BME HEALTH FORUM End of Life Care

Average number of deaths per year by single year of age

Percentage of all deaths by place of death

“End of Life Care” Commonly used when patients are identified as being likely to die within the next 12 months, including within the next few hours or days. - Definition is used by the General Medical Council, the National Council for Palliative Care, and The Leadership Alliance for the Care of Dying People

Palliative care “The active holistic care of patients with advanced progressive illness”. - National Institute for Health and Care Excellence

BME HEALTH FORUM The JSNA

Why now? The national agenda The National End Of Life Care Strategy 2008 NHS England and Department of Health – refresh NHS England have published their Actions for end of life care National Voices – Every Moment Counts The Parliamentary and Health Service Ombudsman – Dying Without Dignity report

The Local Context Clinical Commissioning Group (CCG) out of hospital strategies: Integrated health and social care, and specialised care planning for people approaching End of Life CCGs have adopted the Coordinate My Care (CMC) tool to record the treatment and place of death preferences of patients

The JSNA We have looked at: Hospice data – Trinity and St. John’s (Pembridge data missing) Deaths in hospital The End of Life Care Local Authority profiles Evidence review Local service mapping Office of National Statistics / Public Health England data VOICES survey - experiences of EOLC

Stakeholders Hospices Hospitals Home care services GPs Clinical Commissioning Groups Charities and community organisations Religious / spiritual organisations

Questions for Discussion today 1. What have been your experiences of EOLC in the UK? 2. What does a good death look like? 3. What is the role of the third sector in EOLC? 4. What are the BME specific issues around EOLC? 5. What barriers might people from BME communities face to accessing EOLC (Hospices, hospital palliative care teams, district nurses and home care agencies)? 6. How can hospices make their services more accessible to people from BME communities?

Thank you Jessica Nyman – Colin Brodie