29/08/2003 Midterm Review Meeting Helsinki 29.08.2003Midterm Review Meeting, Helsinki2 Overall Objective Research Infrastructure The establishment of.

Slides:

Advertisements

Similar presentations

Kirsty McCormack.

Advertisements

European Cooperative Network for Research, Diagnosis and Therapy of Parkinson´s Disease EuroPa Plenary Meeting WORK PACKAGE 3 WORK PACKAGE 3 - Patient.

European Cooperative Network for Research, Diagnosis and Therapy of Parkinson´s Disease EuroPa MIDTERM REVIEW WORK PACKAGE 3 Patient Registry.

29/08/2003 Work Package 1 Network Management R. Wick – Senior Project Manager.

Introduction Parkinsons disease is not just a burden for the patients it also has a substantial social and economic impact. The European countries differ.

16/06/2004 EuroPa Plenary Meeting -Paris EuroPa Plenary Meeting Paris Agenda EuroPa Plenary Meeting, Paris 9:00 - 9:15Meeting objectives /

By Susan Toben Ministry for Labour, Building and Regional Development M-V Germany Lead Partner ICZM Strategy Development Process The PlanCoast Input from.

INCO-FP6 NCPs-11 Feb Anna Karaoglou 1 Meeting INCO NCPs 6th FP Focusing and Integrating Community research Specific measures in support of international.

The Implementation Structure DG AGRI, October 2005

Resource Mobilization Capacity Building OEWG – SIDE EVENT 7 April, 2006.

1 SAICM & the QSP Established by the International Conference on Chemicals Management (ICCM), which adopted the Strategic Approach to International Chemicals.

EU – ACP PROGRAMME FOR SCIENCE AND TECHNOLOGY INNOVATIONS AND CAPACITY BUILDING (PSTICB) 9 ACP RPR 61.

¨ Dr Alain Garcia General Secretary of the Rare Diseases National Plan The second National Plan for Rare Diseases in France

Post Research Benefits Mandika Wijeyaratne MS, MD, FRCS Dept. of Surgery, Colombo.

Towards a New R&D Strategy A blueprint for R&D in Health and Social Care Noreen Caine Deputy Director of R&D, DH NHS R&D Forum Annual Conference May 2005.

1- Sept 2004 PLENARY SESSION ON NEW EUROCITIES STRUCTURES Gijón, 30 September 2004.

FPS HEALTH, FOOD CHAIN SAFETY AND ENVIRONMENT 1 Joint Action on Health Workforce Planning and Forecasting Zuzana Matlonova Brussels – April 11th, 2013.

World Health Organization

A Research Active Hospice

European Partnership for Action Against Cancer (EPAAC)

California Child Welfare Co-Investment Partnership Children’s Conference Monterey, California May 29, 2008.

Health Line of Business Revised Health Domains January 26, 2005 Outcomes / Domains have been revised.

The HITCH project: Cooperation between EuroRec and IHE Pascal Coorevits EuroRec 2010 Annual Conference June 18 th 2010.

JERICO KICK OFF MEETINGPARIS – Maison de la recherche - 24 & 25 May 2011 JERICO PROJECT The contract management Overview By Dominique Guéguen / Ifremer.

Rare Diseases Working Group Luzern, 24 September 2010.

August 12, Meaningful Use *** UDOH Informatics Brown Bag Robert T Rolfs, MD, MPH.

Name Speaker This work is part of the Joint Action on Improving Quality in HIV Prevention (Quality Action), which has received funding from the European.

Information network on rare cancers RARECARENet Annalisa Trama, Gemma Gatta Fondazione IRCCS Istituto Nazionale dei Tumori, Milan (Italy)

This document arises from the project InNerMeD-I-Network which has received funding from the European Union, in the framework of the Health Programme INHERITED.

EurocanPlatform A Platform of European Cancer Research Centres for Translational Research Ulrik Ringborg CancerCenter Karolinska.

WHAT IS “CLASS”? A BRIEF ORIENTATION TO THE CLASS METHODOLOGY.

Criteria for Centres of Expertise for Rare Diseases in the EU following EUCERD Recommendations RARECARENet Project: Consensus meeting on.

Health Promoting Health Service: Development day.

The Preparatory Phase Proposal a first draft to be discussed.

Training of Process Facilitators Training of Process Facilitators.

Work Package 5 Information on centres of expertise for rare cancers WP leader: Sabine Siesling.

Objectives of Work Package 5 objectives for today Information on centres of expertise for rare cancers WP leader: Sabine Siesling.

Telematikplattform für Medizinische Forschungsnetze (TMF) e.V. TMF – A Common Platform for Medical Research Networks in Germany Improving the Organisation.

The Global Health Network Marijke Geldenhuys 19 September 2014 Adhering to the GCP Principles.. what does that even mean?

MOD 6050 PROJECT MANAGEMENT AND FUND RAISING TOPIC – PROPOSAL WRITING AND FUNDRAISING (WK 6 &8) LECTURER: DR. G. O. K’AOL.

Orphanet Europe State of the Art of Database and Services Polish activity Orphanet Europe State of the Art of Database and Services Polish.

April_2010 Partnering initiatives at country level Proposed partnering process to build a national stop tuberculosis (TB) partnership.

