South West Specialised Commissioning Group Selena Blake - Programme Manager Teenage and Young Adults Cancer Services South West Specialised Commissioning.

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Presentation transcript:

South West Specialised Commissioning Group Selena Blake - Programme Manager Teenage and Young Adults Cancer Services South West Specialised Commissioning Group Improving Outcomes Guidance (IOG) in Cancer and the Younger Person

South West Specialised Commissioning Group Today Background The IOG and the Younger Person What has happened so far Next Steps

South West Specialised Commissioning Group Background Epidemiology Impact; late effects and survival Experiences Challenges

South West Specialised Commissioning Group Improving Outcomes Guidance (1) NICE CYPIOG August 2005 An IOG defined by age and not tumour type Opportunity to not only improve clinical outcomes, but also the experience of young people as patients AND their families

South West Specialised Commissioning Group Improving Outcomes Guidance (2) An appropriate balance of service provision and resource allocation Safe and effective services as locally as possible, NOT local services as safely as possible Clear organisational structures Identified PTCs providing range of sustainable services with defined staffing

South West Specialised Commissioning Group Improving Outcomes Guidance (3) Shared care with defined agreed responsibility Care delivered by Multidisciplinary Teams (MDTs) Skilled, professional key workers identified to coordinate care; provide information; assess needs Young people under 19yrs in age-appropriate facilities, with those 19yrs and over to have unhindered access

South West Specialised Commissioning Group Improving Outcomes Guidance (4) All young people must have access to tumour-specific expertise All young people with cancer to be offered entry to clinical trials, treatment and care via agreed protocols and pathways Registration of cancer in 15 – 24yr olds Full implementation by 2010/2011

South West Specialised Commissioning Group What has happened so far? (1) Baseline assessment in January 2007 showed: - variation in patients being treated at PTCs - inequalities in access to shared care - inequalities in access to IOG recommended services - TYA MDTs not generally established - transitional arrangements weak - workforce gaps

South West Specialised Commissioning Group What has happened so far? (2) 8 x Programme Managers for 2yrs (March 2008) Advisory Board > SCGs and Cancer Networks Workload data for the SW SCG area produced Core principles for commissioners working with providers regarding development of: - Services - PTCs - TYA MDTs - Shared Care Arrangements - Age Range - Place of Care

South West Specialised Commissioning Group Next Steps (1)? National co-ordination, local development: - TYA centres with age appropriate facilities - TYA Shared Care facilities - TYA MDT - Supportive and palliative care for TYAs - TYA Workforce National Framework to inform Services; PTCs; MDT and Shared Care Cancer network young people’s working groups: - gap analysis - care pathways / shared care arrangements

South West Specialised Commissioning Group Next Steps (2)? Regional strategic working group – advisory group to SW SCG Stakeholder event - 16 th June 2008 (flyer) Develop and submit Implementation Summary 30 th September 2008 to NCAT Develop Project Plan for implementation by 2011

South West Specialised Commissioning Group Summary (1) Clear need and remit for separating TYA services as distinct from paediatric and adult Dedicated implementation resource Framework for development Opportunity to improve outcomes

South West Specialised Commissioning Group Summary (2) Philosophy of (individualised) patient care Physical environment Clinical practice / expertise - planning Resourcing Workforce Any questions? or