Patient and public involvement in clinical audit Kim Rezel PPI lead, HQIP

Outline PPI at HQIP Lay-friendly reporting How to achieve effective PPI Case studies PPI in national audits

PPI at HQIP The Service User Network, established soon after HQIP in They meet four times a year and are an important advisory groupService User Network There are about 40 members who are patients, service users or carers and are dedicated to being involved in helping improve healthcare at a national and local level

PPI strategy This strategy describes HQIP’s vision, commitment and approach to involving, engaging and informing patients and their representative organisations throughout our work. It has been developed to support the attainment of HQIP’s values and strategic objectives. Delivery of the strategy will be facilitated through our patient and public involvement (PPI) policy and operational plans.

What do we mean by INVOLVEMENT How patients and the public will be involved in the structures and process of the work i.e. through mechanisms such as governance, priority setting, teaching and education, identification of the need for innovation, assessment of technologies. ENGAGEMENT How patients and their carers will be supported to be active participants in their own care through approaches such as personalised care planning and shared decision-making. EXPERIENCE How the subjective experience of patients is captured and utilised for quality improvement Oxford Academic Health Science Network

Lay friendly reports Patient information Patient choice Patient engagement

What can patients get from the NJR? Access to safe, trusted quality information To understand their joint replacement surgery options Make informed choices To feel empowered PPI and NJR

Patient reps on the NJR Steering Committee Feed into the decision making process Monitor NJR work programme Reflect the needs and views of patients Help develop our Patient Network PPI and NJR

NJR Patient Network More than fifteen members who participate at meetings or via /phone Getting involved in other areas of NJR work including the development of surgeon and hospital-level information

Public and Patient Guide Evolution Moving forward for 2014

Shaping new services Surgeon and hospital data – new hospital information launched in March 2015 at Patients helping to shape the content and presentation of data – new hospital information is in ‘thermometer’ charts rather than spider plots, patient preference

The National Review into Patient Safety in England “The goal is not for patients and carers to be the passive recipients of increased engagement, but rather to achieve a pervasive culture that welcomes authentic patient partnership – in their own care and in the processes of designing and delivering care. This should include participation in decision- making, goal-setting, care design, quality improvement, and the measuring and monitoring of patient safety.” August 2013

Facilitating effective PPI The National Involvement Partnership The NIP 4PI National Involvement Standards 1. Principles – Inclusivity – Transparency – Feedback 2. Purpose – To gain a more rounded perspective and to empower patients to become more involved in local and national audit activities

Facilitating effective PPI 3. Presence – National Voices on the board – SUN – Condition specific projects 4. Process – Disseminating information – Guidance and training – Consultations 5. Impact – Monitoring involvement and measuring impact

PPI in clinical audit Gold standard – patient panel org.uk/ppi- guidance/ org.uk/ppi- guidance/

A Stroke of genius

Training Online learning

Case studies

Inflammatory bowel disease audit Crohn’s and colitis UK – Steering group – Developed IBD standards – Involved in developing patient information – Their own supplementary leaflet

National audit involvement Cystic Fibrosis registry – 2015 survey – Communicating and consulting

NCAPOP PPI HQIP awards - NCAPOP partnership with patients and service user category SSNAP/Diabetes UK/NAS nominees – 2013 Winner 2014 – Epilepsy 12

Epilepsy 12

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