Global Forum on Bioethics in Research International Research Ethics Training Program Directors Network Meeting Bethesda, USA, October, 16-17, 2007 Sandra Realpe Ethics Officer GFBR-Secretariat Geneva, Switzerland

This presentation will address questions: Where do we come from? Who are we? Where are we going to? Outline

November, 7-10, 1999 Bethesda, USA, November, 7-10, 1999 First GFBR meeting Initiated Initiated by the Fogarty International Centre of the National Institutes of Health and the World Health Organisation, to facilitate discussion of issues in health research from the developing countries perspective to facilitate global, open, and frank discussion of issues in health research from the developing countries perspective Where do we come from?

And then… 2000 Bangkok, Thailand: Capacity Building for Ethics Review in Developing Countries, Benefiting the host Community 2002 Cape town, South Africa: Bioethics and Public Health Research, Including Ethical Guidelines Related to Post-trial Access to Drugs 2002 Brasilia, Brazil: Ethics of Genomic Research 2004 Paris, France: Sharing the Benefits from Research in Developing Countries: Equity and Intellectual Property Where do we come from?

2005 Blantyre, Malawi: What happens when the research is over? Post-trial Obligations of Researchers and Sponsors 2006 Karachi, Pakistan: Ethical Issues Involving Public Health, Health Systems, and Health Services GFBR-Secretariat to be established through a grant from the European Commission FP Vilnius, Lithuania: Fostering Research Ethics Infrastructure in the Developing World/Transition Societies The GFBR-Secretariat is established Hosted by the Council on Health Research for Development (COHRED) Where do we come from?

December 3-5, 2008, Auckland, New Zealand Ethics of Research Involving Indigenous Peoples and Vulnerable Populations Where do we come from?

What: GFBRglobal platform to promote debate The GFBR is the only global platform specifically provided to promote debate on emerging ethical issues in international collaborative health research between developing and developed countries Who are we?

Aims: Strengthens the protection of human participants in international health research Provides a forum for developing country perspectives on ethical issues in research Builds capacity for ethical review of research Encourages long-term joint management of research protocols Who are we?

Partners

Call for applications to Host 10th Global Forum on Bioethics in Research (2009) 1st December 2007 Expression of Interest by 1st December th January 2008 Full Proposal by 15th January 2008

The GFBR-Secretariat is based on, and operates, a fellowship programme One part-time Ethics Officer Two full time fellows The recipient of the 2007 Fellowship is Xiuqin Wang (China) Functions: Maintaining the institutional memory and organizational continuity of the GFBR and raising funds to extend the Secretariat activities Who are we?

Call for applications Fellowship Programme 2008 November, 09, 2007 Deadline for applications: November, 09, 2007 Who are we?

This map show the ip location of GFBR website visitors in real time, October 16, 2007 Just enter your address and website address and click the generate button to get yours… (I learned it from GFBR9!)

Questionnaire What should make a Secretariat for the GFBR useful to you? Ensure growth in the proportion of developing country institutions on the partnership Support and advocate for capacity building for health research ethics Enhence networking in international health research ethics. Where are we going to?

Questionnaire What services do you think the Secretariat should provide? Establish regular communication with the GFBR participants (newsletter, GFBR list of participants…) Stimulate debate further discussion at country level Identifying emerging issues in international health research ethics. Where are we going to?

What services do you think the Secretariat should provide?. What should make a Secretariat for the GFBR useful to you?. Where are we going to ? Questionnaire Please: fill in and return it to Sandra Realpe, Ethics Officer, Secretariat – Global Forum on Bioethics in Research tel / c/o Council on Health Research for Development (COHRED) 1-5 Route des Morillons P.O.Box Geneva 2 Switzerland

Gauguin - D'où venons-nous? qui sommes nous? Où allons nous musée de Boston

Thank you!