1 Dr Lythgoe, M; 2 Wighton, K; 3 Neal, D; 4 Dr Hood, G; 5 Dr Abraham, S, 1 NIHR/Wellcome Trust Imperial CRF Clinical Fellow; 2 Communications Manager North.

Slides:



Advertisements
Similar presentations
Practitioners and Training Programs Working Together to Impact the Community Lisa Kelly-Vance, Brian McKevitt, Allison McCuddin Poss, Jessica Dempsey,
Advertisements

NIHR Delivering Better Health Through Training Researchers 19 September 2011 Dr David Cox Deputy Director – Research Faculty.
A new Centre has been established to support the three multi-professional NW workforce networks of Pharmacy, Healthcare Science & Allied Health Professions.
A Proposal Dr Susan Hamer
Experiences of Patient and Public involvement in the Research Process Roma Maguire Senior Research Fellow Cancer Care Research Team School of Nursing and.
We need user-led research more now than ever before…
West Midlands Health Informatics Network (WIN) Dr. Krish Nirantharakumar MBBS MPH MD MFPH MRCP Senior Research Fellow (IDH) Honorary Consultant in Public.
Supporting Carers in General Practice & role of RCGP GP Champions for carers Dr Sachin Gupta GP, Welwyn Garden City RCGP GP Champion for Carers, East of.
Improving Psychological Care After Stroke
Promoting mental wellbeing and social inclusion through art: evaluation of participatory arts courses for people with mental health needs Jenny Secker,
Patients’ supportive care needs beyond the end of treatment: A prospective, longitudinal study.
Establishing and Evaluating a PD Support Network Gillian Carey (1) and Beverly Castleton (1) Dick Curry (2) (1) North Surrey Primary Care Trust (2) The.
A) The number of potentially eligible patients recruited to randomised clinical trials (RCTs) worldwide is low. Trials often fail to recruit target numbers.
North West Coast Patient Safety Collaborative Presented by: Aly Hulme Associate Director.
Looking Back: Looking Forward Dr Margaret Noble Pro Vice-Chancellor (Learning and Quality) University of Greenwich.
Introduction The Office of the Provincial Paediatric Therapy Recruitment and Retention Coordinator (PPTRRC) has been involved in supporting and facilitating.
Community Planning Training 1-1. Community Plan Implementation Training 1- Community Planning Training 1-3.
Using a Board game to enhance mentor engagement within nurse education in practice settings Jo Hirdle and Belinda Humphries University Practice Learning.
A Survey of Quality of Life Following Surgery for Malignant Pleural Mesothelioma: Reflects the patients’ commitment to Learning about the Disease D A Raffle,
Intercepting CKD in Primary Care
Welcome to Workshop 3 The Foundation of Nursing Studies (FoNS) in Partnership with the Burdett Trust for Nursing Patients First: Supporting Nurse-led.
PERFORMANCE ASSESSMENT FOR “ANALYTICS FOR HEALTHCARE PROFESSIONALS” COURSE.
WHAT IS RESEARCH? Catey Bunce Principal Statistician NIHR Biomedical Research Centre (BRC) at Moorfields Eye Hospital NHS Foundation Trust and UCL Institute.
18 th to 21 st June 2013 Primary Care Sciences Keele University RUNNING RANDOMISED CLINICAL TRIALS For further enquiries contact Debbie Cooke Tel: +44(0)1782.
Patient awareness campaigns What’s happened, what’s coming up and how you can get involved Daniel Spiers – NIHR Clinical Research Network Communications.
Invention for Innovation (i4i) Bev Luchmun Industry Lead NISCHR
Research Roles in the NHS; Leadership and Capacity Building Dr Sally Fowler Davis- Clinical research/ Development Officer.
PATIENTS IN RESEARCH RESEARCH PARTNERSHIPS.
Exercise Prescription Project Department of Health.
Excellent care with compassion Encouraging a culture of curiousity- the Rosemere experience Christina Robinson Research Radiographer Rosemere Cancer Centre,
The Impact of Health Coaching
Shared Decision Making MAGIC — Making Good decisions In Collaboration — Shared decision making the norm — Multi-centre, large scale implementation programme.
NHS engagement with the EU NHS Confederation Conference 23 June 2010.
Development of a hospice based education programme for health care professionals focusing on end-of-life care for people with dementia Kay de Vries Allyson.
NHS Responding to Alcohol- related Harm in Acute Hospitals : The Alcohol Specialist Nurse.
Science Case Network Welcome RCN-UBE Project #
Intra-trust lymphoedema awareness training programme Gillian McCollum Lymphoedema Clinical Lead.
Organized Diagnostic Assessment Demonstration Projects Organized Diagnostic Assessment Demonstration Projects Streamlined Centre for Out-Patient Endoscopy.
Evaluation, Trials and Studies Coordinating Centre Developing Sight Loss and Vision research questions: a funder’s perspective Anna Tallant Scientific.
Delivering clinical research to make patients, and the NHS, better Cancer Patients’ Experiences of Research Findings from the National Cancer Patient Experience.
Faith Gibson Clinical Professor of Children and Young People’s Cancer Care Great Ormond Street Hospital for Children NHS Foundation Trust and London South.
Patient And Public Involvement (PPI) in Research Dr. Steven Blackburn NIHR Research Design Service West Midlands (Keele University Hub)
Access to drugs, Reducing bottlenecks Matt Cooper Business Development & Marketing Director NIHR Clinical Research Network
Using CQUINS to improve COPD care on discharge from Acute Trust
Mae NISCHR CRC yn rhan o’r isadeiledd ymchwil i Gymru sy’n cael ei ariannu gan NISCHR, Llywodraeth Cymru NISCHR CRC is part of.
Randomised controlled trials in primary care: case study Doctor Sue Wilson University of Birmingham United Kingdom.
Delivering clinical research to make patients, and the NHS, better Urology SSG 22nd April 2015 Research Wendy Cook, Research Delivery Manager Dr Mohini.
Annual Conference 2015: Enabling Collaborative Innovation.
Delivering clinical research to make patients, and the NHS, better Cancer Patients’ Experiences of Research Findings from the National Cancer Patient Experience.
Liaison Psychiatry Service Models ‘Core 24’ and more
Educational Solutions for Workforce Development EDUCATION & DEVELOPMENT FRAMEWORK FOR SENIOR AHPs SUSAN SHANDLEY EDUCATIONAL PROJECTS MANAGER, AHP CAREERS.
© Dr Sue Pavitt 2014 Clinical Trials and the Benefits of Patient Public Involvement Professor Sue Pavitt Professor in Translational and Applied Health.
Developing Collaborative Practice: Innovations in Allied Health Student Education at SCGH Lindy Hall - Senior Social Worker Delivering a Healthy WA.
Musculoskeletal Pain Clinical Study Group Report on Podiatry Consensus Meeting Prof. Jim Woodburn School of Health & Social Care. Glasgow Caledonian University,
Delivering clinical research to make patients, and the NHS, better Skin SSG – Research 18 th June 2015 Dr Toby Talbot, Consultant Oncologist Wendy Cook,
Today’s presentation  Background and context  Rationale  Aim and objectives  Design and method  Impact  Reflective commentary  Transferability.
Strategic Vision Mission: Advancing mental health care through excellence in research and education Professor Martin Orrell Director, Institute of Mental.
Research Networks – opportunities for SLTs Dr Caroline Pickstone, Senior Manager, SY CLRN.
Health Research: promote it, use it, do it Lynne Goodacre Assistant Director NHS Research & Development North West.
Research and Development Dr Julie Hankin Medical Director.
NHS Research & Development North West Dr Lynne Goodacre Assistant Director NHS Health Education North West.
Clinical Research Facilities supporting Global Health
The Health Services Research Centre and NAP5
Patient and Public Involvement and Engagement in Research (PPIE)
RUNNING RANDOMISED CLINICAL TRIALS
Readiness Consultations
Dr Annegret Schneider Research interest:
INTERPROFESSIONALISM Working Better Together at the
Developing an FY1 post in a Crisis Resolution & Home Treatment Team
Role & Relevance of Cochrane UK to trainees
Presentation transcript:

