Tennessee is Key to ENDING Childhood Cancer Childhood Action Team TN Cancer Coalition: www.tncancercoalition.orgwww.tncancercoalition.org State Cancer.

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Presentation transcript:

Tennessee is Key to ENDING Childhood Cancer Childhood Action Team TN Cancer Coalition: State Cancer Plan: 1

Key to the Cure: Tennessee Hospitals Annual Hem/Onc Pediatric VisitsReach * St. Jude Research Hospital for Children76,135Global *Vanderbilt-Ingram Cancer Center/ Monroe Carell Jr. Children’s Hospital 23,308TN, KY, AL, IN East Tennessee Children’s Hospital6,696TN, NC, GA, KY, VA TC Thompson Children’s Hospital4,660 TN, GA, AL, NC Niswonger Children’s Hospital/ St. Jude Affiliate 3,590TN, VA, KY, NC TOTAL114,389 * National Cancer Institute (NCI) designated Comprehensive Cancer Center – recognized for excellence in research, treatment, education and outreach. Throughout 14 southern states, there are only 8 Comprehensive Cancer Centers, of which 2 are in TN. 2

Tennessee Organizations: Butterfly Fund: CanConnect/Playing By Air: Cure4Kids: Emily’s Power for a Cure: Franklin 4 The Cure: Gabe’s My Heart: Hatcher Foundation: Hoover Hope Foundation: Jade’s Fund: Katie’s Helping Hand: Kidz Team: Lana’s Love: Lily’s Garden: Live Lovely: TN Cancer Coalition Childhood Action Team: Key to Community Action in the Volunteer State 3

More Keys to Community Action National Organizations with Tennessee Affiliations: Alex’s Lemonade Stand Foundation: Candlelighters/American Childhood Cancer Organization: Children’s Cause For Cancer Advocacy: CureSearch/Children’s Oncology Group: 46 Momma’s Shave for the Brave (St. Baldricks): Gilda’s Club: Lighthouse Family Retreat: LiveStrong Foundation: Leukemia & Lymphoma Society: National Children’s Cancer Society: *People Against Childhood Cancer: Rally Foundation: St. Baldrick’s Foundation: The Wellness/Cancer Support Community: *Childhood Cancer Awareness Petition currently signed by 905 Tennesseans. 4

Locked out of Normal Family Life 5 Pain/Fear/Guilt: “Will I ever be a normal kid again? My family is turned upside down because of me.” Finances: “Without my job, we had to take a second mortgage and we still can’t pay the bills.” Separation: “I’m scared to wait for the bus alone and I’ve been sleeping at Grandma’s house for months.” Family Stress: “I was told that when a child is diagnosed with cancer, the divorce rate is 75%.” Shock: “Our entire life changed in a day and we had to make tough decisions that would last forever."

46 children (2 classrooms) are diagnosed with cancer each day. 9 will not survive. Survivors require lifelong care. 6 Julius - Nashville Andy - McMinnville Caroline - Franklin Gigi - Franklin Sarah - Maryville Logan - Robards Devin - Nashville Colin - Chattanooga Children hold the Keys to our Hearts

Children hold the Keys to our Hearts 7 In the U.S., more children die of cancer than any other disease… more than asthma, diabetes, cystic fibrosis, congenital abnormalities, and AIDS combined. Nate - Paducah Lana Beth - Chattanooga Anthony - Murfreesboro Maddie - Lenoir Emily - Knoxville Walker - Knoxville Jade - Franklin In Loving Memory

You hold the Key to our Children’s Future 8 1.Join the U.S. House Pediatric Cancer Caucus Contact: Laura Bunten Congressman Michael McCaul’s office or Maintain levels of funding in Pediatric Research 3.Establish an NCI Study Section on Pediatric Cancer 4.Support legislation pending:  S 3697 Creating Hope Act  HR 2109 Childhood Cancer Survivorship Act