Regulating UK Bioethics Jonathan Montgomery 20 July 2012

History Health Professionalism –BMA, Royal Colleges –Kennedy challenge in Reith Lectures Bureaucratic bioethics –Warnock – HFEA –Nuffield Council on Bioethics –Human Genetics Commission Post-bureaucratic bioethics –The bonfire of the Quangos

Issues? Explanations offered –Cost –Legitimacy Evidence, rigour & politics –Presumed consent or ‘opt-out’ to organ donation in England & Wales –‘Condemnation’ - a retreat from evidence- based decision-making?

Phoenix possibilities Personalisation –Bioethics as a private matter Privatisation –Demos, Pratchett & Assisted Dying –Big Society? Democratisation –Parliamentary committee

Creating the future Emerging Science and Bioethics Advisory Committee (ESBAC) NCoB –Rigour –Stakeholders –Public debate Faith Communities…