Down Syndrome Guild of Southeast Michigan Annual Meeting Fiscal Meeting July June 2011

OUR MISSION The mission of the Down Syndrome Association of Greater St. Louis is to benefit the lives of people with Down Syndrome and their families through individual and family support, education, awareness, and advocacy.

THANK YOU TO OUR VOLUNTEERS WE COULDN’T DO IT WITHOUT YOU OVER 350 VOLUNTEERS GENEROUSLY GAVE OF THEIR TIME IN 2010/2011 IN THE FOLLOWING AREAS STEP UP FOR DOWN SYNDROME CONFERENCES EDUCATIONAL SPECIALIST TRAININGS ONE CALL NOW SIBSHOPS YOUNG ATHLETES PROGRAM NEW PARENT SUPPORT –MENTORING –MEDICAL OUTREACH FAMILY PICNIC HOLIDAY PARTY OFFICE SUPPORT LENDING LIBRARY MICHIGAN MIRACLE LEAGUE COMMUNITY GROUPS

IN AWE OF YOUR DEDICATION AND SERVICE TO THE MISSION OF DSG What Independent Sector Says About Volunteer Service Hours Independent Sector is the leadership forum for charities, foundations, and corporate giving programs worldwide. It is a nonpartisan consortium of about 600 organizations. Every year, Independent Sector determines the dollar value of a volunteer hour, and this number is used by the majority of charities across the country. For 2010, a volunteer hour of service was valued at $21.36.

VOLUNTEERING What Does That Mean for the Down Syndrome Guild of Southeast Michigan Our Board of Directors donated almost 800 hours during fiscal This translates to a service contribution = to $17,088 Volunteers participated in multiple areas and contributed over 2,300 hours of service This translates to a service contribution = to $49,128 Together, this was a conservative estimate of volunteer service hours = to $66,216

Erin and Danny

BOARD ELECTIONS New Executive Officers New Board Members Renewing Board Members Retiring Board Members

THE BOARD OF DIRECTORS Current Board Members (18) David BuckleyPaul Nobels James HanggiNancy Farlese Laurie Whell Kim Reynolds Kirk Anderson Tricia Dewer Denise Dunn

ELECTION OF NEW EXECUTIVE OFFICERS President: David Buckley Vice President: James Hanggi Treasurer: Kim Reynolds Secretary: Laurie Whell

ELECTION OF GENERAL BOARD MEMBERS Renewing Terms Megan Layton – 3 year term (2011 – 2014) Donna Eisenberg – 3 year term (2011 – 2014) New Board Members Nancy Farliz(2012 – 2015).Paul Nobles(2012 – 2015)

RETIRING BOARD MEMBERS Thank You for Your Generous Service Nancy Nelson Bob Spamen Laurie Mathes

BELIEVE IN ME Celebrating 35 years of service to our members…and growing

How We Serve Our Members FAMILY SUPPORT PROGRAMS New Parent Support Medical Outreach Information & Referral Community Groups Family Picnic Holiday Party EDUCATION PROGRAMS Michigan Miracle League Down Syndrome Education Specialist Training Conferences The Learning Program Speakers Bureau Resource Library AWARENESS & ADVOCACY Step Up For Down Syndrome Walk in the Park Calendar “I’m Down with That” Bumper stickers, window clings and bookmarks MEMBER COMMUNICATIONS Website Friday E-Blasts Facebook & Twitter Newsletters Annual Report Annual Meeting

FAMILY SUPPORT PROGRAMS and AWARENESS & ADVOCACY

HOLIDAY PARTY AND FAMILY PICNIC

FAMILY SUPPORT PROGRAMS NEW PARENT SUPPORT & MEDICAL OUTREACH

NEW PARENT SUPPORT Making a Difference for our Families 60 families were welcomed into our DSG family since July, of these families contacted us with a pre-natal diagnosis 50 New Parent packets were distributed since July, new Moms (46%) elected to receive New Parent Support Mentoring 50 volunteers are actively supporting new families (some continuing from last fiscal year) 7 of these volunteers are Dads! 250 mentoring hours were provided this fiscal year 4 individuals volunteered weekly at the Down Syndrome Center at Children’s Hospital 200 hours of volunteer service were provided at the Down Syndrome Center at Children’s Hospital 403 New Parent families have been served since program inception in 2005

SERVING 9 COUNTIES IN SOUTHEAST MICHIGAN Where Our New Parents Live And Receive Our Services The DSG serves southeast Michigan; including Wayne, Oakland, Macomb, Washtenaw, Livingston, Monroe, Lapeer, Genesee, and St. Clair Counties.

