008AUCD Pre-Conference Workshop9

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Beliefs Key to this initiative are the beliefs upon which this grant was developed – that development of self- determination is: a lifelong process, a means to obtaining an improved quality of life, Viewed in a social-ecological framework, Guided by research to practice, and most importantly – that people with developmental disabilities must be equal partners in the process. 10AUCD Pre-Conference Workshop9 November 2008

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Goal The overall goal of this project is “to establish a sustainable, evidence-based training system that enhances self-determination training programs that lead to quality of life outcomes for individuals with developmental disabilities throughout the lifespan.” 11AUCD Pre-Conference Workshop9 November 2008

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities AUCD Pre-Conference Workshop12

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities DD Act Definition of Self-Determination Activities Activities that result in individuals with developmental disabilities, with appropriate assistance, having:  the ability and opportunity to communicate and make personal decisions;  the ability and opportunity to communicate choices and exercise control over the type and intensity of services, supports, and other assistance the individuals receive;  the authority to control resources to obtain needed services, supports, and other assistance;  opportunities to participate in, and contribute to, their communities;  and support, including financial support, to advocate for themselves and others, to develop leadership skills, through training in self-advocacy, to participate in coalitions, to educate policymakers, and to play a role in the development of public policies that affect individuals with developmental disabilities. AUCD Pre-Conference Workshop13

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities 9 November 2008AUCD Pre-Conference Workshop14 Carl F. Calkins, Ph.D., Co-PI University of Missouri Kansas City Institute for Human Development (UCEDD) Michael Wehmeyer, Ph.D., Co-PI Kansas University Center on Dev Disabilities (UCEDD) at the University of Kansas UCEDD Leadership Consortium Andy Bacon, Ph.D. Westchester Institute for Human Development (UCEDD) at New York Medical College Tamar Heller, Ph.D. University of Illinois Chicago Dept of Disability and Human Development (UCEDD) Hill Walker, Ph.D. University of Oregon Center on Human Development (UCEDD)

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities AUCD Pre-Conference Workshop15

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Alliance Members Self-Advocates Becoming Empowered the Association of University Centers on Disability including the Council on Community Advocacy the National Leadership Consortium College of Direct Support/Minnesota UCEDD National Association of Councils on Developmental Disabilities National Disability Rights Network National Association of State Directors of Developmental Disabilities Services the National Sibling Network National Family Voices including Kids as Self-Advocates 9 November 2008AUCD Pre-Conference Workshop16

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Self-Determination Across the Lifespan  Early Childhood  School Age  Adult  Aging 9 November 2008AUCD Pre-Conference Workshop17

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Self-Determination and Key Players in an Individual’s Life  Families  Siblings  Direct Support Workers  Educators 9 November 2008AUCD Pre-Conference Workshop18

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Phase I: Overview of Planned Activities  Approach to Literature Review  Life Chances Planning Tool  Mapping gaps in curricula and lack of access  National Self Determination Guide 9 November 2008AUCD Pre-Conference Workshop19

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Phase I: Discussion and Feedback  What types of SD training are available for self- advocates, parents, sibling, providers, or others in your state/community? What’s working and what’s not?  Who are the people that are most in need of training that are not being reached and why? 9 November 2008AUCD Pre-Conference Workshop20

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Phase II: Overview of Planned Activities  Overview of planned specialty curricula to be developed  Examples: Abuse and Neglect, Siblings 9 November 2008AUCD Pre-Conference Workshop21

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities State Demonstrations  Complete an SD Self-Assessment  Identify Needed SD Curricula  Develop Implementation Plan  Form State SD Supporting Coalitions  Evaluate Outcomes 9 November 2008AUCD Pre-Conference Workshop22

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Gateway Web Portal  Dynamic Website  History of Self-Determination movement and research  SD Curricula Products  Technical Assistance Resources  Evidence-Based Practices  Technology Supported Training  Video Vignettes, Lectures  SD Capacity Building Handbook  Implementation Manuals  Evaluation Frameworks 9 November 2008AUCD Pre-Conference Workshop23

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Planning Training Delivery Methods  Innovative Uses of Technology  Self-Advocates as Trainers 9 November 2008AUCD Pre-Conference Workshop24

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Phase II: Discussion and Feedback  What is the best way (ideal methods) to provide SD training to self-advocates, parents, sibling, providers, or others (e.g. technology, self-advocates as trainers)? In your experience, what works and what doesn’t work?  Laura highlighted the planned components of a SD Gateway Online Portal, what features do you perceive to be the most beneficial and what else should be included? 9 November 2008AUCD Pre-Conference Workshop25

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Phase III: Overview of Planned Activities  Marketing  Sustainability  Implementation  Diffusion 9 November 2008AUCD Pre-Conference Workshop26

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Phase III: Feedback and Discussion  Do you know of any projects providing self- determination training that we should contact and coordinate our efforts with?  If we were all to meet here again in 5 years to share the many successes of this project, what one outcome would be most important to you? 9 November 2008AUCD Pre-Conference Workshop27

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Thanks for attending. We appreciate your interest and input. 9 November 2008AUCD Pre-Conference Workshop28

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities This document was supported, in part, by a cooperative agreement from the Administration on Developmental Disabilities, Administration for Children and Families, Department of Health and Human Services. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration on Developmental Disabilities policy.” 9 November 2008AUCD Pre-Conference Workshop29