Participation in 7FP Anna Pikalova National Research University “Higher School of Economics” National Contact Points “Mobility” & “INCO”

IDARI Workshop, Tartu, June 2005 NUI Galway Work Package 4 Administration Lorna Ryan The IDARI project is financed under the FP5 Quality of Life and Management.

The partnership principle and the European Code of Conduct on Partnership.

Tracking national portfolios and assessing results Sub-regional Workshop for GEF Focal Points in West and Central Africa June 2008, Douala, Cameroon.

The ERA-NET TRANSCAN-2, in continuity with the preceding ERA-NET TRANSCAN, aims at linking translational cancer research funding programmes in 15 Member.

21 November 2013 Brussels Cristina Padeanu -PATIENT EVIDENCE WORKSHOP - JOINT ACTION ON PATIENT SAFETY AND QUALITY OF HEALTH CARE (PASQ) PROJECT.

International Diabetes Federation Centres of Education Helen McGuire Global Education Manager IDF Centres of Education _SiteVisits_2009.

Multi-disciplinary University Traditional Health Initiative (MUTHI): Building Sustainable Research Capacity on Plants for Better Public Health in Africa.

Mathias DEPRETZ – EuroVO-DCA Project Manager Work Package 1 – Management First Board Meeting – 2&3 october 2006 WP1 Management EuroVO-DCA Project FIRST.

1 An Overview of Process and Procedures for Health IT Collaboration GSA Office of Citizen Services and Communications Intergovernmental Solutions Division.

NCB Noël Barengo, MD, PhD, MPH Department of Public Health University of Helsinki, Finland Unit of Clinical Research, University Hospital La Paz,

Horizon 2020 Overview Jerome de Barros NCP Health.

Health Technology Assessment Methodology, an EUnetHTA View Basics for the Assessment in EU Countries PharmDr. Martin Visnansky, MBA, PhD., MSc. (HTA) HTA.

WP leaders meeting R. Aleksan October 5 th, 2009 TIARA 1.Objectives 2.WP management 3.General rules 4.Conclusion Work Packages.

BC SUPPORT Unit: Overview and update

The Citizen in the centre in EU, Bratislava November,2005

UNISEC Universal Influenza Vaccines Secured

Nordic Cooperation on Ethical Review Procedures Nordforsk – nordic trial alliance MIKA SCHEININ

11 i. Create a national coordinating mechanism for aDSM

Good Clinical Practice

Funded by the Erasmus+ Programme EPP JO-EPPKA2-CBHE-JP Lina Tsakalou

Key steps for a sustainable European HES system

Welsh Health Innovation Technology Accelerator

EULAR Study Group for Collaborative Research

BioMedBridges – Work Packages 2 & 12

The role of the ECCP (1) The involvement of all relevant stakeholders – public authorities, economic and social partners and civil society bodies – at.

Primary Health Care Improvement Global Stakeholder Meting, Geneva

Overview of the iLIVE Volunteer Project

Presentation transcript:

29/08/2003 Midterm Review Meeting Helsinki

Midterm Review Meeting, Helsinki2 Overall Objective Research Infrastructure The establishment of a synergistic European network that bundles and coordinates existing competence in clinically oriented research on Parkinsons disease. Network management (WP 1) – committees voting rules publication policy

Midterm Review Meeting, Helsinki3 Who are we? Neurologists with long-term experience and expertise in movement disorders and clinical research from 11 European countries and an IT- partner

Midterm Review Meeting, Helsinki4 EuroPa: Work Packages Overview x – involved partner, xx – responsible partner, (xx) – in collaboration responsible

Midterm Review Meeting, Helsinki5 What are we aiming for? Recruitment of clinically well described patients - unified clinical documentation - minimal data set (WP 3) - registry Web-data entry system (WP 2) - including data management Main achievement will be a central patient registry Advantage for EuroPa in planning and conducting multinational, multicentre clinical trials (WP 4)

Midterm Review Meeting, Helsinki6 What are we aiming for? Spread of Good Clinical Practice (WP 4) Accelerate the standardization of diagnostic and therapeutic strategies EuroPa is qualified to conduct - epidemiological studies (WP 4) - socio-economical studies (WP 5) with impact on patients, the health care system and the society To raise funds for sustainability (WP 6) Long term goal: clinical research organisation for European multicentre clinical trials

Midterm Review Meeting, Helsinki7 EuroPa: Timetable Reference: EuroPa - Technical Annex Pages: EuroPa - Proposal Part B Pages: 18-20

Midterm Review Meeting, Helsinki8 Where are we now? More than half of the project funding period is over We have proceeded within schedule Important milestones have been reached in time Participants increasingly identify themselves with EuroPa Details of project progress will be presented by the work package leaders

Midterm Review Meeting, Helsinki9 Summary Main project achievements so far: Establishment of a functioning management structure Data protection and ethical approvals in most centres Patient registry with web-based data capture is working – on-line About 350 patients have been entered Concept of EuroPa clinical trial and research organisation (CREO) is finalized A call for proposals for the first EuroPa study has just been sent out to all participants Possible organisational forms for EuroPa are under evaluation in order to ensure our sustainability