UKRR Annual Informatics Meeting, September 2013 Highlights from the 15 th Annual Report Rishi Pruthi Research Fellow UK Renal Registry

The Fifth Edition of the Clinical Practice Guidelines Module Blood-borne viruses Haemodialysis Vascular Access For Haemodialysis Peritoneal dialysis Peritoneal access Planning, initiation & withdrawal of RRT Assessment of the Potential Kidney Transplant Recipient Acute Kidney Injury Nutrition in CKD Anaemia in CKD Cardiovascular disease in CKD CKD-Mineral and Bone Disorders (CKD-MBD) Detection, Monitoring and Care of Patients with CKD Post-operative Care of the Kidney Transplant Recipient RA and ART Guideline on Water Treatment Facilities, Dialysis Water and Dialysis Fluid Quality for Haemodialysis and Related Therapies

RRT incidence rates between 1980 and 2011 DEMOGRAPHY UK Renal Registry 15th Annual Report

Figure 1.6. Median age of incident RRT patients by centre in 2011 White points indicate transplant centres

Population aged 65 and over, 2011 England and Wales local and unitary authorities

UK Renal Registry 15th Annual Report Figure 1.2. Age/gender standardised incidence ratio (2006–2011) by percentage non-White

RRT incidence rates in the countries of the UK 1990–2011 UK Renal Registry 15th Annual Report

Figure International comparison of RRT incidence rates in 2010 Non UK data from USRDS

Prevalence rate of RRT patients per million population by age and gender on 31/12/2010

Growth in prevalent patients by treatment modality at the end of each year 1997–2011 UK Renal Registry 15th Annual Report MODALITY

UK Renal Registry 15th Annual Report RRT modality at 90 days (incident cohort 1/10/2010 to 30/09/2011)

UK Renal Registry 15th Annual Report Figure 2.6. Treatment modality in prevalent RRT patients on 31/12/2011

UK Renal Registry 15th Annual Report Figure 2.7. Treatment modality distribution by age in prevalent RRT patients on 31/12/2011

UK Renal Registry 15th Annual Report Figure 9.4. Median time to wait listing for a kidney transplant, by renal centre (centres with <10 patients excluded) ACCESS TO TRANSPANTATION

Patients starting dialysis in a non-transplanting centre was associated with being less likely to be registered for transplantation (adjusted OR 0.8, ) After adjustment for age, ethnicity, gender an PRD there were significant centre differences for the probability of being activated on the kidney tx waiting list and the probability of receiving a renal transplant (all sources) ACCESS TO TRANSPANTATION

UK Renal Registry 15th Annual Report Figure 4.3. Primary renal disease percentage in incident and prevalent paediatric ERF patients in 2011 for whom a causative diagnosis was reported

UK Renal Registry 15th Annual Report Figure 4.4. Treatment modality at start of RRT by 5 year time period

OPPORTUNITIES & THE FUTURE CKD stage 5 patients to understand conservative and withdrawal issues to allow adjustment for survival and other outcomes (quality of life) AKI RADAR Improving data returns and New Renal Dataset Specific need for research focused on improving outcomes in the elderly multi-morbid population 20

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