Olmstead, Advocacy, and Community The Modules for Transition-Aged Youth and Their Families.

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Presentation transcript:

Olmstead, Advocacy, and Community The Modules for Transition-Aged Youth and Their Families

Families and Adult Service Systems

A Holistic Approach to the Olmstead Decision

Segregation vs. Inclusion The Americans with Disabilities Act

The Olmstead Lois and Elaine Decision Photos courtesy of Narcel G. Reedus, Georgia Advocacy Office

One Person’s Story “Get into politics as if your lives depend on it. And it does. You can be a soldier of justice. You can be a revolution of one.” Justin Dart

Nick Dupree and His Crusade Aging out of Medicaid—16 hours of care to 2 hours under the adult program Nursing home—closest one that could provide his needed level of care: 195 miles away in LA Challenged by his grandmother, Nick began a two year campaign Wrote letters, raised public awareness of the situation Worked with state senator to develop and introduce legislation to eliminate age limit on services When bill defeated, he filed a lawsuit in federal court His efforts caught the attention of the folks at AIMM who along with their friends, families and allies, wrote hundreds of letters to President Bush, urging him to take action

Nick: The Rest of the Story Days before his 21 st birthday, Medicaid waiver program for 30 Alabamians approved “I want people to think about the larger problem here. I plan to keep working on this for the rest of my life so that everyone can be safe and can be included in the community—and not locked in a faraway nursing home awaiting their death.

Next Up Module 3  Consumer Direction: Taking Control

Module 4T: Staying in the Community

Navigating Systems with the Wrong Map

Staying in the Community Even more possible now because of  Olmstead Decision  Guiding principles established by the ADA

A public entity shall administer services, programs, and activities in the most integrated setting appropriate to the needs of qualified individuals with disabilities Title II of the ADA

Jobs & Job Training

Transportation

Community Participation

A Story About Risk Taking

Ticket to Work and Work Incentives Improvement Act Medicaid Buy-In Medicaid Infrastructure Grants Social Security Work Incentives Benefits Counseling or Benefits Planning Assistance Outreach Programs Ticket to Work and Self-Sufficiency Protection and Advocacy for Beneficiaries of Social Security New Freedom

Module 5: Medicaid Framework Part I Part II