SERVING 9 COUNTIES IN SOUTHEAST MICHIGAN WHERE OUR NEW PARENT SUPPORT VOLUNTEERS LIVE

MEDICAL OUTREACH SERVICES Educating & Increasing Knowledge for New Families & Medical Professionals 100+ hospital packets have been distributed this fiscal year among our 25 hospitals 42 medical professional packets have been distributed this fiscal year 87 OB/GYNs, Geneticists, Pediatric Nurses, and Counselors received informational materials through our exhibiting at a region 5 ACOG conference. Genetic Counseling students at Wayne State University received our Medical Professional Packets

HOSPITALS THAT HAVE OUR PACKETS READY TO DISTRIBUTE TO NEW PARENTS WAYNE: Oakwood OAKLAND: Beaumont-Royal Oak Beaumont- Troy Crininton Rochester Huron Valley- Sinai Hospital Providence (South John Hospital)- Southfield St. Joseph Mercy Botsford Hospital- Farmington Hills LIVINGSTON: U of M- Ann Arbor

COMMUNITY GROUPS Sustaining Support Groups in 9 Counties COMMUNITY GROUPS SUPPORTED BY THE DSG OFFICE Baby Buddies/ Playgroup Birmingham, Clarkston, Dearborn, Detroit, Dexter, Farmington/Farmington Hills, Flint/ Grand Blank, Gross point, Heartland/ Highland, Holly, Lake Orion, Livonia, Macomb, Mount Clemons, Plymouth/Canton, Rochester/ Rochester Hills, Royal Oak, Southfield, Southgate, South Lion, Taylor, Troy, Wald Lake/ Commerce Township, Wyandot, Hispanic Families, African American Families.

EDUCATION PROGRAMS

Sibshops Club 21

MAKING A DIFFERENCE FOR OUR FAMILIES AND THE EDUCATIONAL COMMUNITY DOWN SYNDROME EDUCATION SPECIALIST TRAINING 125 teachers, administrators, therapists, and counselors participated in 24 hours of training in school districts in Oakland County were represented, a parochial school in Wald Lake, a charter school in Detroit have named a specialist 3 community agencies were trained 125 participants have completed the certification since the program was implemented in 2009

Down Syndrome Ed Specialist Program PARTICIPATING SCHOOL DISTRICTS AND COMMUNITY AGENCIES Avondale Public Schools Berkely Public Schools Birmingham Public Schools Bloomfield Hills Public Schools Ceasar Shavez Academy- Detroit Clarkston Public Schools Clausen Publics Schools Farmington Hills Public Schools Ferndale Public Schools Lake Orion Public Schools Lamphere Public Schools Livonia Public Schools Novi Public Schools Plymouth-Canton Public Schools Rochester Public Schools St. Williams Parochial Schools Troy Public Schools Walled Lake Public Schools

CONFERENCE 128 participants attended the Saturday all-day session on “Reaching for Opportunity- Educating Students with Down Syndrome” at U of M Dearborn 12 volunteers helped create and manage these sessions 90 volunteer hours were contributed

“LOSE THE TRAINING WHEELS” MAKING A DIFFERENCE FOR THE KIDS 40 Riders, ranging in age from 8 to 21, participated $150 Gift certificates were given to each rider at the end of the camp 28 Riders used their certificate for a bike, which included an individualized fitting to ensure proper size 12 Riders used their certificate for bike accessories 39 Volunteers participated 532 Hours of volunteer service were donated This program partnered with the Lydia Faith Cox Memorial Foundation, the Pujols Family Foundation, and Maplewood Bicycle to make this event a success

THE LEARNING PROGRAM A Parent/Child Program 62 Families participated in the program in fiscal 2010/ Children were enrolled in 4 different classes: Toddler Time, Pre-K, Level 1 and Level 2 45 Total sessions were held for parents & children 9 Teachers taught during the September – May school year 3 Therapists participated (1 Occupational & 2 Speech) 12 Volunteers participated in the program 840 Volunteer hours were donated

ADDITIONAL EDUCATIONAL SERVICES RESOURCE LIBRARY 400+ Books, DVD’s, and CD’s are available for check-out by our families INFORMATION & REFERRAL 1,250 Calls were received requesting information about a variety of topics, including community service recommendations, physician refferals, counseling referrals, services we provide, etc. SPEAKERS BUREAU 5 Presentations were given to area schools and community groups 30 Volunteer hours were donated 5 Presentations were given by staff

AWARENESS & ADVOCACY Lohse’s Little Leaguers Tony’s Troops

STEP UP FOR DOWN SYNDROME (SUDS)

INCREASING COMMUNITY UNDERSTANDING Members and friends participated in the Walk in the Park on October 9, Volunteers donated 20 hours of service to “I’m Down with That” 2,000+ Members and friends participated in Step Up For Down Syndrome on October 9, Volunteers donated 320 hours of service 500 Calendars were purchased 3 Volunteer photographers donated 60 hours of service

COMMUNICATIONS 40 Friday E-blasts were created 3,000+ members receive our E-blast 6 Bi-monthly “ A Little Something Extra” 550+ Facebook fans are signed up

FINANCIALS INCREASED ACCOUNTABILITY IMPROVING OUR FINANCES