1 Dr Lythgoe, M; 2 Wighton, K; 3 Neal, D; 4 Dr Hood, G; 5 Dr Abraham, S, 1 NIHR/Wellcome Trust Imperial CRF Clinical Fellow; 2 Communications Manager North West London, NIHR Clinical Research Network; Patient and Public Involvement Manager; NIHR/Wellcome Trust Imperial CRF; 4 Workforce Development and PPIE Lead for NIHR NW London CRN (Imperial Healthcare NHS Trust) 5 Consultant Rheumatologist and Senior Research Physician Imperial CRF INTRODUCTION  Achieving patient and professional participation in arthritis trials has been a persistent obstacle to innovation and evidence-based practice [1,2]  It is likely that patients with arthritis are willing to engage in clinical research but are unaware of the research opportunities or relevant clinical trials  To Increase awareness and reduce stigma associated with early clinical trials, arthritis patients were invited to attend a research engagement and involvement day in collaboration with arthritis charities. METHODS  To gauge impact of the educational event, participants were asked to complete a pre- course and post-course questionnaire  The questionnaire asked participants to rank on a scale of 0 (unlikely) to 10 (very likely) around topics of arthritis research including:  Current engagement, research awareness, willingness to participate  Participants were also asked about current ‘unmet needs’ in arthritis research RESULTS TIMETABLE OF SESSIONS REFERENCES [1] Blanch, D. et al. Predictors of refusal during a multi-step recruitment process for a randomized controlled trial of arthritis education. Patient Educ Couns 73, 280–5 (2008) [2]Bower, P. et al. Interventions to improve recruitment and retention in clinical trials: a survey and workshop to assess current practice and future priorities. Trials 15, 399 (2014) Questionnaire score: 10 = Very likely to engage in arthritis research 0 = Unwilling to engage in arthritis research  Intervention showed a significant increase in patient/healthcare professionals willingness to engage in arthritis research  Intervention showed a significant increase in awareness of arthritis research Questionnaire score: 10 = Very aware of current arthritis research 0 = Unaware of arthritis research CONCLUSION  The NIHR overarching vision is to see ‘more patients and health professionals participating in health research’  Engaging patients/health professionals in arthritis research days may be an opportunity to improve health research participation and innovation  Research engagement and involvement days may be useful in other disease areas where patient recruitment is problematic SessionDescription What is Clinical Research? Overview of clinical research and its importance Arthritis Research – A Patient Perspective A patient experience of arthritis research  Opportunity for questions and discussion What is a Clinical Trial? Describing the basics of a clinical trial.  Followed by a practical demonstration of a clinical trial (using chocolate!) Current Research Areas in Arthritis Research Current areas (existing and planned) of arthritis research Workshop: Unmet needs in Arthritis Research Small group working (led by disease specialists) to identify unmet needs in arthritis research.  Larger group discussion of ideas Keeping in touch with Arthritis Research Ways to keep in touch and stayed involved with arthritis research