1 Interprofessional Approaches to Chronic and Episodic Disability: Connecting Interprofessional Education and Practice Le-Ann Dolan, BSW (MSW in process) Lynne Sinclair, BScPT, MA(Ad Ed) Elisse Zack, MMgt, MEd Julie Hard, MScPT

Overview Background on HIV / CWGHR In-person and on-line courses Course IPE components Integration into IP practice Lessons Learned Practical strategies for sustainability Next steps 2

Background HIV as a chronic and episodic condition Can - Est 65,000 living with HIV in 2008/Est 55-75,000 living with MS HIV - complex, multi system Involvement 1996 –new HIV treatments– people living longer but increasing impairments, activity limitations, participation restrictions Unpredictable cycles (episodes) and degrees of wellness/functioning and illness/disability Similarities - HIV and other lifelong conditions with episodic components – e.g. MS, arthritis, lupus, forms of cancer, mental illness Increasing comorbidities with HIV (arthritis, cancer, neurocognitive, cardiovascular (stroke); osteoporosis/ other bone and joint disease) 3

Canadian Working Group on HIV and Rehabilitation (CWGHR) National, multi-sector, multi-disciplinary organization Disability and rehab in context of HIV - Bridging HIV, disability & rehab Cross-disability and interprofessional Priorities - integrated approach - research, education, policy and practice Awareness of and access to rehab services and resources for people living with HIV and other episodic disabilities - cross disability/ pan disease collaboration IP learning / education - link to IP practice Promote effective policies to respond to needs Address the needs and concerns of families, caregivers, communities and people living with HIV-related disabilities

Development of Interprofessional Learning Course Why an interprofessional course? Respond to gaps between identified need and capacity of service providers Prevalence study High level of disability/Providers survey % of therapists (OT, PT and SLP), indicate their profession is somewhat or very important to the care of people living with HIV 19% agree they have adequate knowledge or skills to provide these services 50% agree - rehab professionals are uncomfortable with idea of working with people with HIV Course Goals: increase knowledge and skills related to HIV among rehab professionals, increase capacity of rehab professionals to respond to needs of people with HIV, enhance IP practice among rehab and other professionals Course curriculum for 1.5 days – can be modified as needed 5

IPL in Rehab in the Context of HIV In-person course - Why an on-line course? Delivery – key principles Interprofessional Engaging people living with HIV as educators Providing useable information in a practical interactive format Problem based (e.g. case studies) Promoting Sustainability In-person workshops, in-person course, mentorship and on-line format On-line increases scope and accessibility Create opportunities for collaboration in in-person and on-line formats 6

Section A Interprofessional HIV Curriculum Specific to Rehabilitation Professionals Section C: Interprofessional HIV Curriculum for Health Care Professionals (may or may not include rehab professionals) Other Health Care Professionals Section D: HIV Curriculum for Health Care Professionals (may or may not include rehab professionals) Model of Intersecting Components of Curricula in the Phase I Compendium Curricula Specific to Rehabilitation Professionals Curricula Not Specific to Rehabilitation Professionals Section B: HIV Curriculum Specific to Rehabilitation Professionals (no IPE) Rehab Professionals HIV/AIDS IPE

Developing an On-line course Research - Increasing role for rehab professionals in HIV care; only a minority currently serve people with HIV HIV specialists currently provide or refer to limited rehabilitation-related programs Need further education–with HIV specialists and rehab professionals Process: Workshops >In-person curriculum > pilot in 3 locations > adapt for mentorship curriculum > adapt for online format > pilot on-line format > include in emodule update Case studies in online and mentorship formats 8

Evidence Process for developing curriculum Key principles - evidence informed and interprofessional (despite funders’ recommendation for single profession) Evidence Literature review of HIV, Rehab and IPE models Cochrane Reviews – Aerobic Exercise / HIV and Resistance Exercise / HIV; “Module 7” (1998) and updated eModule (2010) Focus groups and Key informant interviews across Canada including: People with HIV, Rehab professionals, Curriculum experts, Academics, Placement coordinators, Policy makers, IPE networks 9

Examples from Programs Mentorship (IPE and problem-based learning) –Skilled IP clinicians as co-mentors with people living with HIV – capacity building with care givers new to HIV care IPE curriculum - via CWGHR campus HIV, disability and rehab; episodic disabilities; employment issues Pharmacological implications for rehabilitation Case studies for IP team response Vulnerable populations (sensitive practice) HIV as an episodic condition / links to arthritis, MS, cancer, MSK Links to mental health challenges Links to employment policies and programs/ workplace issues 10

IPE Essential Elements Communication – between and among Collaboration - integration Ethics and Values – sensitive care Health Care System - settings Learning continuum Evidence-based framework 11

IPE Components Interactive Self-directed Reflective practice Patient and family centred Delivered by variety of HCPs Patient cases – rehab goals 12

Sustainable Integration into IP Practice Focus on prevention, care, treatment and support Developed and delivered by clinicians, researchers and active patient involvement Across range of health care settings Across lifespan Across speciality and generalist areas 13

Working Collaboratively Target audience is primary rehabilitation and other health care providers Secondary audience includes psychosocial, vocational rehab and alternative therapies Provides info about referring to Rehab Modules cover Rehab roles Includes social support system 14

Integration into Daily Practice Applicable to other chronic illnesses and episodic disabilities Patient cases –primary or secondary HIV Dx –guiding questions –facilitator notes –pt-centred SMART goals –hyperlinked to content 15

Approaches to Integrate Answers questions such as; –How can you access Rehab services? –What can Rehab do? –How can your patients/clients benefit? Advocacy and sensitive practice Discipline specific and IP Return to Work Discussion board can be added 16

Lessons Learned Broad multi-sector stakeholder input Meaningful patient content and involvement Different learning styles and learning tools Content based on clinical expertise AND lived experience Need ongoing (peer) support for sustainable IP learning 17

Sustainability Success Workshops, in-person and on-line formats Client focused and holistic care Across the continuum of care Safety for learning about sensitive care Address barriers (e.g. return to work) Include evaluation Employer support for integration into practice (including time for mentorship) 18

Next Steps New opportunities for rehab – research Education – broad curricula dissemination Partnerships – Clinical, Academic, Professional Associations and Community Create more lateral inter-sectoral links within regions and communities 19

Summary In-person and on-line courses Workshops Mentorship Multi-stakeholder input (meaningful patient) Evidence-based approach Problem-based learning with cases 20

Conclusion Focus on promotion and rehab care has great potential with aging population Not focus solely on specific disease Content must be based on clinical expertise AND lived experience HIV care can be ideal for learning about chronic illness or episodic disability 21

Contact Info and References O’Brien K, Bone G, Sinclair L, Solomon P. Rehabilitation in the Context of HIV: An Interprofessional Multi-Stakeholder Process for Curriculum Development. Fall Journal of Allied Health.39(3 part 1): O’Brien K, Bone G, Zack E, Solomon P. HIV and Rehabilitation: Development of a Conceptual Framework for Curriculum Planning. International Journal of Rehabilitation Research. September 2008; 31(3): Solomon P, O’Brien K, Hard J, Worthington C, Zack E. An HIV mentorship program for rehabilitation professionals: Lessons learned from a pilot initiative. Submitted to: International Journal of Therapy and Rehabilitation. Accepted: (October 2010). In Press. For further details please contact: Le-Ann Dolan, Program Director 22