Qualified Disability Expenses Education - Tuition for preschool thru post-secondary education, books, supplies, and educational materials related to such.

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Presentation transcript:

Qualified Disability Expenses Education - Tuition for preschool thru post-secondary education, books, supplies, and educational materials related to such education, tutors, and special education 6 services Housing - Expenses for a primary residence, including rent, purchase of a primary residence or an interest in a primary residence, mortgage payments, home improvements and modifications, maintenance and repairs, real property taxes, and utility charges Transportation - Expenses for transportation, including the use of mass transit, the purchase or modification of vehicles, and moving expenses Employment Support - Expenses related to obtaining and maintaining employment, including job-related training, assistive technology, and personal assistance supports Health and Wellness - Expenses for health and wellness, including premiums for health insurance, mental health, medical, vision, and dental expenses, habilitation and rehabilitation services, durable medical equipment, therapy, respite care, long term services and support, nutritional management, communication services and devices, adaptive equipment, assistive technology, and personal assistance Miscellaneous Expenses - Financial management and administrative services, legal fees, expenses for oversight, monitoring, or funeral and burial expenses 1

Where are we today Senate Bill - S. 313 Original Sponsors: Sen. Robert Casey (D-PA) Sen. Richard Burr (R-NC) Current Cosponsors: 71 House Bill – H.R. 647 Original Sponsors: Rep. Ander Crenshaw (R-FL) Rep. Chris Van Hollen (D-MD) Rep. Cathy McMorris Rogers (R-WA) Rep. Pete Sessions (R-TX) Current Cosponsors: 359 2

The Next Steps Awaiting the Congressional Budget Office (CBO) Score – next week Working with House and Senate Leadership to urge the ABLE Act to be brought to the floor for a vote ▫ House: Urging House Ways & Means to move the ABLE Act through Committee ▫ Senate: Both Senate Leaders Reid & McConnell cosponsored last month ADVOCACY SUPPORT Urge cosponsors (those Sens./Reps. have not yet cosponsored) Support and share Sara Wolff’s change.org petition: ongress-pass-the-able-act 3

Sara Hart Weir Vice President, Advocacy & Affiliate Relations National Down Syndrome Society Contact 4