The Indianapolis Discovery Network in Dementia: The IDND Project June 12, 2006 Third IDND Meeting Malaz Boustani, MD, MPH Stephanie Munger, BS IUCAR, Regenstrief Institute, Inc. IDND

Sponsorship Pfizer: –Facilitates creating environment for brainstorming by the IDND members. –No honorarium for any IDND members including Dr. Boustani –No restriction on the content of IDND IDND

The IDND Rules No rules Pro-Active listening Pro-Active involvement Regular meeting bimonthly or monthly Sharing the minutes with all IDND members Group feedback for any new idea Self-organization IDND

Common goal Of IDND Independent Scholar E Other Local CASs Stress Feedback Independent Scholar D Independent Schoalr C Independent Scholar B Independent Scholar A Changing Clinical & Research Environment Connection The IDND System The IDND Frame-Work

The Complex Adaptive System of IDND A number of independent diversified Scholars Common and prioritized goal/goals (the IDND identity) Local nonlinear dynamic interaction among these scholars A supportive Matrix for IDND member interactions Aligns IDND members’ interactions with the IDND goal via –Rich matrix –multiple dynamic positive feedback loops No centralized control Self-organization (distributed control) IDND

Evaluating the Impact of IDND Attendance rates of the IDND meeting # of projects generated by the IDND members: –Clinical –Research –Advocacy activities # of publication generated by the IDND members # of educational activities generated by the IDND members Involvement of IDND members with state health policy and community outreach activities related to AD and dementia? IDND

Emergent Ideas From Last Meeting 80% of IDND members attended the first meeting of 30 total members 53% attended the second meeting of 34 total members ??% attended the third meeting, now with 39 members in total! The IDND library resource for clinical and educational support (Website!) –IU Roybal may sponsor the website –Will be connected to ADEAR Standardizing dementia screening and diagnosis work-up tool –Creating the software –No emerging next step Create state-wide registry for research using the current Indiana-AA infrastructure –The CADRE project Creating directory of IDND members –Via the Website Members can develop their own ideas and workshop based on IDND interest Spreading the word about IDND –AGS meeting –NIA –Pfizer –AA newsletter

Accomplishments Since Last Meeting Publishing an Article about IDND with lN AA. E-CHAMP summit was a success! A paper in preparation for the benefit and harms of dementia screening. Three Symposium were submitted to AGS and one to AAGP. The Anticholinergic Burden scale –Donna’s Medicare database –Kaycee Database –ACE database The emergence of the CADRE project. Our Members directory is slowly advancing! Completion rate is 36%! (14 of 39 total members)

Announcement E-CHAMP received the P&T approval Next meeting? ICAD July 2006 Madrid –Farlow, Hake, Hall, Hendrie, Gao, Callahan, Boustani. Potential Projects: –Dementia Diagnosis Assistant software for primary care or memory clinicians. Potential MSs: –Dementia in Primary Care: Screening, diagnosis, and Management. –Complex Adaptive System in Dementia Care. –IDND Initiatives –Delirium management. –Hospital Nurses Knowledge of Cognitive Impairment in hospitalized Older Adults. Any additions?

Potential Discussion Topics For Today The CADRE