Arthritis Foundation Arthritis Ambassador Briefing March 11, 2015 3PM Eastern Dial In: 1-866-487-9460 Conference Code: # 931 709 2991 Materials available.

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Presentation transcript:

Arthritis Foundation Arthritis Ambassador Briefing March 11, PM Eastern Dial In: Conference Code: # Materials available for download at

Agenda Welcome Laura Keivel, Manager of Grassroots Advocacy Federal Legislation and Caucus Update Anna Hyde, Director of Health Policy and Federal Affairs Welcome Back Congress Update Laura Keivel, Manager of Grassroots Advocacy State Legislation Update Mark Guimond, Director of State Government Relations Advocacy Summit Activities Laura Keivel, Manager of Grassroots Advocacy March Ambassador Activity Laura Keivel, Manager of Grassroots Advocacy Ambassador Commitment Form Laura Keivel, Manager of Grassroots Advocacy Q&A

Thank you for being a part of the Ambassador program Reminder of Goals for 2015 Sign up 16,000 new E-Advocates by the end of the year Grow the Congressional Arthritis Caucus to 126 members

Federal Legislation and Caucus Update Anna Hyde Director, Health Policy and Federal Affairs

Patients’ Access to Treatment Act Reintroduction is March 25 th Will be introduced by Rep. McKinley (R-WV) and Rep. Lois Capps (D-CA) The Arthritis Foundation has a lead role in the press conference - CEO Ann Palmer will speak Ambassadors will be notified of the social media campaign to raise awareness Working with potential Senate sponsors

Arthritis and the Military Specific Line item for arthritis research is an Advocacy Summit ask Background on issue There is no bill-this is at the discretion of members of Congress Staff to staff What can you do? Take action during the Virtual Summit and send letters through the website about the DOD research funding to your legislators 6

Arthritis Caucus Update Caucus newsletter will now be sent to not just Caucus members, but to all Health Legislative Assistants! Focused on policy issues of concern to people with arthritis Great recruiting tool 7

Welcome Back Congress Update 29 meetings Many legislators have expressed interest but none have committed Keep up the follow up! If you have not reported for January, please do so as soon as possible 8

State Legislation Update Mark Guimond Director of State Legislative Affairs

2015 Action in the States Mark Guimond, AF’s Director of State Legislative Affairs testifying before the Maryland House of Delegates Health and Government Operations Committee on biosimilars. Maryland

2015 Action in the States Colorado 11 Arthritis Foundation Ambassador Anita Fricklas and Arthritis Foundation Advocate Mariah Zebrowski

2015 Action in the States Georgia Ambassador Kerry Tucker speaks to the Georgia legislature

2015 Action in the States Oregon Ambassador George Ross and Arthritis Foundation Staff Johanna Lindsay

2015 Action in the States Interactive Map! 14

Advocacy Summit Over 350 attendees Activities include a Kids’ Summit, advocacy trainings, exhibits, and an awards dinner A special advocate toolkit will be available online to all advocates after the Summit

Virtual Summit Participate online using social media! #AdvocateforArthritis Read blogs, follow updates, and take action!

March Ambassador Activity We are making a major push for letters to deliver to Congress during the Advocacy Summit Use the template on the Ambassador Activity webpage to write your own letter and have 2 friends, family, neighbors, co-workers, etc. write letters too! We will modify the letters to go to all of your legislators and modify if they are in the Caucus

March Ambassador Activity Complete by March 18 th You only need to report: Who sent the letters (including yourself) To get full credit for the activity, you must send a letter as well as two other people that you recruit.

Reporting Center It’s important to log your activity We don’t know what’s happening unless you report in! 19

Activity Resources Visit the Ambassador webpage and Virtual Summit webpage for a draft letter We will change the language if your legislators are already on the Caucus and find your legislators so your member of Congress and Senators will receive the letters 20

Reporting Center Please report your activity in the reporting center when you complete the activity We need full participation in this activity to ensure success! 21

Ambassador Commitment Form The Ambassador Commitment form is a yearly document to confirm your participation in the Ambassador program The form will be available soon and the deadline will be adjusted accordingly. You MUST sign the form to remain in the Ambassador program. 22

2015 Ambassador Briefing Dates Wednesday, April 15 3:00 PM Eastern Wednesday, May 6 3:00 PM Eastern Wednesday, July 8 3:00 PM Eastern Wednesday, September 9 3:00 PM Eastern Wednesday, November 11 3:00 PM Eastern 23

Questions? Contact Laura Keivel Manager of Grassroots Advocacy

Thank You! We appreciate all of your support and dedication! The next Ambassador call is April 15, :00 PM Eastern 25