Simon Wallace, Research Director Overview of the One in a Hundred Report

Just over 1000 respondents Surveys and focus groups Living with autism, experiences of the UK health system, attitudes to science and research priorities (medical)

Three quarters of parents felt that having a child with autism had helped them learn about disability issues 94% of parents worried about their child’s future 72% of parents felt they were judged or misunderstood by others

Three quarters of adults said there was nothing for them after they received a diagnosis Parents reported a range of emotions around the time of diagnosis: relief, despair, anger, guilt. Half of parents and adults reported a generally negative experience of interacting with their GP 75% of adults requested help with stress and anxiety

 Families see the importance of research  Families are looking to engage more in the research process  There are areas of the health service, which need significantly improving: ◦ Early diagnosis and early intervention  Selecting research priorities: ◦ Early diagnosis and early intervention ◦ Adults and ageing ◦ Mental health

 Research funding of interventions and support for the period after diagnosis  Research programme at Newcastle University  Research programme at the Institute of Psychiatry, London  The Autistica Gateway: ◦ ASD-UK ◦ Redesigned website and science communications ◦ Information resources  First resources will be for the period immediately after diagnosis